Australian Government funding for subsidised Myozyme treatment for Children and Adults suffering from Pompe Disease.
Updates
August 14, 2010
The silence from officials is deafening. We are preparing the next round of correspondence to force a formal response.
3 Comments
FUND IT. Unbelievable that this is even a debate when lives are on the line. Do the right thing for once.
So many families are suffering because of this price tag. Needs to be on the pbs immediately! people shouldnt have to choose between their health and their life savings.
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Australian Government funding for subsidised Myozyme treatment for Children and Adults suffering from Pompe Disease.
Updates
August 14, 2010
The silence from officials is deafening. We are preparing the next round of correspondence to force a formal response.
3 Comments
My nephew has this and watching him struggle is heartbreaking. The cost is just impossible for most families. Please help these people.
FUND IT. Unbelievable that this is even a debate when lives are on the line. Do the right thing for once.
So many families are suffering because of this price tag. Needs to be on the pbs immediately! people shouldnt have to choose between their health and their life savings.
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My nephew has this and watching him struggle is heartbreaking. The cost is just impossible for most families. Please help these people.