Skip to main content
Join the Simon Ibell Petition for Hunter Syndrome (MPS II) Treatment

Join the Simon Ibell Petition for Hunter Syndrome (MPS II) Treatment

862 signatures 138 to reach 1,000
A
Ali K. signed
K
Kennet H. signed
J
Julien H. signed
P
Patricia T. signed
B
Bridget H. signed
K
Katie M. signed
S
seli j. signed
S
Susan G. signed
D
David signed
J
Jocelyn E. signed
Started by Anonymous 18 years ago
The Government of Ontario is denying funding of an approved treatment for people with Hunter Syndrome (MPS II). Please join the NBA\'s Steve Nash in signing this petition to encourage the Ontario Government to provide care to Simon Ibell and other MPS II patients. Simon suffers from this rare genetic disorder that affects the entire body, major organs and joints. Enzyme Replacement Therapy for Hunter Syndrome is funded in BC and Alberta. The Ontario drug plan, however, does not cover the cost of this therapy, which stops progression of this life threatening disease and drastically improves the quality of life for MPS II patients. We, the undersigned, call on the Ontario Government to fund the treatment for Hunter Syndrome (MPS II). Patients with rare diseases deserve the same standard of care as anyone else. We, therefore, ask that the Ontario Government provide treatment for this devastating disease.

Updates

August 18, 2008

Five hundred people are now calling for this treatment. Ontario needs to listen.

Reached 500 supporters

August 16, 2008

Reached 100 supporters

August 12, 2008

6 Comments

D
David Harvey
17 years ago Featured

Fund this drug. It works in other provinces so stop making excuses.

L
Linda Haddad
17 years ago Featured

My heart breaks for Simon. Nobody should have to fight their own government just to stay alive.

S
Sarah Nichols
18 years ago Featured

This is just shameful. How can one province cover this life saving drug and another just leave people to suffer? Fix this now Ontario.

J
Jen Nash
18 years ago Featured

Sick and tired of our system failing people with rare diseases. Do the right thing for once.

T
Tom Greer
18 years ago Featured

keep fighting simon praying for you buddy

M
Mike Cunningham
18 years ago Featured

Why are we letting people die just because of their postal code? Give them the treatment they need!!

Help this petition grow

Share it with friends to help reach 1,000 signatures.

Your share link

Share directly