Join the Simon Ibell Petition for Hunter Syndrome (MPS II) Treatment

Sebastian Medina
Sebastian Medina 0 Comments
909 SignaturesGoal: 1,000

The Government of Ontario is denying funding of an approved treatment for people with Hunter Syndrome (MPS II). Please join the NBA\'s Steve Nash in signing this petition to encourage the Ontario Government to provide care to Simon Ibell and other MPS II patients. Simon suffers from this rare genetic disorder that affects the entire body, major organs and joints. Enzyme Replacement Therapy for Hunter Syndrome is funded in BC and Alberta. The Ontario drug plan, however, does not cover the cost of this therapy, which stops progression of this life threatening disease and drastically improves the quality of life for MPS II patients. We, the undersigned, call on the Ontario Government to fund the treatment for Hunter Syndrome (MPS II). Patients with rare diseases deserve the same standard of care as anyone else. We, therefore, ask that the Ontario Government provide treatment for this devastating disease.

Sponsor

Simon Ibell

Links

http://www.youtube.com/watchv=2w3ayN2ezAw http://www.facebook.com/group.phpgid=26548360770

Comment

909

Signatures