Petition to Subsidize Treatment & Other Healthcare costs of Connective Tissue Diseases in Kenya
We, the undersigned and The Connective Tissue Diseases Association, Kenya, petition the government to subsidize treatment and other healthcare costs for connective tissue diseases.
People living with connective tissue disorders like Lupus, Arthritis, Scleroderma, fibromyalgia just but to name a few, have been suffering in silence long enough. There are more patients with connective tissue disorders than those living with cancer, HIV, Diabetes all combined but we do not get the same coverage in the media as we should and need to help boost public awareness of these life threatening diseases.
Connective tissues disorders are crippling diseases that debilitate its sufferers; they are autoimmune diseases where our antibodies attack our bodies and our organs. These diseases are complex and poorly understood conditions that affects many parts of the body and causes symptoms which can be life-threatening.
There is currently no cure for these conditions, but there are different medications that can help relieve many of the symptoms and prevent progressive organ damage. With good levels of support from friends, family and healthcare professionals, many people living with these conditions learn to manage their conditions effectively. These sufferers struggle every day with various other ailments/illnesses and the escalating medical bills and tests are very expensive. We would like the government to look at offering free or subsidized prescriptions for these sufferers with immediate effect.
EVERYONE DESERVES TO BE HEARD. By signing this petition YOU are helping us to make this important change. Every signature counts.
Let's make this change together.
Updates
May 4, 2018
Reaching this new level of support feels heavy because it reminds me of how many of us are hurting alone. I am exhausted by this fight but your presence here gives me the resolve to keep pushing forward despite the silence from those in power.
Reached 100 supporters
May 4, 2018
109 Comments
Many people are suffering from the diseases in this petition and succumb due to lack of proper treatment arising from the costs and lack of proper cover. My sister succumbed to Lupus last year and we were left with a huge bill. Thank God for friends and family who came through and helped to clear the bill.
For ordinary citizens medical bill on these ailments are very expensive. Once diagonizesd it is a life time condition that stays with you beyond employment medical cover and shied away from by medical insurance companies.
Alot of people suffering from autoimmune diseases don't even know that they do. And majority cannot even afford a medical cover. Any help towards affordable medication would be welcome.
Being a lupus warrior is quite expensive. I use between 6000-8000 a month. Please help us. Thank you.
I am a sufferer of fibromyalgia and I would like people to be aware that it is a real disease. It is not all in the head and I would like the government to know that it takes a lot to manage the connective diseases such as these. It would really be helpful if they would step in and subsidize our treatment.
Let the costs be reduced or added to NHFS...
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Petition to Subsidize Treatment & Other Healthcare costs of Connective Tissue Diseases in Kenya
We, the undersigned and The Connective Tissue Diseases Association, Kenya, petition the government to subsidize treatment and other healthcare costs for connective tissue diseases.
People living with connective tissue disorders like Lupus, Arthritis, Scleroderma, fibromyalgia just but to name a few, have been suffering in silence long enough. There are more patients with connective tissue disorders than those living with cancer, HIV, Diabetes all combined but we do not get the same coverage in the media as we should and need to help boost public awareness of these life threatening diseases.
Connective tissues disorders are crippling diseases that debilitate its sufferers; they are autoimmune diseases where our antibodies attack our bodies and our organs. These diseases are complex and poorly understood conditions that affects many parts of the body and causes symptoms which can be life-threatening.
There is currently no cure for these conditions, but there are different medications that can help relieve many of the symptoms and prevent progressive organ damage. With good levels of support from friends, family and healthcare professionals, many people living with these conditions learn to manage their conditions effectively. These sufferers struggle every day with various other ailments/illnesses and the escalating medical bills and tests are very expensive. We would like the government to look at offering free or subsidized prescriptions for these sufferers with immediate effect.
EVERYONE DESERVES TO BE HEARD. By signing this petition YOU are helping us to make this important change. Every signature counts.
Let's make this change together.
Updates
May 4, 2018
Reaching this new level of support feels heavy because it reminds me of how many of us are hurting alone. I am exhausted by this fight but your presence here gives me the resolve to keep pushing forward despite the silence from those in power.
Reached 100 supporters
May 4, 2018
109 Comments
Management medications are very costly, often over Ksh 40,000/- per month for doctors fees, medicines, physiotherapy and equipment. A human right.
Many people are suffering from the diseases in this petition and succumb due to lack of proper treatment arising from the costs and lack of proper cover. My sister succumbed to Lupus last year and we were left with a huge bill. Thank God for friends and family who came through and helped to clear the bill.
For ordinary citizens medical bill on these ailments are very expensive. Once diagonizesd it is a life time condition that stays with you beyond employment medical cover and shied away from by medical insurance companies.
Alot of people suffering from autoimmune diseases don't even know that they do. And majority cannot even afford a medical cover. Any help towards affordable medication would be welcome.
Being a lupus warrior is quite expensive. I use between 6000-8000 a month. Please help us. Thank you.
I am a sufferer of fibromyalgia and I would like people to be aware that it is a real disease. It is not all in the head and I would like the government to know that it takes a lot to manage the connective diseases such as these. It would really be helpful if they would step in and subsidize our treatment.
Let the costs be reduced or added to NHFS...
I support
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Management medications are very costly, often over Ksh 40,000/- per month for doctors fees, medicines, physiotherapy and equipment. A human right.