Our children are being tortured to death by a terrible condition called Duchenne's Muscular Dystrophey.
By the age of five their little muscles will deteriorate and they will become wheelchair bound. Eventually they will be unable to breath unassisted. they will no longer be able to taste their food and will be fed by a tube.
The government need to donate money into research to FIND A CURE. At the moment it is costing the taxpayer alot of money for care assistants, home improvements, etc; this money could be saved if we find a cure. There is a cure around the corner, we just need the funding. Please help us PETITION THE GOVERNMENT for funding for RESEARCH into this terrible condition.
http://www.wirralglobe.co.uk/news/9174748.Wirral_mum_plans_muscular_dystrophy_fundraiser_after_son_s_diagnosis/
Updates
August 21, 2011
The momentum is incredible. This is exactly what we need to force a real conversation with the government.
Reached 100 supporters
August 21, 2011
6 Comments
My nephew has this. It is heartbreaking to watch him lose his strength day by day. Please put the money where it actually matters.
Its time to stop ignoring duchennes. fund the research now.
Find a cure already. Science is meant to solve problems like this not sit on its hands.
So heartbreaking. Praying for all the families going through this hell.
Ridiculous that we have to beg for research funding when its costing so much more in long term care. Just fix it.
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Our children are being tortured to death by a terrible condition called Duchenne's Muscular Dystrophey.
By the age of five their little muscles will deteriorate and they will become wheelchair bound. Eventually they will be unable to breath unassisted. they will no longer be able to taste their food and will be fed by a tube.
The government need to donate money into research to FIND A CURE. At the moment it is costing the taxpayer alot of money for care assistants, home improvements, etc; this money could be saved if we find a cure. There is a cure around the corner, we just need the funding. Please help us PETITION THE GOVERNMENT for funding for RESEARCH into this terrible condition.
http://www.wirralglobe.co.uk/news/9174748.Wirral_mum_plans_muscular_dystrophy_fundraiser_after_son_s_diagnosis/
Updates
August 21, 2011
The momentum is incredible. This is exactly what we need to force a real conversation with the government.
Reached 100 supporters
August 21, 2011
6 Comments
these poor kids deserve a chance at a normal life. why is the govt so slow on this???
My nephew has this. It is heartbreaking to watch him lose his strength day by day. Please put the money where it actually matters.
Its time to stop ignoring duchennes. fund the research now.
Find a cure already. Science is meant to solve problems like this not sit on its hands.
So heartbreaking. Praying for all the families going through this hell.
Ridiculous that we have to beg for research funding when its costing so much more in long term care. Just fix it.
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these poor kids deserve a chance at a normal life. why is the govt so slow on this???