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The government has officially committed to the increased funding for lupus research that we requested. This outcome arrives as a profound validation for every family who has lived through the hardships of this disease. We must remain vigilant to ensure these resources are applied effectively as the work continues.

April 7, 2006

Government Funding for Lupus Research & Awareness

Government Funding for Lupus Research & Awareness

🏆 Won — 199 supporters Verified

Final supporters

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jose p.
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Beverly J.
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Erica M.
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Someone
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Kayleigh H.
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green m.
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James w.
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Beth D.
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Someone
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Dawn J.
+189 more
Started by Anonymous 23 years, 10 months ago
Systemic lupus sufferers have been suffering in silence long enough. There are more patients with Lupus than Diabetes, MS and Leukemia combined. But, we do not get the same coverage in the media as we should and need to help boost public awareness of this life threatening disease. The government needs to give more money towards Lupus research as well as funds to help get the word out about Lupus. The more people know, the more they can help. Please sign this petition to ask the government to give more support to Lupus. 90% of Lupus sufferers are women and like breast cancer it is about time the government give more support to illnesses that afflict women. Now is the time to speak up and let them know that it is time to look Lupus in the eye and defeat it. Many children, like my daughter suffer from this disease, and many must endure years of steroid medications, chemotherapy, and and a host of other medicines. Many like my daughter, lose their hair, have stunted growth, delayed puberty, seizures, and severe fatigue and arthritis. Should children have to live like this I dont think so, and I hope you will sign this petition and agree that the government needs to do more to fight Lupus and other auto immune diseases. Women and children in this counrty deserve the best, and they deserve the attention of our senators and congressman. Please visit the Lupus Alliance of Americas website to learn more about lupus, and how you can help. Thank you.

Updates

February 20, 2006

The stories shared in the comments section reveal a depth of struggle that is often overlooked in official funding discussions. These accounts provide the necessary momentum to keep pushing forward until the reality of this disease is impossible to ignore.

February 20, 2006

Seeing this progress gain speed reminds me that the silence surrounding this disease is beginning to lift. It is heartening to know that so many people understand the urgency of providing these children and women the specialized care they require.

Reached 100 supporters

February 20, 2006

9 Comments

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Beverly Johnson
11 years ago Featured

My 2 daughters and I have lupus. My youngest daughter has a kidney transplant and chronic pancreatitis due to this disease.

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Lisa Snyder
23 years ago Featured

My sister was diagnosed at 14. She has missed out on so much because of constant flares. Help us.

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Jessica Mansour
23 years ago Featured

LUPUS IS REAL. STOP IGNORING US.

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Mike Robinson
23 years ago Featured

My wife has struggled for 10 years. We need real answers not just more pills that destroy her body.

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Sarah Hart
23 years ago Featured

Living with this everyday is a nightmare. The pain isreal and nobody seems to care unless it hits close to home.

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Karen Kumar
23 years ago Featured

Why is there so little research money going to this?? It ruins lives and breaks families apart.

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jose pereira
11 years ago

Why are the doctors. Not listing g lupus as cause of death

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jose pereira
11 years ago

Why are the doctors. Not listing g lupus as cause of death