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Petition to Increase TSC Research Funding

Petition to Increase TSC Research Funding

4,614 signatures 386 to reach 5,000
Z
zetrienia signed
人気スーパーコピーブランド時計激安通販専門店 signed
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Teresa T. signed
S
Sandra H. signed
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MICHELLE H. signed
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Lillian F. signed
A
Andryea G. signed
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jesse f. signed
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Michael P. signed
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nathan r. signed
Started by Anonymous 18 years ago
Tuberous sclerosis complex (TSC) is a genetic disorder that causes tumors to form in many different vital organs, primarily in the brain, eyes, heart, kidney, skin and lungs. The disease affects some people severely, while others are so mildly affected that it often goes undiagnosed. Epilepsy, autism, learning and behavioral problems are often found in people with TSC. At least two children born each day will have TSC. Current rough estimates place TSC-affected births at one in 6,000. Nearly 1 million people worldwide are known to have TSC, with approximately 50,000 in the United States. TSC is as common as Cystic Fibrosis and Lou Gehrig\'s Disease but virtually unknown by the general population. Two genes have been identified that can cause TSC. Only one gene needs to be affected for TSC to be present. Researchers are trying to determine what these genes do and how a defect in these genes causes TSC. Substantial investments have been made in tuberous sclerosis complex research at both the National Institutes of Health (NIH) and the Department of Defense (DoD) for which we are thankful. Thanks to this investment, researchers have made enormous breakthroughs that have a significant impact on our understanding not only of TSC but of more prevalent conditions like autism, epilepsy, cancer and diabetes. But more needs to be done. Please sign this petition, which will be shared with Members of Congress, in support of the following: --The Tuberous Sclerosis Alliance supports a 6.7% increase for the NIH to help fund new research into finding a cure for TSC. --We also urge the DoD subcommittee to support an appropriation of $10 million for the Tuberous Sclerosis Complex Research Program, the world\'s largest single research program specifically devoted to TSC research. --We also support funding for a new program at the Centers for Disease Control to help us better understanding the national prevalence of TSC and train individuals to better diagnose this complex disorder.

Updates

Reached 2,500 supporters

January 9, 2009

January 6, 2009

Momentum is building. People are finally noticing the reality of TSC.

Reached 1,000 supporters

August 15, 2008

Reached 100 supporters

August 8, 2008

7 Comments

D
David Edwards
17 years ago Featured

Fix this now. Congress needs to wake up and see that these families need help.

M
Mike Gallagher
17 years ago Featured

How is this so common but nobody knows what it is? Lets get some real funding moving.

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Tom Chavez
17 years ago Featured

Its wild that this affects so many but gets so little attention. Time to change that.

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Sarah Sloan
18 years ago Featured

My nephew has this and he struggles every single day. We need more answers for these kids.

L
Linda Brooks
18 years ago Featured

So heartbreaking to watch kids go through this. Research is the only way forward.

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Jessica Morrison
18 years ago Featured

TSC changed our whole life. PLEASE fund this research!!

人気スーパーコピーブランド時計激安通販専門店
6 years ago

スーパーコピー時計 爆人気なルイヴィトンのスーパーコピールイヴィトンのスーパー新作コピーを大量入荷しました。上質な素材を使用して、最高な技術で、丁寧に作った商品です。様々な書類があって、超低価格で購入できます。そして、品質にも保証があって、本当に信頼できるいい店です。早くこちらへ選びましょう。ゴージャスなルイヴィトンのブランドスーパーコピーこちらは人気高いルイヴィトンのスーパーコピー商品をご提供いたします。新作が情報満載で、必ず好きのを見つかります。品質に対しては保証があって、信頼できる店です。激安な値段で、高級な商品を購入できます。いま、セールも進行していて、チャンスを逃げさず、チェックしましょう。世界超人気ブランドの商品コピーこちらは最高な品質の商品をご提供いたします。世界でもっと高いランクのブランド、例えば、バーバリー、ミュウミュウやフェンディなどの商品コピーして、品質を保証できて、信用できる店です。そして、商品の新作情報満載で、好きに選べます。早速こちらへチェックしましょう。人気モンクレールコピー商品が登場人気高いモンクレール全品コピーを販売しています。新品が情報満載で、いっぱい書類があって、勝手に選べます。今、様々なセールが進行していて、超低価格で高品質の製品を購入できて、チャンスを掴んで、チェックしましょう。}}}}}} 人気の売れ筋商品を多数取り揃えております。 全て激安特価でご提供.お願いします. ★100%品質保証!満足保障!リピーター率100%! ★商品数も大幅に増え、品質も大自信です。 ★スタイルが多い、品質がよい、価格が低い! ★顧客は至上 誠実 信用。 ★歓迎光臨 ★送料無料(日本全国) https://www.bagraku.com/bagraku5/royaloak/15400.OR.OO.1220.OR.02.html

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