Campaign For Fairer Medical Assessments & Understanding of Lupus Sufferers and Associated Connective Tissue Disorder

Jane Gill-Wilson
Jane Gill-Wilson 1 Comments
1,415 Signatures Goal: 5,000

This petition is to increase government awareness of the complexity of this debilitating disease. Systemic Lupus Erythematosus is hard to say and much harder to live with. It affects lives, ruins relationships and can stop people working. At a time when the government's mission is to get as many people off sickness benefits and back into work, as a means of easing the deficit, the Lupus community need to raise the profile of this disease: One which is bewildering, unpredicatble and debilitating. We need our voice to be heard... We need DWP Doctors to understand that the current medical assessments are by no means fair when assessing a Lupus sufferer. Most of us have suffered for many years; we have more hospital appointments in one year than most people have in a lifetime. We never know from one day to the next how we will feel, we can't predict or even plan. We need the government directive for medical DWP assesments to include that all claimants with a diagnosis of SLE or associated connective tissue disorder should complete a relevent questionnaire focusing on how the disease affects us. Rather than have a DWP Doctor carry out a 'one for all test' and based on his/her findings on the day declare us fit or unfit for work. Our own physcians involved in our care should be allowed to provide supportive evidence. We should be exempt from having to prove to a DWP Doctor (who doesn't know us!) that we are 'sick' Our supportive medical evidence should be all that is required, thus preventing the additional stress this situation is causing and in turn can exacerbate symptoms. Lupus is a difficult disease to diagnose. On average it takes six years from onset of symptoms to diagnosis; however, in some cases it can take much longer. It is therefore unfair that someone, who has no knowledge of how the disease affects us day to day; or does not know how much our lives are compromised, can be responsible for determining our future.

If you are a Lupus sufferer or can support someone who is, please sign your name to the petition below. We need to fight back, we need to stand up and have our voice heard and in doing so free ourselves from a future fuelled with fear.

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  • Michelle Batchelor
    Michelle Batchelor United Kingdom, New Malden
    Jan 06, 2017
    Jan 06, 2017
    I have found in my case the DSS to be very unsympathetic because my symptoms are very variable. I have the brain form of Lupus but this was ignored and I was told I was fit to work. Gps med certs were ignored and conveniently lost at my local jobcentre. I contested their esa decision which suddenly stopped with a number of specialists consultants letter and my GP who I attended since a child. I then was lucky enough to get a supportive member of the jobcentre after seeing different members each time. He advised me that i could go on EPS for 13 weeks maximium. I was told this week even though I had a reputable Drs med cert for 2 months that I have to look for work now. Even though I have a severe Neuro Lupus condition with a multi system involvement which is still under investigation and active. There is no cure but in time it van go into remission. I am currently searching for employment as have no choice as do not want to incur more stress with debt and end up homeless. As this has a knock on effect. But I also have been warned going back to work before my illness is in remission could cause more damage but no one seems to care and just says it is the law I cannot claim again if I get ill now within 6 months unless it is for a different condition. This law has to change why are we treated hard working people who get ill like criminals!!!
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Signatures

  • 10 months ago
    Helen United Kingdom
    10 months ago
  • 1 year ago
    Michelle Batchelor United Kingdom
    1 year ago
  • 4 years ago
    Jackie Googe United Kingdom
    4 years ago
  • 5 years ago
    social bookmarking service Russian Federation
    5 years ago
  • 5 years ago
    David Green Sr United States
    5 years ago
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    Debra Green United States
    5 years ago
  • 5 years ago
    Denis Coughlin Malta
    5 years ago
  • 6 years ago
    julie giles United Kingdom
    6 years ago
  • 6 years ago
    John Mckeever United Kingdom
    6 years ago
  • 6 years ago
    itcvgci
    6 years ago
  • 6 years ago
    Mrs Angela Woodhouse United Kingdom
    6 years ago
  • 6 years ago
    Adobe OEM Software Ukraine
    6 years ago
  • 6 years ago
    Frances Harkin United Kingdom
    6 years ago
  • 6 years ago
    MeLissa Phillips United States
    6 years ago
  • 6 years ago
    TJ United Kingdom
    6 years ago
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