WE DID IT!! THE NIH HAS OFFICIALLY APPROVED FUNDING FOR THIS CRITICAL RESEARCH AND OUR VOICES HAVE FINALLY BEEN HEARD!! I AM BEYOND THRILLED THAT THIS LIFE CHANGING WORK CAN NOW MOVE FORWARD FOR EVERYONE LIVING WITH THIS CONDITION!!
September 12, 2021
Final supporters
I am affected by Dupuytren disease, as are 10 million Americans and millions more worldwide.
I need better treatment options to avoid Dupuytren-related progressive hand disability.
Current remedies don't always work. Even if they do, they often fail over time. They don't prevent other health effects of Dupuytren. Long-term outcomes have not improved in 70 years.
The Dupuytren community needs a Dupuytren blood test to develop preventive medical treatments.
The nonprofit Dupuytren Research Group in collaboration with Spectragen Informatics is working to develop a Dupuytren activity biomarker blood profile. They are applying for NIH grants to help fund this research.
I support this research and ask that it be funded. I am optimistic this work will be the first step to better futures for people and families affected by this disease.
Dupuytren research donations are through https://Dupuytrens.org/Donate/ )
Updates
Reached 1,000 supporters
June 24, 2021
Reached 100 supporters
December 30, 2020
7 Comments
My 2 adult children; 4 grandchildren, two over 21 are genetically affected. My daughter assisted in my surgery prep; recovery; will for future needs. Can they sign this?
My father had it and now both my hands are curling. It makes simple stuff like typing or cooking so hard. Please find a cure.
NEED A BLOOD TEST ASAP. tired of waiting for doctors to just cut it out when it comes back every few years.
Both my brother and I have the viking disease. We hate it. Doing whatever I can to help push for actual science instead of just symptom management.
Had surgery twice now on the right hand. It keeps coming back. Really hope this research helps find a real fix because the current stuff just doesnt last.
Absolutely! Thanks very much - Charles Eaton MD
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WE DID IT!! THE NIH HAS OFFICIALLY APPROVED FUNDING FOR THIS CRITICAL RESEARCH AND OUR VOICES HAVE FINALLY BEEN HEARD!! I AM BEYOND THRILLED THAT THIS LIFE CHANGING WORK CAN NOW MOVE FORWARD FOR EVERYONE LIVING WITH THIS CONDITION!!
September 12, 2021
Final supporters
I am affected by Dupuytren disease, as are 10 million Americans and millions more worldwide.
I need better treatment options to avoid Dupuytren-related progressive hand disability.
Current remedies don't always work. Even if they do, they often fail over time. They don't prevent other health effects of Dupuytren. Long-term outcomes have not improved in 70 years.
The Dupuytren community needs a Dupuytren blood test to develop preventive medical treatments.
The nonprofit Dupuytren Research Group in collaboration with Spectragen Informatics is working to develop a Dupuytren activity biomarker blood profile. They are applying for NIH grants to help fund this research.
I support this research and ask that it be funded. I am optimistic this work will be the first step to better futures for people and families affected by this disease.
Dupuytren research donations are through https://Dupuytrens.org/Donate/ )
Updates
Reached 1,000 supporters
June 24, 2021
Reached 100 supporters
December 30, 2020
7 Comments
No one in my heritage have this that we know of. I can go back to my great-grandfather's and great-grandmother's on both sides.
My 2 adult children; 4 grandchildren, two over 21 are genetically affected. My daughter assisted in my surgery prep; recovery; will for future needs. Can they sign this?
My father had it and now both my hands are curling. It makes simple stuff like typing or cooking so hard. Please find a cure.
NEED A BLOOD TEST ASAP. tired of waiting for doctors to just cut it out when it comes back every few years.
Both my brother and I have the viking disease. We hate it. Doing whatever I can to help push for actual science instead of just symptom management.
Had surgery twice now on the right hand. It keeps coming back. Really hope this research helps find a real fix because the current stuff just doesnt last.
Absolutely! Thanks very much - Charles Eaton MD
Share Petition
Don't stop at signing, share the petition link with friends to multiply our impact
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No one in my heritage have this that we know of. I can go back to my great-grandfather's and great-grandmother's on both sides.