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I strongly support the creation of a formal Down syndrome contact registry, research database and biobank/tissue repository. I am pleased that there have been a number of substantive meetings between leading Down syndrome organizations and the NIH to assist with the preliminary planning of such registries. I encourage you to consider the recommendations that have been proposed by these organizations.
I appreciate the NIH's renewed interest in Down syndrome research and urge you fund these essential components to improve the lives of people with Down syndrome.
Updates
April 3, 2011
The petition has reached five hundred signatures. This level of interest signifies a clear commitment to advancing research for our community.
Reached 500 supporters
April 1, 2011
Reached 100 supporters
March 28, 2011
6 Comments
about time. my cousin deserves the same quality of life as everyone else. do it!
funding for this is vital. cant believe this hasnt been done years ago.
PLEASE MAKE THIS HAPPEN. this would change so many lives for the better.
science is amazing but we need to focus on what matters. fully support this effort.
long overdue. the medical community has ignored this for too long.
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p.p1 {margin: 0.0px 0.0px 0.0px 0.0px; font: 16.0px Cambria} p.p2 {margin: 0.0px 0.0px 0.0px 0.0px; font: 15.0px 'Times New Roman'; min-height: 17.0px}
I strongly support the creation of a formal Down syndrome contact registry, research database and biobank/tissue repository. I am pleased that there have been a number of substantive meetings between leading Down syndrome organizations and the NIH to assist with the preliminary planning of such registries. I encourage you to consider the recommendations that have been proposed by these organizations.
I appreciate the NIH's renewed interest in Down syndrome research and urge you fund these essential components to improve the lives of people with Down syndrome.
Updates
April 3, 2011
The petition has reached five hundred signatures. This level of interest signifies a clear commitment to advancing research for our community.
Reached 500 supporters
April 1, 2011
Reached 100 supporters
March 28, 2011
6 Comments
my brother has down syndrome and we need this. its about time someone actually put some real research into it!!
about time. my cousin deserves the same quality of life as everyone else. do it!
funding for this is vital. cant believe this hasnt been done years ago.
PLEASE MAKE THIS HAPPEN. this would change so many lives for the better.
science is amazing but we need to focus on what matters. fully support this effort.
long overdue. the medical community has ignored this for too long.
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my brother has down syndrome and we need this. its about time someone actually put some real research into it!!