we actually did it and the government finally agreed to add ibd to the scheme. i cant thank you enough for sticking with me while we pushed for this change. now we just have to make sure they follow through and roll this out for everyone who needs it.
November 7, 2010
Final supporters
Updates
Reached 1,000 supporters
August 21, 2010
Reached 100 supporters
July 21, 2009
28 Comments
This would mean a lot to people like myself who have this debilitating illness. It would greatly limit the amount of stress we have to endure regarding the financial side of this disease. This list has not been updated in 42 years. Don't you think it's time it should be amended??? We do!!!!!
While I am one of the more fortunate people who can manage to afford the medication I am prescribed I have come in contact with others who are not so lucky and have to live with the symptoms of this often dibilitating disease every day. They deserve better.
As a nurse I have seen the debilitating effected of Inflammatory Bowel Disease and believe from it's huge impact on sufferers' lives that it should be listed as a Long Term Illness
Have UC the last 15 yrs, husband the last 4 yrs, 8 yr old daughter Lucy the last 1.5 yrs. has not been an easy road, the cost of medication is dreadful expense put on family, we need this medical condition to be a long term illness.
I'm 20 Years old, I have ulcerative colitis and I'm on several medication, I'm on oral chemotherapy tablets as part of my treatment which are expensive in their own right, but for me to but my tablets every month it costs me over €200. I cannot afford this!! It's not right since we suffer from such a horrible condition that's LIFE LONG and we're ignored by the system! Not good enough
Pleas relieve the stresses of this please just do your research on this highly dibilitating disease
I am fighting for SS benefits because I am unable to work. I can't leave my house most days. I paid in all my life and the stress of fighting is making it worse. This needs to STOP!
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we actually did it and the government finally agreed to add ibd to the scheme. i cant thank you enough for sticking with me while we pushed for this change. now we just have to make sure they follow through and roll this out for everyone who needs it.
November 7, 2010
Final supporters
Updates
Reached 1,000 supporters
August 21, 2010
Reached 100 supporters
July 21, 2009
28 Comments
Ulcerative colitis sufferer and not on a high income. The burden of finding over €100 extra month for medication was very stressful which didnt help my illness. Eventually things got so bad that I had to have surgery in 2009 to remove my large bowel. I now still have to pay the maximum €144 per month for my ostomy bags and supplies and this will be for life. How can this not be classed as a long term illness?
This would mean a lot to people like myself who have this debilitating illness. It would greatly limit the amount of stress we have to endure regarding the financial side of this disease. This list has not been updated in 42 years. Don't you think it's time it should be amended??? We do!!!!!
While I am one of the more fortunate people who can manage to afford the medication I am prescribed I have come in contact with others who are not so lucky and have to live with the symptoms of this often dibilitating disease every day. They deserve better.
As a nurse I have seen the debilitating effected of Inflammatory Bowel Disease and believe from it's huge impact on sufferers' lives that it should be listed as a Long Term Illness
Have UC the last 15 yrs, husband the last 4 yrs, 8 yr old daughter Lucy the last 1.5 yrs. has not been an easy road, the cost of medication is dreadful expense put on family, we need this medical condition to be a long term illness.
I'm 20 Years old, I have ulcerative colitis and I'm on several medication, I'm on oral chemotherapy tablets as part of my treatment which are expensive in their own right, but for me to but my tablets every month it costs me over €200. I cannot afford this!! It's not right since we suffer from such a horrible condition that's LIFE LONG and we're ignored by the system! Not good enough
Pleas relieve the stresses of this please just do your research on this highly dibilitating disease
I am fighting for SS benefits because I am unable to work. I can't leave my house most days. I paid in all my life and the stress of fighting is making it worse. This needs to STOP!
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Ulcerative colitis sufferer and not on a high income. The burden of finding over €100 extra month for medication was very stressful which didnt help my illness. Eventually things got so bad that I had to have surgery in 2009 to remove my large bowel. I now still have to pay the maximum €144 per month for my ostomy bags and supplies and this will be for life. How can this not be classed as a long term illness?