Blue Cross Blue Shield of Texas has officially approved the coverage for Faith. This outcome ensures she can finally receive the care she needs to improve her quality of life. I am deeply thankful to everyone who stood by us through this uncertainty.
June 9, 2017
Final supporters
We are petitioning for the full funding of 5 year old, Faith's
treatment of Spinal muscular atrophy, which would improve her ability to
breath, muscular strength, and most importantly, increase her life
expectancy.
We need approval from Faith's secondary insurance company: Blue Cross Blue Shield of Texas
For more information, read on or click here for KWTX News :
5 year old, Faith Fortenberry, was diagnosed with spinal muscular atrophy (SMA),
a rare and sometimes fatal disease that causes muscle wasting and
weakness and makes every day living a struggle.
In December 2016, the first and only treatment for SMA was approved.
This drug is called Spinraza. The issue with this treatment is that this drug will cost about $750,000 for six injections during the first year.
On March 10, both of Faith's families' insurance companies notified them that they will be funding the treatment to change Faith's life.
(Faith had hope that she might be able to live longer than expected)
On March 31st, the approval was re-evaluated and denied
(Faith lost the hope that she would ever live a normal life)
On April 4th, Scott and White changed their minds again and agreed to provide 80% of treatment costs to save Faith's life if the other company would provide the remaining 20%. The next step was to receive approval from their secondary health insurance, Blue Cross Blue Shield of Texas. Blue Cross will not agree to pay the remaining 20% of the treatment cost that Scott and White could not cover.
We are petitioning for the full funding of 5 year old, Faith's treatment
of Spinal muscular atrophy, which would improve her ability to breath,
muscular strength, and most importantly, increase her life expectancy.
Updates
Reached 500 supporters
April 22, 2017
Reached 100 supporters
April 21, 2017
184 Comments
BCBS, there is no room for dishonesty in your business. You gave your word, do not go back on it. You exist to insure health and life for those you serve. To "secure and protect" Faith against this disease. Do your job.
Please funds this treatment for Faith Years ago my daughter was denied a treatmento to rod her legs ecause of the expense, lucky for us Scottish trite stepped in and she received what she needed.FUND THIS FOR FAITH
Please provide this lil girl with the treatment she needs! Think about if this was your child, would you want he/she to be denied health coverage tht you r already paying for?
Working in the medical field for over 10 years now, I know what short cuts insurances make and how they try to tell the doctor what to prescribe to the patient. This needs to stop! You are choosing money over a life. Shameful! Go get em LeeAnn and Faith!!!!
For the love of God, the primary insurance is carrying the heavy burden of cost. How can you deny secondary coverage Blue Cross? Please do the humane thing for this sweet baby girl!
A child's quality of life is infinitely more valuable than money. Fund Faith's treatment without hesitation.
I hope this beautiful lil girl gets all she needs , prayers! Her life is a precious one.
Share this petition
Share this petition to help it reach more people.
Your share link
Blue Cross Blue Shield of Texas has officially approved the coverage for Faith. This outcome ensures she can finally receive the care she needs to improve her quality of life. I am deeply thankful to everyone who stood by us through this uncertainty.
June 9, 2017
Final supporters
We are petitioning for the full funding of 5 year old, Faith's
treatment of Spinal muscular atrophy, which would improve her ability to
breath, muscular strength, and most importantly, increase her life
expectancy.
We need approval from Faith's secondary insurance company: Blue Cross Blue Shield of Texas
For more information, read on or click here for KWTX News :
5 year old, Faith Fortenberry, was diagnosed with spinal muscular atrophy (SMA),
a rare and sometimes fatal disease that causes muscle wasting and
weakness and makes every day living a struggle.
In December 2016, the first and only treatment for SMA was approved.
This drug is called Spinraza. The issue with this treatment is that this drug will cost about $750,000 for six injections during the first year.
On March 10, both of Faith's families' insurance companies notified them that they will be funding the treatment to change Faith's life.
(Faith had hope that she might be able to live longer than expected)
On March 31st, the approval was re-evaluated and denied
(Faith lost the hope that she would ever live a normal life)
On April 4th, Scott and White changed their minds again and agreed to provide 80% of treatment costs to save Faith's life if the other company would provide the remaining 20%. The next step was to receive approval from their secondary health insurance, Blue Cross Blue Shield of Texas. Blue Cross will not agree to pay the remaining 20% of the treatment cost that Scott and White could not cover.
We are petitioning for the full funding of 5 year old, Faith's treatment
of Spinal muscular atrophy, which would improve her ability to breath,
muscular strength, and most importantly, increase her life expectancy.
Updates
Reached 500 supporters
April 22, 2017
Reached 100 supporters
April 21, 2017
184 Comments
Love and prayers for Faith! My daughter passed away last June, only a few months before a treatments for her Spinal Muscular Atrophy became available. If Faith has a chnace to be cured she deserves it! EVERY child deserves a chance!!
BCBS, there is no room for dishonesty in your business. You gave your word, do not go back on it. You exist to insure health and life for those you serve. To "secure and protect" Faith against this disease. Do your job.
Please funds this treatment for Faith Years ago my daughter was denied a treatmento to rod her legs ecause of the expense, lucky for us Scottish trite stepped in and she received what she needed.FUND THIS FOR FAITH
Please provide this lil girl with the treatment she needs! Think about if this was your child, would you want he/she to be denied health coverage tht you r already paying for?
Working in the medical field for over 10 years now, I know what short cuts insurances make and how they try to tell the doctor what to prescribe to the patient. This needs to stop! You are choosing money over a life. Shameful! Go get em LeeAnn and Faith!!!!
For the love of God, the primary insurance is carrying the heavy burden of cost. How can you deny secondary coverage Blue Cross? Please do the humane thing for this sweet baby girl!
A child's quality of life is infinitely more valuable than money. Fund Faith's treatment without hesitation.
I hope this beautiful lil girl gets all she needs , prayers! Her life is a precious one.
Share this petition
Share this petition to help it reach more people.
Your share link
Petitions like this
Other petitions you might want to support
Scan to share
Anyone who scans this can sign the petition.
Love and prayers for Faith! My daughter passed away last June, only a few months before a treatments for her Spinal Muscular Atrophy became available. If Faith has a chnace to be cured she deserves it! EVERY child deserves a chance!!