We draw your attention to Lyme disease, or borreliosis, which is increasing in incidence dramatically across Europe and the USA.Lyme disease is a real and present danger for those working or recreating in woods, parklands or even their own back gardens. We ask that the government acts now to increase public awareness of this tick-borne infection, that better diagnostic tests are designed, that specialised treatment is developed to help the many thousands suffering from the chronic effects and that the disease be made notifiable. Every year tens of thousands of European and UK citizens contract Lyme disease and because of the difficulties with awareness and testing, many go undiagnosed and untreated. Those who receive late or inadequate treatment become partially or completely disabled, with a high cost to themselves and to society. In some cases the disease can be fatal. It is far better to tackle this problem before it gets worse; in some areas it has already reached epidemic proportions. Resources must therefore be devoted as soon as possible to improve diagnosis, treatment and public safety.
Specific demands of the petition
1: That Lyme borreliosis be made a notifiable disease, so that the true incidence becomes apparent.
2: That better methods are actively explored, to test for and diagnose both acute and chronic infections.
3: That doctors are trained in the treatment of borreliosis and other tick-borne diseases. Given the number of patients who may now be infected, we ask that special clinics are established where the diverse range of the effects of the disease can be acknowledged and treated.
4: That treatment is extended for as long as necessary, and to include the use of high dose, combination or long-term antibiotics, especially in those patients who have been ill for a long time. Even in those patients who appear to have recovered, a 5-year follow-up would be advisable to monitor the condition.
5: That medical schools and practising physicians be made aware of the research and latest knowledge in diagnosis and treatment of Lyme disease, as well as the other emerging infectious diseases carried by arthropods which may cause co-infections in patients with borreliosis.
6. That all government agencies for the Environment, Health, Sport and Tourism use their resources to make the general public in the UK aware of the potential risks from tick bites.
For background information to understand how we desperately need to get across the serious aspects of this disease, please see the web site at http://uklymepetition.atspace.com/
the web site for UK patients:www.lymediseaseuk.com
and the Facebook pages
https://www.facebook.com/pages/Ask-The-Department-Of-Health-Why/268238779905572
and
LymeDiseaseUKDiscussionGroup
https://www.facebook.com/groups/481294698590907/
Worldwide Lyme Protest
https://www.facebook.com/worldwidelymeprotest
You may wish to collect signatures and post them to the address shown below* You may download a printable copyfrom thisaddress: http://www.counsellingme.com/UKLymePetition.pdf You may not be able to sign the petition from the same IP address as someone else. This is in order to prevent spammers. If there are any problems, please write to * UK LYme Petition, c/o 27, Morven Court, Aberdeen, AB11 8TW or e mail the sponsor Denise Longman
The best doctors who know most about the clinical difficulties are wwwrewww.ilads.org
For the US and Canadian over view of the situation please visit places such as www.canlyme.org, www.lymenet.org There issupport and info at www.lymediseaseaction.org.uk and the UK's friendly yahoo group is EuroLyme at http://health.groups.yahoo.com/group/EuroLyme/ where over 2,300 members exchange help and info.
Updates
Reached 10,000 supporters
May 17, 2013
May 17, 2013
The path forward is exhausting but we are nearing ten thousand signatures. Please send this link to anyone you know so we can finally force the government to acknowledge the scale of this crisis.
April 19, 2012
One thousand people have put their names behind this. It is exhausting work to keep pushing when the progress feels slow but seeing this number reminds me why the fight continues.
Reached 1,000 supporters
April 17, 2012
May 29, 2010
Reaching this point has been an exhausting climb but seeing this level of momentum proves we are finally being taken seriously. I am tired of seeing so many people ignored by the current system and this progress keeps me moving forward.
Reached 100 supporters
May 24, 2010
859 Comments
lyme is carried by the tick which live on deer ,also sheep. My grandson picked up ticks in Richmond Park. He has been diagnosed with lyme. He is only 5 yrs old. Richmond park is packed with deer. there are no awareness signs/notices... there should be!
Several neighbours of mine in the New Forest have had Lyme but imagine what it would do to tourism here if the public we're made more aware of it! How many visitors go home having been bitten and have no idea they might have contracted Lyme Disease?
To help my son who due to Lymes is missing out on his children's lives and his wife. No positive help from the NHS. Lives in continuous pain and fatigue.Horrendous disease, a living nightmare destroying lives of the victims and their loved ones.
My daughter suffered very severely for years and was about to be pensioned off before going privately to a Danish/German enlightened Consultant. After 20 weeks of intensive intravenous treatment, she has her life back and is back at work ful time.
Ive had late lyme for many years after a test 2 years ago by Igenx- sent by Dr David Owen Cardiff. I havent had coinfections done though- not yet.
Life-threatening disease from a tiny tick-bite! My horse nearly died last year from priplasmosis froma tick-bite. I could die from a tick-bite this year...or next...the symptoms are so insideous!! All Doctors need to be aware!!
I too have been suffering still to be believed by doctors!
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We draw your attention to Lyme disease, or borreliosis, which is increasing in incidence dramatically across Europe and the USA.Lyme disease is a real and present danger for those working or recreating in woods, parklands or even their own back gardens. We ask that the government acts now to increase public awareness of this tick-borne infection, that better diagnostic tests are designed, that specialised treatment is developed to help the many thousands suffering from the chronic effects and that the disease be made notifiable. Every year tens of thousands of European and UK citizens contract Lyme disease and because of the difficulties with awareness and testing, many go undiagnosed and untreated. Those who receive late or inadequate treatment become partially or completely disabled, with a high cost to themselves and to society. In some cases the disease can be fatal. It is far better to tackle this problem before it gets worse; in some areas it has already reached epidemic proportions. Resources must therefore be devoted as soon as possible to improve diagnosis, treatment and public safety.
Specific demands of the petition
1: That Lyme borreliosis be made a notifiable disease, so that the true incidence becomes apparent.
2: That better methods are actively explored, to test for and diagnose both acute and chronic infections.
3: That doctors are trained in the treatment of borreliosis and other tick-borne diseases. Given the number of patients who may now be infected, we ask that special clinics are established where the diverse range of the effects of the disease can be acknowledged and treated.
4: That treatment is extended for as long as necessary, and to include the use of high dose, combination or long-term antibiotics, especially in those patients who have been ill for a long time. Even in those patients who appear to have recovered, a 5-year follow-up would be advisable to monitor the condition.
5: That medical schools and practising physicians be made aware of the research and latest knowledge in diagnosis and treatment of Lyme disease, as well as the other emerging infectious diseases carried by arthropods which may cause co-infections in patients with borreliosis.
6. That all government agencies for the Environment, Health, Sport and Tourism use their resources to make the general public in the UK aware of the potential risks from tick bites.
For background information to understand how we desperately need to get across the serious aspects of this disease, please see the web site at http://uklymepetition.atspace.com/
the web site for UK patients:www.lymediseaseuk.com
and the Facebook pages
https://www.facebook.com/pages/Ask-The-Department-Of-Health-Why/268238779905572
and
LymeDiseaseUKDiscussionGroup
https://www.facebook.com/groups/481294698590907/
Worldwide Lyme Protest
https://www.facebook.com/worldwidelymeprotest
You may wish to collect signatures and post them to the address shown below* You may download a printable copyfrom thisaddress: http://www.counsellingme.com/UKLymePetition.pdf You may not be able to sign the petition from the same IP address as someone else. This is in order to prevent spammers. If there are any problems, please write to * UK LYme Petition, c/o 27, Morven Court, Aberdeen, AB11 8TW or e mail the sponsor Denise Longman
The best doctors who know most about the clinical difficulties are wwwrewww.ilads.org
For the US and Canadian over view of the situation please visit places such as www.canlyme.org, www.lymenet.org There issupport and info at www.lymediseaseaction.org.uk and the UK's friendly yahoo group is EuroLyme at http://health.groups.yahoo.com/group/EuroLyme/ where over 2,300 members exchange help and info.
Updates
Reached 10,000 supporters
May 17, 2013
May 17, 2013
The path forward is exhausting but we are nearing ten thousand signatures. Please send this link to anyone you know so we can finally force the government to acknowledge the scale of this crisis.
April 19, 2012
One thousand people have put their names behind this. It is exhausting work to keep pushing when the progress feels slow but seeing this number reminds me why the fight continues.
Reached 1,000 supporters
April 17, 2012
May 29, 2010
Reaching this point has been an exhausting climb but seeing this level of momentum proves we are finally being taken seriously. I am tired of seeing so many people ignored by the current system and this progress keeps me moving forward.
Reached 100 supporters
May 24, 2010
859 Comments
Too many people are not being diagnosed with this as the tests currently used in the UK are not fit for purpose. Their health is being seriously damaged, their lives are being ruined.Their only option for diagnosis and treatment is to travel abroad.
lyme is carried by the tick which live on deer ,also sheep. My grandson picked up ticks in Richmond Park. He has been diagnosed with lyme. He is only 5 yrs old. Richmond park is packed with deer. there are no awareness signs/notices... there should be!
Several neighbours of mine in the New Forest have had Lyme but imagine what it would do to tourism here if the public we're made more aware of it! How many visitors go home having been bitten and have no idea they might have contracted Lyme Disease?
To help my son who due to Lymes is missing out on his children's lives and his wife. No positive help from the NHS. Lives in continuous pain and fatigue.Horrendous disease, a living nightmare destroying lives of the victims and their loved ones.
My daughter suffered very severely for years and was about to be pensioned off before going privately to a Danish/German enlightened Consultant. After 20 weeks of intensive intravenous treatment, she has her life back and is back at work ful time.
Ive had late lyme for many years after a test 2 years ago by Igenx- sent by Dr David Owen Cardiff. I havent had coinfections done though- not yet.
Life-threatening disease from a tiny tick-bite! My horse nearly died last year from priplasmosis froma tick-bite. I could die from a tick-bite this year...or next...the symptoms are so insideous!! All Doctors need to be aware!!
I too have been suffering still to be believed by doctors!
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Too many people are not being diagnosed with this as the tests currently used in the UK are not fit for purpose. Their health is being seriously damaged, their lives are being ruined.Their only option for diagnosis and treatment is to travel abroad.