PETITION TO SUPPORT AN NIH DOWN SYNDROME RESEARCH DATABASE & BIOBANK REGISTRY
I strongly support the creation of a formal Down syndrome contact registry, research database and biobank/tissue repository. I am pleased that there have been a number of substantive meetings between leading Down syndrome organizations and the NIH to assist with the preliminary planning of such registries. I encourage you to consider the recommendations that have been proposed by these organizations.
I appreciate the NIH's renewed interest in Down syndrome research and urge you fund these essential components to improve the lives of people with Down syndrome.