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we actually did it because the presidential proclamation is officially happening. i dont even have the words to describe how huge this is for all our families. thank you for staying with me through all of this.

February 7, 2004

Congenital Heart Defect Awareness Day

Congenital Heart Defect Awareness Day

🏆 Won — 4,805 supporters Verified

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Started by Anonymous 22 years, 8 months ago
To: President George W. Bush On February 14th, 2004, families and professionals across the country will join together to celebrate Congenital Heart Defect Awareness Day. This day is set aside each year to honor families of children and adults with congenital heart defects and disease (CHDs) and the professionals who work with them, and to cherish the memory of lives lost. Currently, the issuance of proclamations for Congenital Heart Defect Awareness Day is limited to local and state governments. While the participation of these officials is greatly appreciated, a Presidential Proclamation would make an unprecedented impact on raising awareness about CHDs. Raising national awareness about Congenital Heart Defects is important on many levels

Updates

Reached 1,000 supporters

January 7, 2004

Reached 100 supporters

January 7, 2004

6 Comments

S
Sarah Lawson
22 years ago Featured

My son was born with HLHS and we fight every single day. He deserves to have his story heard by the whole country. Please do this.

J
Jason Duncan
22 years ago Featured

DO IT! My daughter is currently in the hospital for her 3rd surgery. CHD awareness saves lives.

M
Mike Mehta
22 years ago Featured

it is about time people knew how common this actually is. so many kids living with heart defects and nobody ever talks about it.

B
Brian Ryan
22 years ago Featured

good cause. lets get this moving.

L
Linda Afolabi
22 years ago Featured

Lost my niece to a CHD 3 years ago. Still hurts every day. We need more recognition for these little fighters.

K
Karen Ellis
22 years ago Featured

The medical bills are insane and most people just dont understand what we go through. A proclamation would help so much.