Status: Closed — this petition is no longer accepting signatures.
Final supporters
Whereas colors yellow and blue is a global effort dedicated to promoting Schizencephaly awareness in countries around the world, and
Whereas Schizencephaly is one of the least common neurological conditions, estimated to affect 1 in 100 000 people worldwide and whereas one in ten persons will have at least one seizure during his or her lifetime, and
Whereas the public is often unable to recognize Schizencephaly or issues caused by common seizure types, or how to respond with appropriate first aid, and
Whereas YELLOW AND BLUE DAY will be celebrated on May 19th annually to increase understanding, reduce stigma and improve the quality of life for people with Schizencephaly throughout the country and globally.
Now, therefore, I do hereby proclaim May 19th, SCHIZENCEPHALY AWARENESS DAY, in an effort to raise awareness of this rare disorder in the United States of America or other country.
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Updates
May 16, 2012
Seeing the momentum behind this proclamation is both exhausting and deeply validating after so many quiet months. We are proving that even the rarest conditions deserve a place in the public conversation.
Reached 100 supporters
May 16, 2012
8 Comments
YES. Do it. People need to know!
never heard of this before, glad i read about it. learning something new today.
Rare conditions dont get enough attention. Hope this helps families feel less alone.
May 19th noted. Happy to help spread the word about this.
people are so ignorant about seizures. we need to teach them how to actually help instead of just staring. yellow and blue for the win.
best wishes
best wishes
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Status: Closed — this petition is no longer accepting signatures.
Final supporters
Whereas colors yellow and blue is a global effort dedicated to promoting Schizencephaly awareness in countries around the world, and
Whereas Schizencephaly is one of the least common neurological conditions, estimated to affect 1 in 100 000 people worldwide and whereas one in ten persons will have at least one seizure during his or her lifetime, and
Whereas the public is often unable to recognize Schizencephaly or issues caused by common seizure types, or how to respond with appropriate first aid, and
Whereas YELLOW AND BLUE DAY will be celebrated on May 19th annually to increase understanding, reduce stigma and improve the quality of life for people with Schizencephaly throughout the country and globally.
Now, therefore, I do hereby proclaim May 19th, SCHIZENCEPHALY AWARENESS DAY, in an effort to raise awareness of this rare disorder in the United States of America or other country.
Updates
May 16, 2012
Seeing the momentum behind this proclamation is both exhausting and deeply validating after so many quiet months. We are proving that even the rarest conditions deserve a place in the public conversation.
Reached 100 supporters
May 16, 2012
8 Comments
My nephew has this and people act like he is contagious. It is so hard finding anyone who even knows what it is. This is a great idea.
YES. Do it. People need to know!
never heard of this before, glad i read about it. learning something new today.
Rare conditions dont get enough attention. Hope this helps families feel less alone.
May 19th noted. Happy to help spread the word about this.
people are so ignorant about seizures. we need to teach them how to actually help instead of just staring. yellow and blue for the win.
best wishes
best wishes
Share this petition
Share this petition to help it reach more people.
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My nephew has this and people act like he is contagious. It is so hard finding anyone who even knows what it is. This is a great idea.