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Help Turn Chicago Blue for Huntington's Disease

Help Turn Chicago Blue for Huntington's Disease

1,129 signatures 371 to reach 1,500
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Started by IL Chapter HDSA 11 years, 8 months ago

Huntington’s Disease or HD is one of the most researched and studied neurological and hereditay diseases in the world. Caused by one mutated gene, over 1500 families in Illinois and over 30,000 people throughout the United States suffer with this always fatal disease. It is estimated that an additional 250,000 people are at risk for inheriting the mutated form of the gene. Most people have never heard of HD as it probably does not affect their family. We want to change that by making more people aware of and advocates for HD families throughout the United States. We have no Lou Gehrig to advocate for us (ALS or Lou Gehrig’s Disease), no Michael J. Fox to advocate for us (Parkinson’s Disease), no Glen Campbell to advocate for us (Alzheimer’s Disease) yet each of those neurological diseases are very similar to HD: they all affect a portion of the brain causing premature death. All of those diseases are well known. Yet the research discoveries in HD may in fact help to find a treatment for each of them. We hope you agree and will sign our petition to Turn Chicago Blue! Imagine seeing the “Big Four” with the tops of their buildings in royal blue. The John Hancock, the Willis Tower, Trump Tower, the Wrigley Building and the AON building are our targets during the month of May of 2015, declared by the U.S. Congress as Huntington’s Disease Awareness Month. We also would love to see Buckingham Fountain at the lakefront spraying shades of blue with their lighted displays. If not us, then who will advocate for the families that suffer physically, emotionally, and financially with this devastating disease? Please sign our petition!

Updates

April 7, 2015

We have reached one thousand signatures on this petition. I am currently drafting formal requests to the building management teams of the John Hancock and Willis Tower to discuss lighting requirements for May.

Reached 1,000 supporters

April 7, 2015

March 9, 2015

The administration offices at the Willis Tower and the AON Center have responded to our formal request for a meeting to discuss the blue lighting initiative. I am currently finalizing the presentation materials to demonstrate the potential impact of this citywide coordination.

Reached 100 supporters

November 12, 2014

November 10, 2014

We are approaching the one hundred signature mark which serves as the threshold for our formal request to building management offices. Reaching this milestone this week will allow us to present a verified list of community interest when we submit our lighting proposals.

368 Comments

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Gretchen Stokes
10 years ago Featured

For my dear childhood friend who battled this monster disease for years without a diagnosis. We need more awareness of HD so others won't go thru the same struggle of going from doctor to doctor for a diagnosis.

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Marian Felgenhauer
11 years ago Featured

This cruel disease, which offers no preventive measures you could take to avoid it, attacks with 50% chance of it if a parent carries the gene. A blue light on a Chicago bldg to make us all think of the HD victims is such a small request. I support the HD fund and hope Chicago real estate will too.

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Sondra Moylan
11 years ago Featured

Please help the patients and families who are affected by this horrendous disease. I am watching as it erodes my daughter's family as she tries to cope with her job, her young son, and a husband who needs additional help at home.

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Michael Marasco
11 years ago Featured

Seems like a reasonable request seeing as how for the WHOLE month of October I have to see pink everywhere, another worthy cause, yet the attention it garners is unbelievable, NFL, Music, Tv etc. So please light up a classy city, with a cool color, for a good cause, thanks :)

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Mary Kelly
11 years ago Featured

HD has been a huge part of my life. The Boothbys have lost our grandfather, father, and 8 out of 11 of us children. Loved them all, and so proud of how they all fought this disease. This is such a womderful way to bring awareness and to honor those who have suffered with Huntington' Disease. Love Chicago!

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Michelle Hanna
11 years ago Featured

Hello from Sydney, Australia. Please turn Chicago Blue to raise awareness for HD. My good friend Bridget has the gene and has made an Australian-New Zealand documentary about it - theinheritancedocumentary.com - we are all a part of a world-wide effort to raise awareness and help find a cure.

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Boston Rik
5 years ago

ATL BASE Take them off English medicine and use multivitamincare org herbal treatment,im referring to anybody suffering from this  Huntington’s Disease HD condition and they have assurance about these treatments.

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Boston Rik
5 years ago

It was not a good experience, seeing your father whose brilliance had no match, totally became a shadow of himself. His doctors said the disease has no cure, just medications for treatment which had a lot of side effects were administered to him. Early 2018, while on the internet, I bumped into a story in HD, and I read about a cure through herbs with interest.. I researched more to be sure it was not a hoax.  In my quest, I contacted multivitamincare org herbs mentioned in the testimony. I got their herbal medicine for my father.. It's been 3 years and he is perfectly okay and back to his laboratory work even at old age. For your loved ones with Huntington’s Disease HD, take them off English medicine and use multivitamincare org herbal treatment,im referring to anybody suffering from this  Huntington’s Disease HD condition and they have assurance about these treatments.

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