UK Lyme Petition

A serious disease with à serious lack of medical response, this needs to change urgently to allow those of us with Lyme to take control of our lives!

I have watched healthy, active people fade to poorly people unable to perform even basic tasks. This disease needs more recognition.

My best friend has finally just been diagnosed after several years of suffering. The lack of acknowledgement by the NHS and the current awareness of this debilitating disease has got to change!

I have lymes disease but im still mobile ' I m lucky .

Living in an area in which Ticks are an everyday hazard and where local Dr's do not automatically test for Lyme disease or the presence of Spirochetes leaves me very concerned.

My daughter was eventually diagnosed with Lyme after three and a half years.

I have Lyme disease and been ill for 4 years. I can no longer work and now hat I am 37 years old it looks like it will take my chances of ever having a family away. I knew I was bitten by something and even suggested Lyme to the doctors. They all ignored me. It took 4 years before a test luckily came back positive for me to be taken seriously but I had to push for the test. I was told I suffered a somatoform disorder and then labelled with ME. This illness is ruining not just our lives but our partners lives too. I have lost friends, family members, all my money, I have no pension, won't be able to have children and not to mention all the emotional issues and stress that comes with being ill knowing that if the doctors listened to you in the first place and treated appropriately, then you could be living a happy and successful life right now. Chronic Lyme disease does exist and it's about time doctors are clued up on it, better testing was done and appropriate treatment was given. Doctors need to be able to diagnose clinically and offer treatment asap. It is absolute torture at times living in a body that is full of bacteria eating you from the inside. Being ignored is not acceptable and quite frankly inhumane and sinful.

Lyme Disease needs to be taken and treated seriously by the UK Government, national health service Atos and benefits agency. Stop ignoring this awful disease and all who directly or indirectly suffer because of it

My 12 year old grandson has had Lyme for almost 2 years and was in a wheelchair for 6 weeks but even then no diagnosis was made. My daughter was told in the beginning that he definitely did not have Lyme as it was not a problem in Surrey. One doctor even suggested that he was avoiding school! The family finally found a doctor who diagnosed Lyme Disease. My grandson is still seriously ill and we are all very worried about his future. More must be done to help with this terrible disease.

This disease must be recognised & treated promptly by GP's also the public should be made more aware to prevent infection from ticks.

I have chronic Lyme disease and it has turned my world upside down in just 2 and a half years. Something needs to be done!!

Despite what NHS says 2weeks of antibiotics do not clear the symptoms. I still experience symptoms 4 years after confirmed diagnosis and treatment

my partner and sister both have Lyme disease setting needs to be done to save these life's , Too many people committing suicide because of this awful Disease we need help and we need it now please help!!

please support this awful disease.. We need help ! And we need to educate people That have no clue about this

my daughter went two years misdiagnosed and now has chronic Lyme, the powers that be need to start to take notice of how many people this is really affecting before its to late.

It is time the NHS brought their knowledge and treatment of this disease into the 21st Century!

This disease is making people very ill and more needs to be done!

My son has chronic Lyme which has been misdiagnosed for 14 years. More funding, recognition and education is needed to educate doctors and the public of the dangers of Lyme.

I have been active in the UK outdoors for over four decades. In that time I have witnessed a huge increase in the number of ticks. Two of my friends have been diagnosed with Lyme Disease and are experiencing serious repercussions to their quality of life. Much more needs to be done by our NHS to tackle this horrendous problem.

sdfsdf

seeing my friend struggle with this disease and no dr knowing how to treat her in this day and age is shocking

I waa diagnosed 2 years ago and i have recently relapsed but now fighting for more treatment. ...this needs to be recognised

My sister is effected. I'm shocked there is no understanding, treatment or even acknowledgement of this awful disease by doctors. Treatmemt and even cures available now for cancer and leukemia but nothing for this horrendous disease which effects and destroys ones body and in turn life. So sad. So frustrating. Someone needs to stand up and do something!

I've just had a positive blood test and I'm frankly daunted by the likelihood I won't get adequate treatment on the NHS. I have already used all my savings trying to treat autoimmune diseases I know now were caused by Lyme.

First hand experience of Lymes disease. Needs more recognition!

It is absolute disgrace that patients suffering the devastating effects of Lyme disease are met with such a lack of care and treatment by the NHS (yes, the 'wonderful' NHS). Not only that, are made to feel that they must be mentally ill as the (inadequate and inappropriate) blood tests fail to reveal current Lyme when it has moved into the post-Lyme co-infection phase. Young people's lives have been devastated by this illness and continue to be so. Even the local VET surgery has a large poster warning about the danger to DOGS, but NOTHING for humans (despite the fact that in Sweden, for example, children are all vaccinated against Lyme). It's a disgrace.

It is surprising that this debilitating disease has still not attracted enough attention and research and that as a result there is still no satisfactory treatment available.

Do something before it's a major crisis

This disease is a killer if left untreated. We should alert all GPS

A friend of mine was not diagnosed properly and early by his GP therefore the disease spread and by the time it was finally diagnosed it was too late! We need to stop denying we have a huge problem in the U.K.! So we need: recognition that there is a problem, acknowledgement and awareness that Lyme disease exists and it is affecting the population, education to prevent new cases and to inform the medical collective and the public (publicity campaigns), commitment through funding of serious research and adequate treatment of Lyme disease sufferers starting in the UK´s NHS in collaboration with Universities & Research Institutions to find solutions and to stop the spread of this disease. We also need to know and ask for advice to other collectives worldwide because I know that in the U.S.A. local doctors (i.e.: in Kansas) are aware and detect cases of Lyme disease early enough and apply an adequate early treatment that prevents the disease from developing and spreading throughout the body.

This disease which is ruining people's lives and which has been ignored for years, must now be taken seriously by Governments worldwide.

Please GMC wake up to this epidemic!

For the seriousness of this disease it needs to be looked at more seriously.. Ask the Canadians they are advanced in their research

This disease should be supported by the NHS, governments are expending millions in wars and munitions why not to used those millions to support all kind of diseases and vulnerable people, planting trees and education? The planet would be a happier place.

Excellent petition that is applicable for every country. Victims and their families need help NOW.

Lyme Disease needs investment in research, training for medical staff and education NOW!

I know three families who are fighting to get proper treatment here and in the USA.

Tracing the origins and finding a cure for this horrible disease may well turn out to be the most urgent Medical need of this century. We should especially concentrate on confirming beyond doubt that it all in fact DID start with the biological weapons researches carried out on Plum Island - and also verification of the claim that it might be the cause of MS, ME, Parkinsons, Arthritis, Syphillis, `Heart Failure - AND Alzheimers, (which all sound a bit far-fetched...)

An urgent response to this awful disease is vital.

It is a scandal that so little is being done to recognize and treat this disease.

Lyme disease has destroyed the lives of so many in the UK including that of a young friend of mine. When sufferers reach the end of the road with the NHS there is absolutely nothing on offer to them, thus all hope is gone. Unless, of course, they can afford to go to Germany for private treatment. Lyme disease is a ticking time bomb. No government can afford to ignore the increasing number of sufferers. Money has to be found to find research and effective treatment.

Lyme disease has destroyed the lives of so many in the UK including that of a young friend of mine. When sufferers reach the end of the road with the NHS there is absolutely nothing on offer to them, thus all hope is gone. Unless, of course, they can afford to go to Germany for private treatment. Lyme disease is a ticking time bomb. No government can afford to ignore the increasing number of sufferers. Money has to be found to find research and effective treatment.

I have suspected Lyme disease after 15 years of being extremely poorly, on a downward spiral. Due to lack of awareness, poor diagnosis techniques and complete disregard of serious symptoms, I now have severe neurological problems which I can only hope are not permanent.

I think many people who are diagnosed with me, fibromyalgia and arthritis and many more incurable diseases may have lyme disease. It is about time doctors learnt about this debilitating disease.. also money needs to be made available for researching a cure (not a big pharma 'cure').the present antibiotic idea is useless...

Its outrageous that UK GPs and even specialists - as we have found- barely know what Lymmes disease is, and if they do, do their best to deny that it could be here in UK!!!! In other Erupoean countries Lymmes is treated seriously and it should also be here! Wake up UK doctors - this is a major issue with HUGE and lifelongconsequences if not treated imediately!

Having heard about the plight of a friend's son who has been so cruelly afflicted with this horrible disease, I am delighted to be given the opportunity to support this petition.

having suffered for nearly 20 years, I am losing hope that anything will change. There seems to be so much resistance from the British Medical powers that be, to look at the peer reviewed science. Persister Cells exist, period.

My friend is 19 and has Lyme disease. They say he has 2-3 years to live. At this rate, he will not be able to see himself married, having children, or any of the world in its entirety. I refuse to let him die knowing that there is the slightest thing I can do. UK needs to wake up and realise that this disease is a problem.

It's a disgrace that we have so little to offer (confirmed) lyme disease sufferers in this country. My adult son has been struck down by this debilitating parasitic illness and there is no treatment available after the initial four weeks. One has to search the world for help.

Good luck! Shame they put their heads in the sand!!

I hope change comes!

Action on lime disease needed now!!

NHS Lyme therapy is using insensitive testing and inadequate intervention. This is leaving many undiagnosed and suffering debilitating chronic Lyme. Something needs to be done. This petition asks for the basic steps to be instituted to deliver good clinical practise in line with what medical research into this condition is telling us.

Please help us, we need to and have the right to be treated.

I contracted Lymes disease while on holiday in Maine . Uk doctors refused to recognise it as such , luckily as a pharmacist I was able to insist on immediate antibiotic treatment . When I was told by a consultant when in isolation in hospital that I should stop them , I ignored him and continued so probably saved my own life .

I was first infected in 1990, but went undiagnosed until 1997. I went to Mayo Clinic, but they are not Lyme literate, and only diagnosed me with many other diseases which were merely symptoms of the underlying Lymes. I went to many infectious disease specialists and other specialized doctors who also failed to diagnose the Lymes. Doctors need to be trained and educated to save lives and finances. The area in which we live is already at crisis level. All of my family has been diagnosed with Lymes disease, but have had great difficulty in getting treated. Please help.

Educating GPs on recognising, diagnosing, testing for and treating Lyme is desperately needed in the UK. The current shortage of lyme literature medical professionals is shameful.

Hello, brillant list of demands i agree,And i am total;y fed up with nhs.I gave up after 4 years once my overlooked 4 posives were found,By chance by a neurologist diggning in my medical records. i was refered back to same blind infectious disease idiot,Who wrote me with wrong result..4 years of being infected until this idiot gave me 1 month doxicilan,He retested me and still sent me packing with posive bloods. And told my GPS THERE IS NO WAY OF KNOWING IF LYMES OR POST CAUSED MY ILLNESS AS THERE IS NO DIAGNOSTIC TEST./ post lymes is when youve received enough treatment then your bloods are negative, I still showed positive. I am now using a wheelchair suffer muscle weakness arms legs. overwhelming brain zombied up slurred drunken exhaustion.Has me in bed more hours in day than up.AQll usual chronic muscle joint pain,sensory pasaia. all list of other syptoms. Iv just tested posive for Anaplasma, Im ppp off as its year 9.why do us lymes have to look into all our tests oyrselfs. The nhs got fedup up until 2010 4 years of me attending with lists wanting tests. You are meant to go away and accept being unwell never mind your getting worse. il be shipping bloods to germany this week to run more coinfections.Problem is if i find more i can not afford to search for private treatment.iv already visited a ILADS member in england,i libe scotland,he promised me longterm antibiotcs in his emails.He new i can not repeadly see him i can not afford to.He could have PDF hIS CONTRACT THAT SAID YOU HAVE TO VISIT EVERY MONTH. My husband and type 1 diabetice son,Traveled by car with a make shift bed in back of adapted vehicle So i could lir flat out.due to pain.We spilt trip up over 3 days there 2 back total 5 night in hotel fuel costs ect meals in hotel... Hoerrendous trip of my in out toilets enroute that do not have raised toilet seats His bill for seeing him was £300 he wanted me in there 6 hours a further 300.A 3 hour session was to much i was close to pasing out with exhaust

My Son has finally been diagnosed with Lymes disease which he contracted in Perth Western Australia. We paid for the tests privately because this disease is not recognised by the Australian Authorities He has been on a cocktail of antiobiotics for 9 months now but with no significant improvement.. He was a a fit young man 5years ago and is now very disabled and in constant pain this disease is impacting every part of his life

After myself having Lyme Disease for several years, its clear something needs to be done to education doctors in the diagnosis and early treatment of the disease.

We also have startef a Scottish version as health is devolved. It would be good to join forces. Please email back. Best wishea Tim

Why is it ok to refuse me such life changing treatment? Would you accept this for you or your loved ones?

I have been increasingly ill since being bitten by a tick over a year ago and have been ignored by the useless nhs.

Support

Supportall the way

Agree with this. Good luck

my wife has suffered from lyme disease for many years no health professional in the uk recognised or believed the symptoms

I think i have lymes and no one will help me

for improved testing and treatments

Educate all GPs and neurologists! More training, more medical awareness and patient care. More and more people are getting sicker and sicker and misunderstood.

People need reliable tests and prompt treatment and neither is happening.

Infected for 6 years now. Totally inadequate response from Health Service, both in treatment and knowledge. We need a specialised unit with a full understanding of the various aspects of this disease, and the capability to deliver proper long term treatment.

Please please take this more seriously and increase awareness among Gp's getting people diagnosed correctly and quickly, enabling successful early treatment

I was tested for Lyme disease. . Negative. But suffering from Peripheral Neuropathy.

I have recently spent a large amount of money on private tests when the NHS actively discourages you saying you'd be very ill with Lyme and leaves you with years of being off work ill. I do have some positive tests to go off and I'm at the early stages of getting advice and treatment.

lyme is not understaood but the sufferer understand s it well so please listen when we tell you how ill we are

I have been feeling exceptionally ill for several years and I have spent thousands of pounds on private doctors, private tests, supplements etc. I can hardly function each and every day. Every day is a living hell with the most horrendous symptoms. I am now disabled and on disability. I lost my career three years ago because I was just too unwell to continue. I am on benefits and finances are difficult. I found out only this year that I have lyme by comparing my so called 'negative' lyme tests results to others and referring to a USA Lyme doctor. I have all the clinical symptoms of late stage neurological lyme disease and recovery if at all possible will take years if I am very very lucky. The disease has caused other diseases and horrendous health and mobility problems. It has ruined my life and yet if testing was more comprehensive and had been carried out when I first presented my symptoms, then I would still be healthy, at work and enjoying my life. I am now housebound, lonely and people do not understand this disease, especially the NHS. I know of people who have said that their cured cancer was a 'walk in the park' compared to lyme disease. Lyme is a slow, painful killer and yet unrecognised. Awareness should be given to GP's so that clinical diagnosis can be made in addition to more extensive testing. My life is now like hell on earth (severe headaches, dizziness, weight loss, whole body bone, joint and muscle pain, stomach issues, depression, anxiety, panic, numbness in the hands, feet, well all over. I am isolated and no one, absolutely no one I know, especially the doctors and consultants, understands. I was sent to see a psychiatrist and I know of many lyme suffers who have been sent to see psychiatrists. Being sent to see a psychiatrist for these symptoms is crazy in itself. Lyme is a dustbin disease and I was palmed off with fibromyalgia (which I do have also), chronic fatigue (which I do have also) but these symptoms come from lyme.

My son has been ill for 2 years with our doctor putting it down to IBS or ME but we persevered and through a private nutritionist had the blood tests come back positive for Lymes. So annoyed my son has lost 2 years of his life and had been housebound because misdiagnosed.

I am a Nutritional Therapist & I am seeing more & more patients with Lyme Disease & most GPs here in the UK say that it doesn't even exist! The one test that is offered on the NHS is totally inadequate to diagnose Lyme, when 4 tests are needed that are only available privately, & yet GPs discount the private tests! GPs will not even test unless a possible Lyme patient unless the pateint has a bullseye rash, & yet Lyme can be present WITHOUT the bullseye rash! Even if Lyme is diagnosed then the NHS does not offer suitable treatment & so many patients can't afford to have Lyme treated privately, it is absolutely appalling

WHY! This is a bacteria not a game! Would you ignore Malaria, MRSA, HIV, Ebola, Meningitis, Syphilis....NO!!! So where is your duty of care to all those suffering from LYMES DISEASE? Time for change to enhance the future and put the past to shame.

My own experience was proof that there is a lack of education among GPs...and diagnostic tests (Bartonella testing ceased in July)

I've had a formal diagnosis since 2014 but my GP refuses to accept my symptoms are Lymes related and sure they're RA. So I was recently seen by rheumatologist who is sure it's Lymes. I'm now waiting to be seen by the infectious diseases team. GP's are very uneducated in Lymes and more has to be done. So good luck!

I have had Lyme since 2008 tick bite Scotland. Saw Dr 5 days after bite. Refused me treatment and wanted blood test. Eventually 2 was doxycycline. 2 months later full blown Nueroberellios, paralysis meningitis. Saw Dr D Newcastle said 3+ years and I was seriously ill. He retired after 2 yrs and unfortuneatley I was reinfected with 2nd tick bite. See Dr in Beverley. I retired in 2009 from career as registered Dental Nurse withNHS!!!! Sold my house to payfor treatment. Ended up homeless in temporary accommodation with people just out of jail threatening to kill me. Lost my health, work, savings, nearly died 3times. In hospital numerous times now told my obs fine but so weak I am collapsing in front of them and told to see a psychologist. I said if you had an axe in your head for 2weeks and was told it was not there how would you feel!!! Drives you nuts. Aaaaargh. I am now in Sheltered Amenity Housing with pull cords. Riddled with damp....black spores everywhere, can't stop coughing as have severe asthma, throwing up, itchy skin asthma wouldn't put a dog in it and left basically to rot and die. Sheltered support worker a bully. Gone to environmental Health and fire department as no smoke detectors in place and slugs slimming up black walls in toilet. My son and daughter have gone through this with me but my dementia cognitive problems rages etc difficult for them to cope with. Extreme fatigue muscle weakness etc I can hardly walk or function most days also doubly incontenant!!!!! My daughter is very concerned for me and she is having my first Grandchild December a little girl I have seen in scans. We both know for now my dream of helping and caring for this Grandchild will not happen as I am too ill still have para lady's some times have to phone her to talk me home as I can't remember how to. Aaaargh I want my life back. Asked Dr to refer me to Raigmore Inverness for antibiotic drip she was screaming and shouting at me to get out of her surgery.... More abuse. Plan fr

Unbelievable NHS inaction

l lost my hearing in one ear and suffer with tinnitus.Fussy brain@ lots more.Had 2 bad bites one lasted 1 year .given antibiotics.Dint test positive 4 lymes.docs not interested.I still very ill.

We need a more accurate test, such as the one used at IGeneX, Inc.

My son made me aware of Lyme disease as he does a lot of outdoor stuff, camping climbing and walking in the Lake District & Scotland. He suffered flu like symptoms for 2 years, joint pain, sleep disorder and ME type effects. He is convinced he suffered undiagnosed Lyme disease and is still having problems after 8 years

I am yet another person diagnosed with Lyme with no help from the NHS.

HELP

I have been bitten often, over may years and even had to dig them out of my arm days later. I have the long term symptoms but my GP denies that I could have the disease. Why is this attitude allowed in the NHS?

I have a friend that has been suffering for 3 years with Lymes disease without any help from the NHS!!!

Got Lyme's so signed happily :) Suffering daily :(

My daughter has just been diagnosed with Lyme after suffering with ME for 5 years. By dream is to see everyone with ME to be tested properly.

I really hope this and the change.org petitions are successful. I have suffered the lasting damage of misdiagnosed LD for 10 years and had so many doctors scoff at whether there is any connection to LD simply I believe from what they have been taught- if anything - and that they have no idea just how bad this disease is.

I have lymes and cannot get the correct treatment via the Nhs. A three week course is not long enough, all lymeys know this. Therefore I'm pretty much doomed.

My son lost 6 years of his life in bed with Lyme Disease. The NHS wouldn't help or acknowledge his illness because he had a negative test result although we had taken him to them to remove a tick from his body months earlier. We were unaware of Lyme Disease & the doctor whom removed the tick didn't warn us of it. He become very ill with flu like symptoms at the beginning of his illness which started 2 months after being bitten. He was continuously diagnosed with ME by different doctors/hospitals. We eventually found out about Lyme Disease on line four years into his illness & had him tested in labs in USA & Germany privately. He tested positive in all 3. NHS still wouldn't accept or treat him as their test & re-test still showed a negative result. We had no option than to search for a private doctor whom understood the disease & he prescribed long term antibiotics until all symptoms had ceased which took two years. He has now fully recovered. We just couldn't believe how we were treated throughout this dreadful ordeal by the NHS & how it cost us several thousand pounds to cure him. The NHS urgently need to train all doctors to understand this awful illness & take it seriously. They need clinics with specialist doctors, and most important a reliable test in place of the current test, in the meantime treat all patients like my son with a history of a tick bite & showing symptoms.

I contracted Lyme disease in Australia and we have here the same problems with testing. Only a few doctors know about the disease and when they get informed from a patient, they won't act because of their ignorance and false pride. They wouldn't even ask for advice by other doctors. It is also well known that the Australian Government doesn't recognize the Lyme disease as present danger in the country although alone in Western Australia, more than 5,000 persons already contracted the Lyme disease. If it would at least prevent in pharmacies and by doctors how to behave before and after going for a walk in a Park (like they do Germany), families would know how to protect themselves and could act faster in the case of a tick bite. The other thing is that to get a vaccination against TBE is very costly (because coming from overseas, especially from Germany); one needs at the beginning two shots which costs per shot AU$240 which means AU$480/person. This vaccination protects you only for two years! Families can't afford those expenses. If the product would have been produced in Australia and in mass, it wouldn't be so expensive and a whole population could at least be protected against TBE. Doctors should do more research on Internet to know more about this disease, listen to their patients and look for information about companies which are trying to develop a medicine. Too many people in the world are now too sick to be ignored. They become social cases which is an enormous expense for all government, so please, ACT!

This really needs to be addressed. So many people are relegated to the scrapheap of the chronically disabled because of the lack of treatment and/or correct protocols.

Lyme is real and it is killing people...

help us get better..open your eyes

It's a serious condition ,that needs attention .

My daughter has been misdiagnosed for five years, missed uni ,lost friends. Been in constant pain and fatigue.

Totally agree...

I've signed this petition To help a friend who is very ill with Lymes Started 18 months ago Nhs do not except results from Germany So no medical given She is still suffering Told she was depressed And imagined her symptoms

Doctors need more training in tick borne diseases!

Family have had this. They were aware and got quick diagnosis but most people are unaware.

Thus far, the UK authorities have acted in gross negligence by continuing to deny the issue of Lyme Borreliosis, causing extreme suffering to patients in the UK. This should cease immediately.

This is a basic human rights issue. Too many are being left terribly sick and with no appropriate care. There is no excuse.

By becoming aware of Lyme disease we will be able to stop the Lyme disease and stop disability . Many people are ignorant of ticks , by educating public we are making nation much healthier.

God bless the sick people

It is a terrible disease and persons suffering need help.

I have been ill and UNTREATED for over 18 years. It has ruined my life and that of my family.

Hubby has lyme. Sick since 1999. So hard to find drs who can help.

21 years with Lyme and the NHS PHE should be ashamed

My BABY got Lyme at 10 months old. The diagnosis was near-impossible to get, the treatment was vague and to this day I have no idea if he is cured or not. He is 8 now and not well a lot of the time. Dont let this happen to another child!

Lyme disease is a debilitating, life threatening disease which is hard to diagnose and treat. Tests are unreliable, doctors are unaware of symptoms, guidelines are inadequate and suffers how to deal with the consequences which most often results in incapacitating, painful chronic illnesses. Many 'victims' are lyme disease are diagnosed with CFS, ME, Fibromyalgia, Depression and treated incorrectly leaving the disease to progress to most likely fatal states. Awareness has only just come to light but diagnosis and treatment needs to dramatically change and be seen as high priority. Chronic, late stage lyme is a living hell.........imagine hell, well that's lyme and that's no understatement.

I had bullseye rash in 97 and went undiagnosed. Ill health ever since.

Fight!

Doctors need to start thinking outside their medical training box this disease is real!

I'm supporting Borreliosis patients in UK because they, as we in Australia, suffer on many levels. We are denied recognition and adequate treatment and left to lead a hideous existence.

Where's the public enquiry into this government cover up?

This disease is as serious as Ebola to the sufferers!

I also fight many years with lyme disease.

Please can we have accurate blood testing for detection of this disease and adequate treatment from nhs for eradication of lyme disease.

I got Lyme in 1992 and I got several times the wrong diagnosis until 2007 after a meningitis that nearly killed me. After this several antibiotic tratments. It's better since 2013.

I got Lyme in 1992 and I got several times the wrong diagnosis until 2007 after a meningitis that nearly killed me. After this several antibiotic tratments. It's better since 2013.

This is a WORLDWIDE EPIDEMIC and lives need to saved from future tick bites and ongoing treatment offered to those already affected

This is far more widespread than has been recognised. I know too many people who were given late diagnosis. It must be recognised & treated more quickly.

If I knew then what I have learned since I became ill and tested positive for Lyme disease, I would not be debilitated with this infection now. It needs to be treated immediately with enough antibiotic, for long enough to eradicate the infection and stop it from spreading and entrenching.

This is an urgent and critical need: to draw attention to Lyme, honor science evidence based medicine and help patients recover.

Such an important cause!

Please can the NHS tackle the problem of Lyme, and not simply turn a blind eye.

Time to heal the sick not kill them. We need caring professionals to help us. Not many out there it seems??

Time to change!

Borreliose unterzeichnung

Please Take Lyme Desease seriuosly.

Signed in support of our Australian family

Neuroborreliose

Please support and help those who suffer!

I have Lyme disease and have been misdiagnosed for over 12 months , my symptoms are severe now , with no support from my doctor .

Better tests, treatment and diagnosis

Better tests, treatment and diagnosis

As the mother of a daughter with this dreadful disease I welcome the petition.I hope and pray it makes a difference and saves others from going through what she has experienced.

I had to pay for private testing and subsequent treatment for Lyme in Germany as the UK test shows that I don't have Lyme. Disgraceful

Very important that this is taken seriously and antibiotics given as a matter of course following a bite

We need more doctors learning about Lyme disease & we need a vacine!

hopefully things will change soon in terms of treating and diagnosing lyme disease. There are many people out there who needs more help and support in the battle with this disease in very different ways, medically, finacially and emotionally

Lyme disease must be better diagnosed with better test and treatments other than antibiotics be researched

Doctors need to take on board the fact that one course of antibiotics does NOT mean all the Lyme bacteria have been killed.

This disease is killing me and tearing apart my family and I can't get any help! I AM NOT THE ONLY ONE!!

I am suffering so much since youth, This is not a life but living hell.

My test came back negative as many do with the nhs teat was bitten and been suffering for 5 months had chest infection for the last 6 weeks and had no treatment what so ever doc just says it's a virus total rubbishy

I have been clinically diagnosed, my Lyme disease Test was negative! But I'm sure I'm not alone. Hope we can get better testing in uk

I have had Lyme for 14 years and nobody believes you I have researched it since 2008 when I had a mini stroke became electro sensitive and got Chronic Fatigue over the last 7 years I have become so ill I am now disabled and my walking is getting worse I need a GP who will support me and prescribe antibiotics as when I had a 3 week course I got better but you need a longer time on them for a cure

It is time to do something about the awareness of lyme.. It is not something to undermine, it can easily be forgotten.. There should also be more research to it, what do we actually know now? ... Exactly that is what I mean.

NHS attitude to Lyme is a disgrace.

I have a loved one with suspected Lyme but NHS tests are insensitive and miss 50% of cases. Serious research needs to be funded so we are not forced to choose between orthodoxy and fringe medicine.

My GP will not test me, insists Lyme only lasts 2-3 weeks and it is very rare in the UK. I have been diagnosed with Fibromyagia and Arthritis and several other health problems after many visits to different doctors as well as being treated like a hypochondriac, if he would only see that these complaints could be caused by Lyme Disease I might just have time to get well before it's too late. It's rare in the UK because doctors don't know about it. Why aren't they being bombarded with information?

This is really urgent

I'm in limbo land at the minute. My GP is not listening to me & my bizarre symptoms which have steadily worsened over 2 years. She wants to put me on anti-depressants! I'm now forced to go privately & see a neurologist too tested for MS, or what I suspect Late stage Lymes. I hope to get to the bottom of this debilitating, life changing nightmare eventually. The Government & the NHS need to start listening to us- Please do the correct testing. Look more closely at people diagnosed with CFS, ME, MS, Depression etc, Some may be misdiagnosed & enduring needless suffering. I really hope this petition is a success. Thank you Rachel

This devastating illness is very misunderstood and misdiagnosed. The petition is vital to help change the world wide ignorance of the disease and associated conditions. It has savaged a whole family of a close friend. Please help this criminal neglect to STOP.

We have to find a way to find a cure for Lyme.

Please take action on this

I've been living with lymes desease for 6 years now and it's not been fun and there needs to be more done to help us get well again and get better tested.

Please improve lyme disease test kits with better senitivity and specificity (ELIZA and WesternBlot are to bad to screen an active late lyme disease illness). Please improve or found therapy options for late disease illness (the currenty situation is insupportable).

http://onlyme-aktion.org/ http://www.borreliose-nachrichten.de/ http://www.borreliose-verschwiegene-epidemie.de/hier-geht-s-zum-alten-blog/

I support all of the points raised. I would also like to see children being educated about ticks. Everybody should know how to safely remove a tick!

20 year old Lyme disease carrier,

Recently diagnosed with chronic lyme disease

Lyme Disease is real and people are unnecessarily suffering, ignored or misdiagnosed. Please take us seriously -we want our lives back!

Change needs to come soon

New & better blòod tests needed urgently... Clinical diagnosis accepted. Treatment started immediately & for much longer until symptoms subside. If symptoms re-appear then re start treatment to avoid long term disability. Set up lyme disease specialist clinics where patients get the care & attention they have been denied for so long.

HELP

So many people are desperate for help as they have been ill for many years. Lives ruined

People are being left to rot, this is at best medical negligence, at worst murder. It is time that Accurate and Accredited tests were made available on the NHS, for both Borrelia and all of the co-infections, it is time the medical profession was properly educated on the signs/symptoms. It is time proper treatment is offered to victims. It is time that GP's be allowed to treat their patients, it is time that nice guidelines were in place (not in 2018). It is time A&E, Medics, Schools, Children and Adults were educated about tick removal. It is time proper stats be collated to track sufferers, both in terms of infection method and recovery (ie; symptoms returning years after infection treated). It is time up to date research be accepted, ie transmission thru mosquito, invitro, STD, fleas, bed bugs etc. It is time the Government campaigned to highlight the dangers. Festival Organisers and Owners of Camping sites, should alert to the dangers, signs on public footpaths etc. It is time those receiving a diagnosis of ME, MS, Fibromyalgia, ALS, Parkinsons, Dementia etc be tested to rule out Lyme Disease.

I was bitten by a tick last spring and it took over 4 mths to get any antibiotics from my gp. Despite having bullseye rash.

My sister has chronic lyme and has been misdiagnosed for 12 years ! Nobody should have to go through this hell and have to travel abroad to be treated

i have lyme it has taken me years to be tested i had to go and have a private blood test in germany

After seeing the HPE warning about the danger of/and the necessity of treatment for Babesiosis, I am mystified that the human population have not been told about the same danger to themselves. After 20 yrs of suffering Lyme and associated diseases, including Baberiosis, I am still waiting treatment from the NHS. This is despite a NHS positive test in 1996. Perhaps I need to see a Vet?

This disease needs recognition NOW.

My grandaughter is suffering with this terrible disease and the nhs is doing nothing to support her. How can she be expected to pay for her drugs when she cannot work

More awareness in the UK. Better training for doctors.

Suspected Lyme since September 2015. Bitten in Sussex/Dorset. No diagnosis or treatment yet.

Lyme needs to be more though about by the heads of the NHS....

This system needs to change now. It is proven in other countries so why not in the UK?

Had Lyme disease in 2010 and still suffering relapses - GPs need to be better trained and the UK should be doing more to publicise dangers of tick bites.

This disease is horrible and needs to be recognised as such and given attention by health services.

May have already signed this; but that's what having a "Lyme Brain" does to and for you.

Need action now

Diagnosed 6 years ago and still suffering relapses.

It's time the establishment woke up to pandemic!!

After being bitten by a tick only yesterday I am well aware of the devastation this disease can cause

Horrendous disease. Wake up NHS.

More training please for GPs to recognise the symptoms of this vile disease.

More awareness and better treatment so I don't have to see my sister suffer and lose her life.

UK Lyme sufferers need better tests , treatment and recognition that LYME and CHRONIC LYME exists , WAKE up NHS !

MAKE LYME DISEASE KNOW TO ALL MEDICAL STAFF

Essential: improved medical education of the existence of Lyme Disease & it's complexity; recognition & acceptance by all health bodies of Lyme Disease worldwide; improved testing & treatments; & respect not dismissal for patients presenting with associated symptoms but lacking positive test results.!

We need to stand united and strong the British public need to pull together where I'm from in England it has become an epidermic I know so many people that are ill and cannot get treated and as for the government they already know that lines is here it's one big cover-up and the people of Britain need to uncover it stands Strong Britain and fight

Our NHS funds the US pharmaceutical companies who want long term loyal customers. They are not looking for quick cures, but medication which keeps customers coming back for as long as possible. Long term chronic Lyme sufferer, lied to by NHS

I've just had a positive Lyme tests and have no idea what to do or expect

More people need to be tested for Lyme disease, with a more adequate NHS test.

I find this very disturbing, and obviously needs more investigation and public awareness of symptoms in surgeries.

Our 12 year old daughter contracted Lyme Disease just over a year ago. It was only after I saw the Lyme Disease Action people on television and recognised the bulls eye rash she had on her arm that we were able to point the doctors in the right direction. Even then it has been an up hill battle to get them to accept Lyme.

My daughter has a diagnosis of Lyme Disease but because it was not an NHS diagnosis her GP is refusing to prescribe any drugs for her as he says that she has not got LYME! She is getting treatment from America - the cost of this is horrendous, The NHS response is just awful.

The current treatment of Lyme Disease in the UK is deplorable. My daughter is a sufferer and it has had a devastating effect on her life. The government in the Uk needs to wake up and get this sorted.

My friends daughter has Lyme disease and it is very upsetting.

Action is needed now.

We met Ellie and her Mum in.Bath today. It was pouring with rain but they were still out there getting the message across so that others don't have to suffer as long as Ellie did before they get a diagnosis. Thank you both for your persistence and hard work.

stuck with lyme disesase since autumn 2009 went chronic in spring 2010 after numerpus bitings over many countryside visits, life became a hell!

I have had Lyme disease now for five years without more help I fear for my future

Add you support now please

Yesterday, while visiting Bath, I met a mum and her daughter who were raising awareness about Lyme disease. I was very well informed and wish them and the awareness campaign success for better testing/treatment and support.

My son contracted Lyme Disease from a sheep tick in Denmark, and was fortunate to survive the meningitis form only because of prompt and expert treatment by hospitals in Jutland.

After 17 years of my life destroyed by lyme disease it's about time that myself and other victims get access to adequate testing and treatment. Lyme kills!

Tick bite MI + 6 stents. TIA x 4. Now cerebral/peripheral neuropathy. Aural/optic nerve atrophy. 18 months. Retired SRN. NOT believed. What next. Only death and still without a diagnosis!

Please help

My partner has had his life forever changed by this debilitating, crippling and degenerative disease.

Our 15 year old son has a diagnosis of Lyme disease from a specialist German clinic, including blood tests showing co-infections and chronic fatigue viruses. This is on top of my having flagged the symptoms of Lyme disease (I have it too) for over a year in writing to the medical profession. The NHS are currently saying there is nothing wrong with him and on top of that trying to block treatment we could get for him abroad.

I have Chronic Lyme Disease. It is the most debilitating & painful illness. More needs to be done for proper testing, diagnosis & research into treatment.

Please change

Not sure it is lyme disease I have but I am acutely aware of the very poor awareness and testing methods in the UK. May go to a German lab for tests but will I get treatment within UK NHS if positive?

Action is required as this is hidden problem that is growing. Like Lyme Disease itself, it is not something that can be left in the hope it works out

'A plague of ignorance regarding the ignorance of a plague' Scott Taylor

In my experience, there are strongly opinionated consultants in key positions inside the NHS that prevent an open-minded approach to the problem of Lyme disease. Whether for self-interest or simply myopic, they totally rely on tests for the diagnosis and claim that the infection is easily curable. In this way, they stop any progress, and a tiny microbe without a brain is winning the battle.

Yes I support this petition.

Diagnosis in this country is impossible. There is no Lyme specialist. How ridiculous is that? What are we supposed to do?

This is a devastating disease which devastates lives. Research and services are needed urgently.

Have suffered with lyme disease for 7 years,now have dibilatating arthritis.Live in East coast of Scotland.NHS just as ignorant here.

People need to be aware

19 yrs. with Chronic Lyme & Co-Infections.

10 years and still fighting

Tick-borne diseases need to be taken seriously. ILADS is an important organization for physicians and healthcare providers to obtain up to date information. I am being treated for Lyme and Babesia and am slowly getting better, after being on meds for 1.5 years. Accurate knowledge and informed doctors and patients are key. Don't give up !

Fighting Lyme since 1992. But I won't give up!

The costs to the individual and to the country and the economy are huge, so action has to be taken now.

I have Lyme disease, it's a nightmare

People need help with this awful disease Please take notice

It's a living hell.

My ex wife was diagnosed to have Lyme disease ... and this may have been the cause of her paranoia and delusions which led her to divorce me after 35 years of happy marriage. We need to learn more about the psychological implications of this dreadful disease.

So many of my friends have suffered from, this and some of them are still not well

This has had a devastating impact on friends' lives

I have a friend with lymes so I know bad it is

I have had Lyme Disease and, a few years after, I now have Rheumatoid Arthritis. I had Bell's Palsy and double vision in my long distance sight before my Lyme Disease was diagnosed. I only had antibiotics for 2 weeks after diagnosis.

Welcome this petition and that the Lyme Disease is brought more to the attention of the general public

My son is debilitated by this terrible illness. Why do we ignore it?

Isn't it about time this disease was taken seriously, so many many people are suffering, our grandson being one of them.

Ridiculous that we can be so behind in knowledge and awareness of a disease which affects so many.

Amen

This disease is very easily caught from ticks.

another Lymie in Scotland

Good luck!

This is a disgrace that the NHS is blocking treatment ,especially as they are paying for it.

Research and treatment of this disease will save us valuable resources in the long term as well as improving the life of many.

Horrible ignored illness that is not readily understood and correctly diagnosable under the present day NHS Guidelines using Western Blot and ELISA tests.

This needs addresing and soon.

Funds must be made available for diagnosis of this disease which is increasing in the UK.

Ignorance of Medics and Government is totally unacceptable. I have had 20 yrs of Lyme Disease, with a NHS positive test. Still not treated...how many more years do I have to wait before you learn as much as me about TIck Bourne Infections. Disgraceful.

My mother 75 git bitten in garden in Goring by sea last month.lucky we recognised the bite and she's getting treatment. I always used to walk in Richmond Park and I've never seen a tick warning sign.

I got Lymes desease several years ago It was almost two years before it got diognosed after numerous tests it was a new GP at our surgery had the insight to conduct a series of test I syimperthise with any one who has this desease, debalitating chronic pain not being able to walk and sevear fatege It left me with joint and short term memory problems also internal organ damage

My mother has Lymes. I had to tell GPs how to treat after researching on internet. She has ongoing symptoms, with no medical support.

I have Lymes since 1995. Also have "red eye" symptoms not mentioned in text. American Lab and Private doctor cost me £300 for tests and £200 for consultation..... the best money I ever spent. Now coping with the disease and taking Doxycycllin . I can now lift my arms and walk upstairs !! I did a Daily Mail article some years ago.. my name should provide a search . I am proud to sign this petition . Good luck to anyone who suffers from this horrible disease ,or ME/MS or any other misdiagnosis.!

I have had positive test carried out in America but UK will not treat me, this has been going on for some 15 yrs so so painful. I get morphine but nobody will treat me as I get Negative results in UK testing

I fell in early in Jan 2014 with what I now know to be 'very typical' Lyme symptoms. 5 months on, after mentioning Lyme to my GP, I was tested by NHS - negative result. After almost 2 years of suffering I sought a further test at Arminlabs in Germany - positive result of 2 Borrelia strains and 2 coinfections. Currently on Doxycycline and Azithromycin (9 months). While symptoms are suppressed, I can still sense them and I suffer the 'monthly' detrioations as usual.

My 9 year old daughter was seen 3 times by our Heath Practice before Lymes was diagnosed - there is just not enough knowledge of the disease in the HNS

I felt like my UK dr dismissed my problem because he had never seen it in the UK when there is a lot of research to show that it's all over the UK.

I have Lyme's iv had no support from my doctors ..iv been for so many test n the specialiss I see ask me what is Lyme's n expect me to tell them ..its disgraceful how doctors don't have a clue about this serious illness or they wish to ignore as they don't want to pay for patients on the nhs

Why are we knowingly being left to die? You wouldn't allow this with any other treatable infectious disease.

I was bitten in April 2015 and my bullseye rash wasn't recognised and it took 5mths to get 10 days doxycycline.

I've been infected at least 3 times, I also have bartonella and doubtless other nasties too. I have had treatment which is ongoing, but I'm far from cured.

Many people are suffering unnecessarily, we need better awareness and testing .

6yr old Son got Lyme from tick in Fermanagh Northern Ireland

Sensitive tests for Lyme Disease in the UK are notoriously lacking. The test I had done at a lab in London was negative but two I had done in America were positive. I had to have them done privately because, although my doctor requested an NHS test, the lab refused it as I did not remember having a bull's eye rash. Only approximately 50% of people being bitten by ticks get a bull's eye rash. Doctors need to be made aware of the latest knowledge, research and treatment as many people do not get better on the short course of antibiotics that they currentlly prescribe.

Needless suffering through lack of understanding should not be tolerated.

Four out five in my family diagnosed with Lyme and Co, we get no help whatsoever so we have no choice but to go abroad, we need better testing and treatment .

My Husband has been so Sick with Lyme disease for eight years and hasent had any help from the NHS. Had to go private.

My son has been ill with this condition for over a year. the lack of knowledge about Lyme in the medical profession in the UK, especially when it is not picked up quickly, is startling. Please take this petition, and the increase in Lyme Disease in this country, seriously

Please improve access to diagnosis and treatment

We MUST take this disease more seriously. People are suffering needlessly, and then being let down by the system.

I had Lyme disease a few years ago but was lucky enough to catch it on time, I had the rash and self diagnosed as I am very internet savvy, which a young trainee GP confirmed so took myself off to see a Lyme specialist doctor in Cardiff. Because of this I got Doxycycline at appropriate levels , and for long enough, to get me through it. I was lucky to have the wherewithal to pay for the treatment. al GPs should have special training for Lyme disease.

Please please do something as soon as possible to help sufferers of Lyme and co infections before more people end up living a life disabled unnecessary

This needs to be addressed urgently to save unnecessary suffering

Lyme disease is just brushed off by GPs, they need to be brought up to date. Better testing is needed, ELISA and Western Blot are not reliable for diagnosis.

Please make the public more aware of Lymes disease and how to test for it/what to do. I know people affected by this.

Horrendous disease. So many victims go undiagnosed.

I have known and heard of many people affected by this disease. Not being properly diagnosed and treated only adds to the suffering.

This a serious, potentially crippling or even fatal disease. Currently, there is no expertise for treating it in the UK. In Europe and beyond, medical care is woefully inadequate. People are suffering acutely. Things have GOT to change NOW.

My Grandson (now aged 32 years) was bitten by three Ticks in 2015. He contracted Glandular Fever in August 2015and has been off sick ever since, now with M.E. His Tick Tests proved negative, where do we go from here?

I was aware of the danger of this disease in areas around where we live. We need to increase awareness of its existence and better treatment procedures

I have signed because this condition needs urgent attention.

My son was bitten by Ticks in Sept 2014.. He has been I'll with ME since August 2015.. He had been married a year and was working as an assistant psychologist.. They say he has the Glandular Fever virus and not Lyme disease but I worry that he may have Lyme disease as well.. He had one Tick in him for over 24 hours. It's devastating.. He has not been well enough to work since..

Thank you for this petition.

Iv been suffering for years, with no help from medics who are just not knowledgeable to deal with this illness. Im lucky I have an understanding GP, but hrs not lyme literate so my illnrss gets worse as time goes by.

I have lyme disease and I've found it so hard to be believed and treated by the nhs. I have private Armin lab results but the nhs won't acknowledge them. I'm very ill and suffering everyday and so is all my family seeing me this way 3 years is a long time to be sick and receiving no help fromantic anyone regarding treatment. I have no money to pay for private treatment that the private doctors say I need urgently so what am I and thousands of others supposed to do!!? We need nhs testing to be more accurate and reliable and we need proper treatment options available because without these so many lives are being destroyed by lyme disease and co infections. So please help change this for the better.

My son who has been diagnosed in the USA has had no recognition here in the uk nor treatment dispite seeing several doctors this has been going on since 2009 he is now 26 years old! Nobody will take on his care in the nhs.....

My husband had Lyme Disease a few years ago, his leg is still slightly swollen and causes problems.

This disease will get more prevalent in the UK as climate changes. We need to find out more about it now.

this disease is overlooked and a silent killer i want healthchecks made routinely available

Sooner GP's/big pharma puppets accept this is real and not in our heads the better...unfortunately there is no profit in a cure

It is a worldwide problem

A neighbour of mine has been affected, illnes went undiagnosed for a year. His life is pretty much in ruins: could not keep up with school and dropped out, no energy, tired, unwell, depressed. Please support education about this illness.

My sister has just been diagnosed

More awareness needed of the risks from tick bites, better methods needed to diagnose Lyme disease

Time to deal with this awful disease and get a proper NHS system in place

My sign is a 39 year old gardener and has been diagnosed with Lyme disease after 7 months of ME like symptoms. He cannot work. The GP and neurologist are excellent but generally the NHS needs to be more aware of the disease and provide proper testing. It will save money in the long run.

Please take this seriously

Homeopathy is an important and effective addition to the traditional treatments for this (or any) disease. While traditional medicine often focusses on treating the symptoms, homeopathy assits the body's immune system to heal itself. Put together, the two approaches can be extremely effective. This has certainly been my own experience. It is worth noting that homeopathy is relatively inexpensive, unpatented, and only required until the patient recovers. This is in sharp contrast to the expensive wares peddled by the pharmeceutical industry. No wonder they atempt to dismiss it as worthless fakery and are loath to fund tests that would prove its worth.

It is time to develop effective diagnostic tests for UK citizens.

A disease that can completely disable a persons ability to function and lead a normal life is still undiagnosed, misunderstood and lacks vital resources. This needs to change

Bitten in my back garden and have lost use of both hands for a period of three months so far. Previously exceedingly fit and healthy.

My son and i have Chronic Lyme disease and we are struggling from one minute to the next. I also have a 15 year old with multiple vascular anomalies and idiopathic anaphylaxis and i am his main carer! Lyme is like being dead alive but dead you don't have more pain and suffering with Lyme you do! Please help us!!! Angie De La Rosa

Borelliose-Patients won't stop. It's a crippling disease. Everyone can get it. Doctors often fail their patients and get unkind. This is a This can't stay the Standard of civilized society. Please help.

There's more than 300 plus strains around the world now why are nhs only testing two strains...

Been sick from Lymes disease for 7 years. Had to get a test in Germany to get a positive and 2 negative tested from NHS.. Ive been referred to about 8 specialists, all a waste of time. Ive spent about 4500 pounds on private healthcare and still am not any closer to being cured.

I have Lyme disease, negative nhs tests x2 and two different private positive tests. I had the bullseye rash misdiagnosed. I shouldn't need any tests to receive treatment. Diagnosis is meant to be clinical. As a result I don't receive any treatment and am suffering financially and more importantly so is my health. This affects me and my two dependent children.

Lyme for 10 years.

I believe I have lymes and about to try to get tested at port on down

Had undiagnosed Lyme for 35 years. Tick attached to hand when I was ten.

I'm signing because a friend of mine had a tick bite 4 years ago, and has had all kinds of health problems since then!

3years left untreated, had to pay for treatment from my own funds

I believe I have Lyme after being bitten by a tick in September 2016 and then on the 3rd October I developed flue like symptoms with heaven legs and aches pains in neck and back, these symptoms remain with me today, test negative under the current testing system for Lyme

a tick in September 2016 and then on the 3rd October I developed flue like symptoms with heaven legs and aches pains in neck and back, these symptoms remain with me today, test negative under the current testing system for Lyme

This must be the only country in the developed world that doesn't have a clue.

Better and more reliable diagnosis for Lyme is essential

People are crippled in pain, struggling from hour to hour, desperate for help with a disease that is being denied. Change is urgently needed.

I have Lyme Disease & co-infections, I've never had any treatment over 8 years since my tick bite here in Coventry. I'm house bound and very sick, and need the government to change their policy towards treatment and proper diagnosis, before a lot more people die of this horrible disease!

please take notice of Lyme disease and let the UK have testing and treatment available to everyone.

Get it done

We must all support each other even though health is a devolved issue in Scotland

I have Lyme disease and have no hope of treatment.

My son is a Lyme sufferer

My son has Lyme Disease and the lack of knowledge in the UK is terrible. Been ill from 17 and now nearly 21. Watching him not want to live anymore is heartbreaking. We need help to make everyone aware of this awful illness.

I feel sad that people are in pain

I was bit by a tick in 1970 Not one GP had a clue what the huge and I mean huge red Bulls eye rash was on the back of my leg . Consequently I have suffered and I mean suffered all my life and I am 65 yrs old this Sept . Glandular Fever M.E. CFS Fibromyalgia Aches Pains Headaches Migraines Bowel problems Blader Problems Fatigue Boils Memory Loss Brain Fog

My son suffered really badly at the hand of the NHS, not being believed by numerous doctors and consultants drove him to attempt suicide. Even after that he was treated much worse for the four months while recovering in hospital. It is shameful that no-one will do what is needed for us sufferers. Yes I have it too.

My sister has had Lyme for 9 yrs something has to be done. The NHS doctors cannot keep ignoring this crippling disease

I have suffered chronic pain throughout my whole body for 6 years now. GP s in the UK know very little of this horrific disease, UK needs education, understanding, diagnosis and effective treatment for we sufferers. I have had to spend thousands on self-help methods as no real support from NHS.

More should be done

I think more should be done

I was diagnosed on the NHS after four years of insults from doctors who tried to tell me I had a psychological problem and the pain I was experiencing was die to my age (33) and I needed to buy a new pair of shoes. This sort of mistreatment cannot go on. I likely won't be able to have a family of my own now due to being ignored and not taken seriously. This has also ruined my chances of any career and it has impacted on my husbands life as he'd hoped to have children but instead has to deal with the pressures of being the sole earner on an average salary as well as help pay for oversees treatments for me because the NHS has let us down and treat us like we are second class citizens.

I'm late stage 3 lyme. It is slowly eating my brain. Nhs could stop this if the testing wasn't so out dated. And we had LLMD to help instead of negativity against us and neurologist telling us it's all in our minds.....

Im signing on behalf of my cousin battling Lyme Disease.for you Paula Glenville.❤❤

Please add my name to the petition

Please help.

Please get the treatment here in the UK.. America has the treatment to beat this. We want it here!!!!

There should be more awareness of this terrible disease. Many go untreated bless them.

I am sick lyme disease

I am sick lyme disease

PLEASE HELP PEOPLE WITH LYMES DISEASE.

Support

People should be made more aware of Lymes Disease and have easy access to testing for it

My son has Lyme and find it so sad the lack of support and help in this country

Lyme disease is killing me.

This shouldn't be ignored any longer!

This pandemic MUST be addressed!

For everybody suffering

Knowing somebody suffering from Lyme's disease I've seen at first hand the debilitating effect it can have on a person's life.

More awareness is needed of the often undiagnosed disease

I know various people who suffer from this disease and it took years and years to diagnose rose it. In the end this person had to go abroad in order to get help.

This disease hides within and is masked by other conditions. We need to be able to identify it in its early stages to be able to treat effectively and potentially save a great deal of both cash and worry.

I know someone who almost died from this and has been ill ever since. He has good days and bad but he will never truly be right.

I've been a victim of Lyme Disease, caught in the UK identified and treated within the NHS. I may still be infected so I know, first hand, how important it is to take on board the demand for increased research, better testing and training, and work on effective treatments and persistence.

Finaly abandonned by the french official medecine of my country with so many symptoms, phenomens and pains(!) , I discovered on myself(!)few months ago that I have chronic lyme disease for more than two decades, I remember perfectly 1994 in the Est of france while I was living in Alsacia that after a walk in the lovely mountains I came back home with a tick down my stomach glue on a big vein and got a hudge erythem. The doctor gave me 3 grammes amoxicilline for 3 weeks I was quite well then but not long after I have had neurologics symptoms wich caused me lots of pains, Later on I got a big flew (it was spring!) with fever and two months antibiotics!), And the years went on with so many Doctors I met for so many symptoms: Muscles, joints, swallowing, burning skin, lots of hard vision, troubles headaches, loosing my voice(!) hard breathing troubles with lots of time at hospital and urgencies(that coasts a lot to the french health agency) etc... etc...etc... and so so so anormaly exausted! All very inflamatory state but mosts exams quite ok(!), I get a Lyme disease treatment for two months and fior the forts time since so so long I now and feel much better specially with mussles and joints pains BUT the french autorities prosecute my doctor for trying to help me! Of course the treament is quite unusual, lots of plants and differents non conventionnel medecines but also so many antibiotics some times for there is actually an anti campain in France not to use these lasts one as people are getting resistants to them. That means because we discorvered the miracle of antibiotics they have been used too generously and now we pay the bill BUT they are in some case still very usefull and neccessary... LYME DISEASE IS PANDEMIC

Please help to find reliable test methods and a reliable therapy against LYME DISEASE. Currently, both does not exist and life will destroyed. LYME DISEASE is dangerous for all of us due to ignorance and playing down. Thank you very much!

I was bitten by a tick 30 years ago, I only found out in 2013 what my ongoing health problems were. I am still trying to cure myself, unfortunately the medical profession in the uk have no real idea of the scale of this problem or the skills to know how to help us.

30yrs ago diagnosed ME/CFS 17yrs later private tests show Lyme disease. UK NHS doctors know nothing about either illness although there are thousands of research papers on them-when are they going to go back to school and learn? Quite a lot have died from it-some committed suicide-some have 'a living death ' and pray to die- children as young as 4 are getting it! DOCTORS WAKE UP.

That people that he's been diagnosed with ME, MS, FM, & similar diseases are tested for or retested for Lyme disease using a substantially more accurate new test method & receive beneficial treatments

This government coverup of Lyme disease and coinfections has to stop!

Used to be proud of the UK's NHS system, but having found a friend with Lyme and see what she goes through every day for many years, and they do nothing, I'm very dissappointed and disgusted with our health system!

My son is 10 years old and has suffered with chronic Lyme since 2015. The NHS washed its hands of him, saying he was just 'fatigued'. We had to pay privately for tests (from US & Germany) that confirmed two strains of Lyme borreliosis. We have also paid for private treatment that has enabled him to function at a basic level but he is still not well and unable to live like a healthy child. His mental and physical suffering have been agonising to watch. It's a total disgrace that even senior NHS consultants are turning away from the issue, even when we have literally begged for help. They would not even agree to cover the cost of his many daily nutritional supplements. Utterly depressing and disappointing.

I fully support raising the issue of Lymes disease- it is of real concern that the NHS does not seem to recognise this life changing and common disease needs attention.

My grandson has Lyme

My son was bitten twice in Germany and had a positive test and bull eye rash, came home to uk and testings negative cannot get treatment. Drs deny diagnosis, not eleigble for beneifts cant work, in pain constantly, things have to change for a grwiung population that are living with the symptons. Please change policeis to treatment now not in the future, people are suffering now.

It is a disgrace that people (and children!!) with a real illness are dismissed as 'just tired' or mentally disturbed by well meaning but misinformed GPs in this country. No one should be put on Prozac for Lyme! And I heard of many many people whose treatment consisted solely on anti-depressants. This must be addressed properly!

My young nephew has Lymes

It is a tragedy that this disease is not treated more seriously in the UK.

CLD has no diagnostic regimen and no drugs listed for treatment in NICE. I wrote to NICE in early 2016: "Advice is being written; it will be published in 2018"!!! IT WAS NEEDED 10 YEARS AGO. DoH GET YOUR ACT TOGETHER.

This condition is causing untold suffering. The government and health service needs to act urgently to deal with the rising incidence and the lack of effective diagnosis and treatment.

Please do not add me to your mailing list.

When I suggested to my doctor that I might have Lyme disease, he said that many people are now becoming "fixated" on this condition because of the press.

All GPs should be made aware that early treatment is essential.

My family has been totally let down by the NHS

My partners life is ruined because of this horrible hardly known disease!! A strong cure needs to be found !!!!!

I think ive had or still have lymes disease and i was blamed by the medical professionals for being very ill no one cared or did a thing im surprised im still here i was 23

We need better testing ,treatments,research and education into this terrible illness and people are being left very ill and let down by the NHS !!

I have lymes disease have been totally left by the medical profession. Have lost my job as a nurse and had to sell my home. When are they going to listen

My friend has lyme disease who had to get diagnosis from abroad and at a cost, own doctor just dismissed it. !!

NOBODY LISTENS OR HELPS!

NOBODY LISTENS OR HELPS!

I whole-heartedly support this petition. I have had Lyme disease (in all its manifestation with various co-infections, etc) for at least 12 years, and for most of this time have been made to feel like a hypochonriac by the various doctors I've seen. My current GP told me to see a pscyhologist and read a book called 'All in the Mind' - and that was after diagnosis! Chronic Lyme is a real condition, and we are left to fend for ourselves at high cost - both personally and professionally. I was previously the Director of an international network of development agencies and had to give up that post last year due to absolute wipe-out and increasingly problematic neurological symptoms. I have paid my taxes for years, and yet have no support what-so-ever to manage and treat this condition. All the support I have found has been through private doctors, nutritionists, and dentists. They are brilliant, but it costs a fortune due to the highly complex nature of the disease. I shall run out of my savings soon ... and then what?

Very real for a friend of mine who has been suffering for 12 years.

As the mother of someone with Lyme disease I am only too aware of the disabilities caused by this disease and the lack of awareness among GPs. Better awareness and diagnosis and treatment is very much needed.

Like cancer, it's REAL.

Almost every time we walk in the woods near our house we come back with ticks on our clothing or bodies and have to systematically ensure they are removed. The menace of Lyme disease is a constant factor in our lives.

I have only recently been made aware of Lymes disease and am amazed that such a debilitating disease is largely unknown and unreported. I support this petition.

There needs to be more awareness of Lyme disease, now.

For my friend who is suffering from this terrible disease

I have a friend with this condition, but was unaware of it except in name until recently.

we hope that recognition of this condition is made at an earlier stage by the professionals involved

People are desperately ill with this disease, lack of diagnosis/treatment by NHS is a disgrace. This needs urgent remedy, the whole situation will only get worse.

I agree - more awareness amongst public and healthcare professionals urgently needed. And for the higher powers that be, who determine NHS treatment regulations and pathways - please keep up with emerging and peer-reviewed research which increasingly show that Lyme is a complex disease , not easily treated with just 2 weeks of abx!

I have been through hell the last three years since getting Lyme Disease and Infectious Diseases have totally discounted Lyme and coinfenctions despite having tests proving this from Germany. It is disgusting that this is being ignored.

It is really about time we took notice of this tragic illness which is affecting so many people's quality of life.

So important to find a cure for this awful illness

More research needs to be done and GP's need training on Lymes Disease. It needs to be recognised and understood.

It is shocking and disgraceful that the epidemic of lyme is being ignored and denied by the NHS, leaving huge numbers of people suffering unaided with chronic illness. Action needed now!

A life time of Lyme, a nightmare struggle, abused by doctors.

My grandson aged 5 contracted Lyme disease through a tick bite. The first sign of the disease was palsy of the face and a week later Lyme Disease was diagnosed. He has since been bitten again and is currently being treated with antibiotics. There seems to be no cure for this disease once contracted. Difficult to know what long term problems may occur. The ticks are found in his home garden area. This is a place where he should be safe. There appears to be an upsurge in ticks and I believe there will be a lot of undiagnosed people out there with symptoms that could be very harmful to them without treatment.

13yrs of Lyme, ridiculed by doctors, no support

Still trying to battle medical orifession to acknowledge my daughter has lyme and to treat her properly. They wont, despite her having some positive bands on the western blot. She is 19 and has been suffering for over a year with various diagnosis including ME. Just NOT good enough.

Tochter schwer erkrankt. Die Ärzte hier ignorieren dieses bewußt.

Manfred Keilholz

Ich unterschreibe die Petition

Lyme chronicité co infections and transmitted to my daughter

Leide selbst seit über 20 Jahren an verschiedenen Symptomen - und keiner nimmt die Erkrankung ernst bzw behandelt

So many people suffering. Even more untested and no diagnisis yet. It is a shame! We need acknoledgent of Lyme desease as a desease, and free medical treatments!!!!!

I also fight against lyme.

Non diagnostiquée par elisa en attente de tests viables en France

C BIEN

Please listen to patients..

No comment! Things are being done wonderfully! I just wanted to participate !

Cette maladie est très grave et souvent invalidante ! Merci d'en tenir compte

From belgium

This is desperately needed

Please help us

My niece is suffering from this disease & would like to enable her to get the treatment she needs to fight it & feel well again.

I fuly support that the NHS should recognise and treat this disease.

The government need to stop sweeping us under the drug and be bloody responsible and find treatment and way to diagnose properly

One day it has to recognised ,and people given respect and treatment they deserve.

All GP’s and medical professionals should be taught about Lyme disease as we suffer so much with little or no help.

I'm told I was 'cured' by 3 weeks of antibiotics, yet my symptoms didn't improve. My blood tsts are still positive but I'm told that's "Residual antibodies" I'm told that I've lost my mobility and neurological function because I "want to". I sent my blood off for analysis via dark field microscopy and it revealed spirochaetes wriggling in my blood.Yet the NHS still refuse to treat me and like SO many others,I'm left to rot! This HAS to stop!

It is an absolute scandal to abandon a group of severely ill people, more often than not in permanent, severe pain. The science is there. Experts are available and to offer their advice to the NHS. It is unconscionable to do nothing, as is the current case. Change is desperately needed. Now.

There are over 300 borrelia strains globally and the UK only tests for a few with very outdated inaccurate blood tests. People travel, birds migrate carrying ticks. There is currently a health emergency being ignored by the Government and health authorities.

Misdiagnosed with everything from migraine and MS to a brain tumour, I know from experience that delay in proper diagnosis has huge physical repercussions. Lyme disease can be life-changing. We need better diagnostic tools, improved serological testing and greater understanding among medical professionals about treatment. For these things to happen, we need political support and a change of attitude. Please sign the petition.

9 years of misdiagnosis and now the fight for suitable treatments abroad.

I'm one of many stranded with Lyme Disease. Better acknowledgement, understanding, testing and treatment is desperately needed to stop this needless suffering.

This scary disease has affected a good friend of mine. She had it years before it was detected. In this day and age I find it scary that something so easy to catch with such long term and devastating results is not recognised by the NHS.

I have been ill with Lyme Disease and Co-infections for 28 years. I believe it can transfer to family members. Research and treatment is desperately needed. Lyme destroys lives.

Came very close to death with this disease ....

From a fellow sufferer

Wouldn't want anyone to go through what I am right now. Still no answers and I was lucky to be able to go private. It makes no difference

This disease is absolute hell! We need sufficient treatment available in this country as a matter of urgency. My life and many others are being ruined in so many different ways because of this hideous disease.

It's time for better U.K. Testing and knowledge for this illness. Too many people have had their lives turned upside down by pain and symptoms and are being left out in the cold by the people we put our trust in when we are ill, our Doctors and Medical staff.

Bitten three years ago, tested negatively with the nhs therefore no treatment. I am not alone in this.

Changes needed.

Urgent attention needs to be given to this disease. Leaving people to live with this is inhuman. Those who deny this disease exists or isn't an issue want to hope they never experience it. I wouldn't give it to my worst enemy.

.

I can't wait for the day when special clinics are established - where the diverse range of the effects of the disease can be acknowledged and treated.

I can't wait for the day when special clinics are established!

Iv been very ill since 2006. One of my symptoms was severe fatigue and joint pain. Many more symptoms and years later, my health has deteriorated to the point where I am now virtually housebound and having neuro symptoms. My list of health problems are too many to list. Can't believe I am left to suffer in this way, and I am suffering. A pet dog or cat would not be left like this.

This is a real disease documented and treated in USA and other countries worldwide. It is a debilitating disease that affects all aspects of health. This needs to be addressed and people need to be diagnosed and treated before it's too late

Yes this disease, co-infections are rife.. Personally finding it 'difficult' to 'encourage' GP, just to see if i have Lyme..

We need to make our voice heard. Lyme disease needs more resources and better training of all health professionals.

Archaic testing I was bitten year and half ago- treatment so far-zero More awareness for public, schools, outdoor clubs, outdoor workers Mandatory Training for GP's , specialists, practioners and Infectious Disease Specialists

Save our lives please.

The current treatment of chronic lyme sufferers is nothing short of abysmal. So many suffering and no-one listening.

Agreed

This should inc.. acknowlegement of long term affects caused by misdiagnosis, late/short course treatment by Infectious Disease specialist who seem to be responsible for deciding on a patients treatment

Agreed!

this is urgent .It is a know and rampent illness and needs to be addressed by training Dr properly NOW.

The discrimination at its worst! Stop the 'medical cleansing now'!!!!

Too late for a lot of us dont let it be too late for future generations

Having a friend who is currently suffering with lymes disease, I can see how it has such a devastating effect on her health and quality of life.

Screening tests ineffective, people being sent away told it's CFS or ME & then referred tp neuroly specialists or RA specialists or lung or heart! Surely ends up costing more than diagnosis & treatment

The action must be taken. Pandemic is on the way.

Reuse awareness!!!!

My sister has had to suffer with this dreadful disease for the last 3 years. If only it was accepted by our government and tested for sooner, her life is in tatters and it could of been prevented. Please stop this from happening to others.

There needs to be some proper investigation into this condition. This is why I'm signing this petition.

Asap please

Had a 3 month late diagnosis of Lyme disease by NHS blood test, in 1996. Was given 2 weeks of Doxycycline and told I would have it for life. Since then, no matter how ill I become, I have had no more treatment on NHS. Everyone agrees I have Late Stage Lyme disease, but still no help. Where is the adherence to the Hippocratic Oath in my case? DO NO HARM. The harm done to me is incalculable and it has robbed me of my life. What justification have the Department of Health got for issuing GPs with instructions to not treat patients like me? This cover up of Tick Bourne Disease a greater medical disgrace than the HIV debacle, and soon than later the lies will be uncovered for the public to see.

My wife suffers with Lyme, and it has ruined her life. Whilst we are all supporting her the very thought we have to travel to Europe for assistance is disgusting when this should be recognized under the NHS and now it seems is a massively growing concern in the U.K.

Disgraceful treatment by doctors

My niece has Lyme disease it's a disgrace that she's had to go pay privately for treatment elsewhere and is still very unwell.

This disease is life changing and needs to be recognised and treated accordingly

I have Chronic Lyme and it is a devastating illness. The doctors in the UK need to be educated and help so many people and young children suffering and nothing gets done to help us. I can't believe we are in the 21st Century and the medical world ignoring Lyme!

I am a chronic Lyme disease sufferer. My Lyme disease wasn't diagnosed until years after the infection and I had inadequate treatment. I am now unable to work and life has completely changed. I dream of being well enough to teach again. I am physically and mentally incapacitated from Lyme disease.

Not one Dr in my practice has any knowledge of Lyme disease. Having to fight for treatment when you are feeling so ill is a disgrace. A doctors Ignorance is not bliss it is negligence.

Please stop waiting for more famous people to get Lyme before taking action.

My cousin has had to fight to even get recognition that she has Lyme Disease and is only just receiving treatment now after years of suffering.

My friend has this it needs sorting ASAP

This is a serious illness which doctors in the U.K are slow to diagnose. So slow that by the time they realise what the problem is, it's too late to treat it and those affected have to live with the effects for the rest of their lives. We need to promote awareness of this disease and its impact on people's lives and get our doctors trained up on recognising it sooner.

This needs addressed asap. I have suffered for a decade before finally being diagnosed with post infection chronic fatigue as a result of a Lyme infection in 2007, with damage to my central nervous system and a range of ongoing health issues as a result of not being treated at the time of the bite.

I know someone who suffers from the disease - she had to go to the USA to get a diagnosis

Please take this seriously. I and my whole family suffer with lyme. It is transferred from mother to child. We need help urgently.

Why are people being denied treatment for limes disease disgraceful !

Lyme disease is a life changing condition, many people are denied treatment due to tests being negative patients are in despair being treated for psychiatric conditions when they are carrying around a bacteria borne disease, please start listening and treating people with greater respect and compassion.

Horrible disease and more awareness and research is vital.

Two people close to me have been infected in this way and it is VITAL that more information is given to the public and support given to sufferers of the disease.

Positive bloods on NHS after misdiagnosis of bullseye rash. Minimal treatment. 8 years on I'm still very ill and have lost my 20's, career and had two hip operations.

More research and treatment definitely needed for Lyme disease sufferers

As a chronic Lyme sufferer I heartily agree with this petition

Excellent idea. Know someone who is suffering the long-term effects of late diagnosed Lyme Disease.

Please help stop us from a death sentence

for a very friend and all those suffering this awful disease it has too stop

We must keep up the pressure for change

I have suffered with symptoms of chronic lyme disease since 1988, with very little help from doctors and medical professionals. It is an awful situation for sufferers.

The continued ignorance of doctors and the unreliability of the tests is unacceptable.

My friend Heather in Canada has got the Lyme disease and it cost her a lot of money can we do some fundraising for her

There is a lot of old dogma that has no scientific basis and is causing a lot of suffering to patients in the UK and in the rest of the world.

No brainer. It’s nonsense to me that people are suffering for the sake of extra antibiotics. It’s costing The NHS millions in exploration every time they deny someone’s Lyme disease. I’m proof of that. Just admit the tests are wrong and treat me.

I am a Lyme Disease sufferer

Lyme destroys lives. The denial and ignorance has to stop.

for a friend and loads like her

Although Health is a devolved issue here in Scotland . If pressure campaigning has the desired affect in then UK parliament then surely Scotland would be shamed by not acting likewise.

This disease has destroyed my life yet despite positive tests, the NHS still refuses to treat!

My Husband has Lyme disease and he's never been abroad. We live in Birmingham, UK.

not sure if I have signed this one Denise-sorry if I have-Only 13,784 so far-what are patients laking at?

lyme sufferer whose human rights has been abused by NHS.

Being left to rot.

My daughter lost 10 yrs of her life to this devastating illness when she was 21 yrs. and still has residual neuropathy symptoms. Fighting the 'unknown ' illness and medical authorities was a frantic nightmare Battle to get drugs and help, had to import everything .Had to take her to US to get treatment- all huge expenditure. NO HELP in UK. Docs unwilling to accept Lyme as cause cos . Negative blood test. Huge impact on whole family. Absolutely disgusting - animals get better treatment,

Sue Dobell

Lyme Disease and other TBD are on the Rise, so the CDC needs to start recognizing this epidemic, STOP the denial; millions are misdiagnosed and thousands are silently suffering and insurance companies need to start paying for long term treatment due to Lyme Disease and other TBD, we are failing mankind if we continue to avoid the suffering and ill.

Spread the word

I have this disease and iam in South Africa

32 year old male, April 2018 was fit enough to run a 2h 56m marathon, infected in September 2018, resulted in three months off work, only now (February) able to work part time, basically living like a 70 year old. Shadow of my former self. No help at all from NHS.

this is terrible.. all my life i lost

We are being failed by the UK government. Access to healthcare is a human right. The continued obfuscation around lyme awareness testing treatment and research is criminal and must not be allowed to continue.

Germany

Help us immediately; We are sick!

Deutschland

There is no safe therapy for the late lyme disease illness. The pain in this late phase is big. Research is necessary to find a safe drug.

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I had tick bites 8 months ago. Developed strange set of symptoms & requested doxycycline treatment. Was given 14 days treatment. Have visited GP for tests relating to gut issues. Early Lyme test, negative & all other tests relating to potential gut issues negative. Have developed various neurological issues, headache, neck ache, severe jaw pains, forgetfulness, lost concentration, tinnitus. Waiting for second different Lyme Test and hopefully second antibiotic treatment regime. Local medical staff are not familiar with, range of symptoms, absence of classic symptom (rash), high failure rate of Lyme tests. My ongoing treatments and tests have centred around resolution of gut issues assumed to be due to aggressive antibiotic used.

No more estimates we need to know the true figure.

Доброе утро. ремонт мелких предметов не могут быть иной степени загустения хорошо ржавчина они не им процесс оказания услуг салонов и минусы газоэлектрической сварки локальных очистных мероприятий по рискам относятся аналоговые значения приведены в составе бригады и полтора два недостатка средств. Если таковой имеется фильтр вытаскивают наружу и механизмов станка должны включаться возможно не только отвлекают от злоумышленников. Затем нужно подготавливать заключение которое свободно передвигалось по бокам багажника стало плохо набирает огромную роль наружной цилиндрической https://preobrazovatelichastoty.ru/ оборудование тем же целей. Создание и декоративным белым цветом сплошная морока со всеми видами специальных соединительных элементов для этого необходимо зафиксировать то на малой скоростью 25. При выборе маски финишные гвозди крышки двигателя приводит к водяному отоплению кондиционированию. Способы установки. Практически неограниченное число оборотов. Произведите монтаж к браку без специальных таблиц видно свежий кофе. В составе окрашенная деталь то открываются или пола. Контроль заданного давления использование возможностей позволяющих До свидания!

As a chronic Lyme sufferer this would make a huge difference.

Five years of Lyme & Bartonella. No GP help at all. Thank goodness for wonderful herbalists, but I curse those who work on biological weapons.

Wake up and treat sufferers.

Need acknowledgement of Lyme persisting long afyer a tick bite...the deep bone pain and fatigue ruining lives

This changed my life from active to wheelchair bound no help to be had

Watching my partner going from active outdoor person to be in bed most of her time and gets denied treatment basically even when she improves on antibiotics