This is a scandalous situation. It is wilful negligence not to ensure patients have access to proper testing and adequate treatment. Public Health England does not ensure that GP's or Environmental Health Departments are properly trained, and claim that GP's treat on a clinical basis. That is a lie. The vast majority know nothing of Lyme disease and even many of our Infectious disease specialists claim Lyme is not a problem in the UK. Patients are being left to worsen and rot, most often with no treatment at all. Then they are told they have psychological problems, as 'it cannot be Lyme'. We have a right as human beings and as citizens of the UK to be treated properly and by trained doctors. We are being denied that right. The law is being broken and ignorance is no excuse in law. What is worse, is that Public Health England cannot claim ignorance. In 1998, scientists reported that the testing was inadequate. PHE have done nothing to help any of us and are in breach of their remit. We want proper training, testing and treatment NOW!
D
Dr Terence Prospero
11 years ago
Ignorance amogst doctors is widespread. Anyone who gets a negative test result is refused treatment whatever the clinical symptoms (including EM & ACA, for heaven's sake). Not only is the test unrelliable, there is NO serological test for Borrelia myamotoi which has been shown by using DNA methods to have caused infections in Europe, SE Asia, Russia, and the USA. Most EU and American test kit manufacturers include warnings that a negative test result does not mean an absence of infection and that clinical diagnosis is highly important. Why do British Drs ignore this?
D
Dr Terence Prospero
11 years ago
Ignorance amogst doctors is widespread. Anyone who gets a negative test result is refused treatment whatever the clinical symptoms (including EM & ACA, for heaven's sake). Not only is the test unrelliable, there is NO serological test for Borrelia myamotoi which has been shown by using DNA methods to have caused infections in Europe, SE Asia, Russia, and the USA. Most EU and American test kit manufacturers include warnings that a negative test result does not mean an absence of infection and that clinical diagnosis is highly important. Why do British Drs ignore this?
J
jacqui butterworth
11 years ago
26yrs of this illness and fed up of doctors ignorance and denial
J
jacqui butterworth
11 years ago
26yrs of this illness and fed up of doctors ignorance and denial
P
Pam Meachin
11 years ago
Why is Lyme Disease not recognised ? Why are the sufferers not being heard ?
P
Pam Meachin
11 years ago
Why is Lyme Disease not recognised ? Why are the sufferers not being heard ?
J
Joanne ryan
11 years ago
4 weeks doxy NOT sufficient!
J
Joanne ryan
11 years ago
4 weeks doxy NOT sufficient!
D
David Artis
11 years ago
As a practicing H&S rep I believe Lyme disease is misunderstood and mistreated on a large scale.
D
David Artis
11 years ago
As a practicing H&S rep I believe Lyme disease is misunderstood and mistreated on a large scale.
C
Colleen O'Gorman
11 years ago
I believe that I have lyme disease, however my doctor refuses to acknowledge. I was bitten by a tick when I was 10 years old, and my heath has deteriorated ever since, I am now 35.
C
Colleen O'Gorman
11 years ago
I believe that I have lyme disease, however my doctor refuses to acknowledge. I was bitten by a tick when I was 10 years old, and my heath has deteriorated ever since, I am now 35.
J
Jack jackson
11 years ago
how much can you take??i know you have to be positive and self pity is not inspiring,but to be patronized and lied to over and over its not exactly healing.Dr J and team somewhere in scotland
J
Jack jackson
11 years ago
how much can you take??i know you have to be positive and self pity is not inspiring,but to be patronized and lied to over and over its not exactly healing.Dr J and team somewhere in scotland
A
Anonymous
11 years ago
My Lyme disease was not diagnosed until after I developed Bells Palsy and Double Vision, having been unwell for weeks 4.5 yrs ago.
Have suffered arthritis in last 2.5 yrs, however, no-one looks at whether related to the Lyme disease (treated as a separate thing). I'm not so sure, arthritis is linked to Lyme and I suspect this development is related
L
Linda Everett
11 years ago
My Lyme disease was not diagnosed until after I developed Bells Palsy and Double Vision, having been unwell for weeks 4.5 yrs ago.
Have suffered arthritis in last 2.5 yrs, however, no-one looks at whether related to the Lyme disease (treated as a separate thing). I'm not so sure, arthritis is linked to Lyme and I suspect this development is related
B
B B WATT
11 years ago
disgraceful situation for which there is no excuse
B
B B WATT
11 years ago
disgraceful situation for which there is no excuse
This is a scandalous situation. It is wilful negligence not to ensure patients have access to proper testing and adequate treatment. Public Health England does not ensure that GP's or Environmental Health Departments are properly trained, and claim that GP's treat on a clinical basis. That is a lie. The vast majority know nothing of Lyme disease and even many of our Infectious disease specialists claim Lyme is not a problem in the UK. Patients are being left to worsen and rot, most often with no treatment at all. Then they are told they have psychological problems, as 'it cannot be Lyme'. We have a right as human beings and as citizens of the UK to be treated properly and by trained doctors. We are being denied that right. The law is being broken and ignorance is no excuse in law. What is worse, is that Public Health England cannot claim ignorance. In 1998, scientists reported that the testing was inadequate. PHE have done nothing to help any of us and are in breach of their remit. We want proper training, testing and treatment NOW!
Ignorance amogst doctors is widespread. Anyone who gets a negative test result is refused treatment whatever the clinical symptoms (including EM & ACA, for heaven's sake). Not only is the test unrelliable, there is NO serological test for Borrelia myamotoi which has been shown by using DNA methods to have caused infections in Europe, SE Asia, Russia, and the USA. Most EU and American test kit manufacturers include warnings that a negative test result does not mean an absence of infection and that clinical diagnosis is highly important. Why do British Drs ignore this?
Ignorance amogst doctors is widespread. Anyone who gets a negative test result is refused treatment whatever the clinical symptoms (including EM & ACA, for heaven's sake). Not only is the test unrelliable, there is NO serological test for Borrelia myamotoi which has been shown by using DNA methods to have caused infections in Europe, SE Asia, Russia, and the USA. Most EU and American test kit manufacturers include warnings that a negative test result does not mean an absence of infection and that clinical diagnosis is highly important. Why do British Drs ignore this?
26yrs of this illness and fed up of doctors ignorance and denial
26yrs of this illness and fed up of doctors ignorance and denial
Why is Lyme Disease not recognised ? Why are the sufferers not being heard ?
Why is Lyme Disease not recognised ? Why are the sufferers not being heard ?
4 weeks doxy NOT sufficient!
4 weeks doxy NOT sufficient!
As a practicing H&S rep I believe Lyme disease is misunderstood and mistreated on a large scale.
As a practicing H&S rep I believe Lyme disease is misunderstood and mistreated on a large scale.
I believe that I have lyme disease, however my doctor refuses to acknowledge. I was bitten by a tick when I was 10 years old, and my heath has deteriorated ever since, I am now 35.
I believe that I have lyme disease, however my doctor refuses to acknowledge. I was bitten by a tick when I was 10 years old, and my heath has deteriorated ever since, I am now 35.
how much can you take??i know you have to be positive and self pity is not inspiring,but to be patronized and lied to over and over its not exactly healing.Dr J and team somewhere in scotland
how much can you take??i know you have to be positive and self pity is not inspiring,but to be patronized and lied to over and over its not exactly healing.Dr J and team somewhere in scotland
My Lyme disease was not diagnosed until after I developed Bells Palsy and Double Vision, having been unwell for weeks 4.5 yrs ago. Have suffered arthritis in last 2.5 yrs, however, no-one looks at whether related to the Lyme disease (treated as a separate thing). I'm not so sure, arthritis is linked to Lyme and I suspect this development is related
My Lyme disease was not diagnosed until after I developed Bells Palsy and Double Vision, having been unwell for weeks 4.5 yrs ago. Have suffered arthritis in last 2.5 yrs, however, no-one looks at whether related to the Lyme disease (treated as a separate thing). I'm not so sure, arthritis is linked to Lyme and I suspect this development is related
disgraceful situation for which there is no excuse
disgraceful situation for which there is no excuse
Oh oh oh