I was diagnosed with Lyme Disease by the NHS in 1996, unfortunately was given too little antibiotics, too late. I have been left all these years without treatment by the NHS. Treatment I have received, I have had to pay for myself privately. I am still ill. In all these years the NHS has not changed their policy of denial of Disseminated Lyme disease, despite much evidence to the contrary. A change is long overdue.
C
Cecilia Russell
12 years ago
I have suffered from Lymes Dissease for a year now, but the Consultant says This can't happen as I have had all the Antibiotics I need!
J
Jan Cunningham
12 years ago
I have chronic Lyme's Disease and need long term antibiotic treatment. I am trying to get it in the UK and the struggle with the debilitating symptoms combined with the effort of getting this treatment, the fear and despair that I won't is dominating my life
A
Andy Horsley
12 years ago
This is a large public health problem, ignorance has caused me years of illness, suffering and debilitating problems, each symptom being treated in isolation until I became my own physician and worked out what was happening. I now have Chronic Lyme and life is very difficult. I would not want medical and public ignorance to debilitate another individual.
B
Barbara Paton
12 years ago
Bitten in 2008, EM rash and neck and shoulder pain. 5 wks antibiotics, symptomatic from Jan 2010. Off work 5/2010 to 6/2011. Back at work since but if stop antibiotics, symptoms return within 1 week. Very little useful support from NHS apart from the pain clinic.
H
Helen Harvey
12 years ago
Had lyme undiagnosed for 16 years. Doctors not interested one bit. Got bitten 1997 in Western Australia. Had rash . Finally recovering. Even paid to see GP specialist who was so rude to me I complained to GMC. The arrogance and ignorance of doctors towards this disease is shocking. Just very relieved to have found homeopathy which is curing me.
J
Jacqui Smith
12 years ago
We need doctors to start recognising this disease and initiating treatment promptly and we need specialist centres to help those affected long-term in a holistic way.
J
jacqui butterworth
12 years ago
26yrs of being told I am just imagining my symptoms-sick of the UK NHS
T
Tina Nelson
12 years ago
It shouldn't need a petition to make politicians take action on this issue. Very sad that people need to resort to this just to receive adequate medical care in the UK - shameful.
L
lisa TILLING
12 years ago
there must be lots of people suffering with lymes and not been diagnosed correctly as most doctors dont even want to do blood test
M
maq kashmiri
12 years ago
Fight Lyme! Fight the governments negligence! Fight the negligent doctors! If the patients cant then their families will!
All those who have stood in the way, be ready for the repercussions of your negligent actions!
J
jacqui butterworth
12 years ago
after 26yrs of ignorance-denial that I am ill-I am angry at the way doctors behave towards this illness
H
HS
12 years ago
Been living with Lyme for a year now. It completely destroyed my life until a few months ago when I finally tested positive via IgeneX and the german labs. Since beginning treatment I am well on my way to recovery.
I had approached several GPs and even the infectious disease unit in my area, and I was turned away by all of them, after being told there was nothing wrong with me. I am a 23 yo very fit and otherwise healthy female. Before my illness I rock climbed, skied, mountain biked, you name it, but last year I was so unwell I could barely leave the house to meet my friends for a drink! I do not understand how a doctor can respond to that with "there's nothing wrong with you".
My GP is still very sceptical about the tests and my diagnosis, despite the fact that the antibiotics have done me the world of good. I am now self-treating and visiting the Well-one clinic because I have received no support from the NHS. This has cost me £1500 so far, more than 10% of my yearly income. This is utter madness, the NHS has to do something!!
S
Suraiya Kashmiri
12 years ago
I have had Lyme disease for 11 years. I have become disabled and can no longer look after myself. I have chronic pain and many many other problems with my health yet no doctor has tried to help me!
I finally had a private test done in 2013 and my test shows that I have antibodies to P39 KDa Borrelia Burgdorferi and the doctors have told me I do not have Lyme disease!
I am dying slowly and and in great pain and I need help.
G
gerry brierley
12 years ago
We demand action to meet the specific needs stated in this petition NOW!
M
Madalyn Bartman
12 years ago
We NEED to raise awareness.
S
svott joyner
12 years ago
all results normal, my job is pest control so the odds of contracting lyme are higher than most, all symptons, off work now for 4 months, still no diagnosis,help. I can see my health declining. no antibiotics, this is madness, utter madness
O
Owen Ryder
12 years ago
Money needs to be spent on investigating how to diagnose and treat this disease. I've found the information so far very confusing and support negligible.
R
R Roberts
12 years ago
This is a wake up call -- we need everyones help
N
naomi cassman
12 years ago
Lyme has given me the weirdest, saddest, difficult, surreal, lonely, confusing journey anyone could possible imagine - except a Lyme sufferer
I was diagnosed with Lyme Disease by the NHS in 1996, unfortunately was given too little antibiotics, too late. I have been left all these years without treatment by the NHS. Treatment I have received, I have had to pay for myself privately. I am still ill. In all these years the NHS has not changed their policy of denial of Disseminated Lyme disease, despite much evidence to the contrary. A change is long overdue.
I have suffered from Lymes Dissease for a year now, but the Consultant says This can't happen as I have had all the Antibiotics I need!
I have chronic Lyme's Disease and need long term antibiotic treatment. I am trying to get it in the UK and the struggle with the debilitating symptoms combined with the effort of getting this treatment, the fear and despair that I won't is dominating my life
This is a large public health problem, ignorance has caused me years of illness, suffering and debilitating problems, each symptom being treated in isolation until I became my own physician and worked out what was happening. I now have Chronic Lyme and life is very difficult. I would not want medical and public ignorance to debilitate another individual.
Bitten in 2008, EM rash and neck and shoulder pain. 5 wks antibiotics, symptomatic from Jan 2010. Off work 5/2010 to 6/2011. Back at work since but if stop antibiotics, symptoms return within 1 week. Very little useful support from NHS apart from the pain clinic.
Had lyme undiagnosed for 16 years. Doctors not interested one bit. Got bitten 1997 in Western Australia. Had rash . Finally recovering. Even paid to see GP specialist who was so rude to me I complained to GMC. The arrogance and ignorance of doctors towards this disease is shocking. Just very relieved to have found homeopathy which is curing me.
We need doctors to start recognising this disease and initiating treatment promptly and we need specialist centres to help those affected long-term in a holistic way.
26yrs of being told I am just imagining my symptoms-sick of the UK NHS
It shouldn't need a petition to make politicians take action on this issue. Very sad that people need to resort to this just to receive adequate medical care in the UK - shameful.
there must be lots of people suffering with lymes and not been diagnosed correctly as most doctors dont even want to do blood test
Fight Lyme! Fight the governments negligence! Fight the negligent doctors! If the patients cant then their families will! All those who have stood in the way, be ready for the repercussions of your negligent actions!
after 26yrs of ignorance-denial that I am ill-I am angry at the way doctors behave towards this illness
Been living with Lyme for a year now. It completely destroyed my life until a few months ago when I finally tested positive via IgeneX and the german labs. Since beginning treatment I am well on my way to recovery. I had approached several GPs and even the infectious disease unit in my area, and I was turned away by all of them, after being told there was nothing wrong with me. I am a 23 yo very fit and otherwise healthy female. Before my illness I rock climbed, skied, mountain biked, you name it, but last year I was so unwell I could barely leave the house to meet my friends for a drink! I do not understand how a doctor can respond to that with "there's nothing wrong with you". My GP is still very sceptical about the tests and my diagnosis, despite the fact that the antibiotics have done me the world of good. I am now self-treating and visiting the Well-one clinic because I have received no support from the NHS. This has cost me £1500 so far, more than 10% of my yearly income. This is utter madness, the NHS has to do something!!
I have had Lyme disease for 11 years. I have become disabled and can no longer look after myself. I have chronic pain and many many other problems with my health yet no doctor has tried to help me! I finally had a private test done in 2013 and my test shows that I have antibodies to P39 KDa Borrelia Burgdorferi and the doctors have told me I do not have Lyme disease! I am dying slowly and and in great pain and I need help.
We demand action to meet the specific needs stated in this petition NOW!
We NEED to raise awareness.
all results normal, my job is pest control so the odds of contracting lyme are higher than most, all symptons, off work now for 4 months, still no diagnosis,help. I can see my health declining. no antibiotics, this is madness, utter madness
Money needs to be spent on investigating how to diagnose and treat this disease. I've found the information so far very confusing and support negligible.
This is a wake up call -- we need everyones help
Lyme has given me the weirdest, saddest, difficult, surreal, lonely, confusing journey anyone could possible imagine - except a Lyme sufferer