And still we suffer! We require: Training for ALL medical professionals re: Lyme disease and co-infections. Research into more accurate testing and new drugs to treat Lyme and co-infections. But above all else, Lyme patients to be treated with dignity, cared for, treated and listened to by All medical professionals.
C
Claire White
12 years ago
My experience of having this disease has been dreadful and the attitude of NHS staff has only made it worse, I have deen called paranoid, depressed, a time waster, attention seeking, its only because I ended up in Hospital in iv antibiotics that a consultant listened to what I have been though for 8 years that I had a blood test for Lyme. This situation has to end Lyme is resposible for all sorts of symptoms. Lets get to grips with the cause rather than the symptoms.
W
Wendy anderson
12 years ago
The ignorance to this disease needs to stop.
If I had any other disease I wouldn't be refused treatment!
I have lost a career as a commercial photographer which i loved and lovely employees.
I just hope my children don't lose a mum and my husban lose a wife!
A
Anonymous
12 years ago
Doctors need to see the evidence and provide care for Lyme Disease.
A
Anonymous
12 years ago
Doctors need to look at the scientific / diagnostic evidence and provide real long term health care for Lyme Disease.
J
Jessica
12 years ago
Suffered with Lyme for nearly 15 years before finally getting an answer to what caused all my symptoms. More information and knowledge about this to prevent others having their life's trashed!
A
Anonymous
12 years ago
This disease needs to be taken more seriously. Better tests developed and proper treatment and sooner is of the utmost urgency.
J
James Campbell
12 years ago
Featured
My daughter suffered very severely for years and was about to be pensioned off before going privately to a Danish/German enlightened Consultant. After 20 weeks of intensive intravenous treatment, she has her life back and is back at work ful time.
G
GILLIAN REESE
12 years ago
It's high time the UK medical profession got a grip with Lyme and other tick borne diseases contracted here in the UK. Through their determined pompus ignorance they are causing misery to many thousands of tick borne diseases sufferers. As a result of this theses folks' inability to enjoy a full and active and useful life is costing the country billions. Doctors PLEASE LISTEN TO YOUR PATIENTS AND READ THE SCIENCE. Presently the patients are far ahead of all of you in their knowledge about these treatable infections!
J
jacqui butterworth
12 years ago
26yrs of being ignored by NHS doctors-Really is terrible
K
Katarzyna Śmigowska
12 years ago
I suffer from Lyme Disease
V
Violet Vost
12 years ago
Have seen for myself what this can do to a person.
C
claire johnstone
12 years ago
Awful disease
L
lorraine billington
12 years ago
My eldest sister has it from a tick bite when she was in New Jersey she does not deserve to suffer as she is a lovely person x
J
Janet Johnson
12 years ago
We need help and support, not pushed aside and offered anti-depresents, I am ill, not depressed. I am in x
B
Bev Mossman
12 years ago
My good friend is suffering from this disease and it's not nice. : (
D
DEBORAH COLLINS
12 years ago
I am suffering badly from Lymes, there is very little help and understanding in the UK and something needs to be done about it
L
Lynn Law
12 years ago
My hubby has recently been tested for Lyme at a private immunology clinic and we have our fingers very firmly crossed for a positive result for Lyme.
For the last 10 years, he has been passed from pillar to post, from one consultant to another, and they have all said that it is a psychological problem and that his symptom of an epileptic type seizure is 'complete nonsense', 'psychological attention seeking' and a completely inappropriate reaction to a normal situation'. In fact testing at the clinic has revealed that he has dangerously low levels of oxygen and carbon dioxide in his tissues which causes extreme debilitating fatigue and when he gets anxious or emotional, the levels drop to a point where he exhibits epileptic type symptoms. NOT all in his head after all.
In very stark contrast to the last 10 years of extreme fatigue, regular seizures, confusion and severe depression, only a matter of a couple of months prior to his illness, my hubby and myself were riding around the Rocky Mountains on our motorbike having a wonderful time riding all through the amazing scenery and feeling fantastic with bags of energy. He did have a rash but it wasn't a typical bullseye and we just put it down to a heat rash as he was wearing thick riding socks in extremely hot weather.
He has previously been given a diagnosis of narcolepsy but not completely fitting the criteria, depression, Lewy Body Dementia but not really fitting the criteria and finally after extensive psychological testing they decided on FrontoTemporal Dementia but admit that they have never seen a set of symptoms like his. This is because they have always assumed it is 'all in his head' when in fact if they had just tested for Lyme years ago, he could have been successfully treated and I would have my hubby back living a wonderful life and our children would have their dad back. Our grandchildren have never met the true person that is my husband. They have only known this man who seems to sleep all the
R
Rob jenkins
12 years ago
With the increase in the rat population this is becoming a big issue
And still we suffer! We require: Training for ALL medical professionals re: Lyme disease and co-infections. Research into more accurate testing and new drugs to treat Lyme and co-infections. But above all else, Lyme patients to be treated with dignity, cared for, treated and listened to by All medical professionals.
My experience of having this disease has been dreadful and the attitude of NHS staff has only made it worse, I have deen called paranoid, depressed, a time waster, attention seeking, its only because I ended up in Hospital in iv antibiotics that a consultant listened to what I have been though for 8 years that I had a blood test for Lyme. This situation has to end Lyme is resposible for all sorts of symptoms. Lets get to grips with the cause rather than the symptoms.
The ignorance to this disease needs to stop. If I had any other disease I wouldn't be refused treatment! I have lost a career as a commercial photographer which i loved and lovely employees. I just hope my children don't lose a mum and my husban lose a wife!
Doctors need to see the evidence and provide care for Lyme Disease.
Doctors need to look at the scientific / diagnostic evidence and provide real long term health care for Lyme Disease.
Suffered with Lyme for nearly 15 years before finally getting an answer to what caused all my symptoms. More information and knowledge about this to prevent others having their life's trashed!
This disease needs to be taken more seriously. Better tests developed and proper treatment and sooner is of the utmost urgency.
My daughter suffered very severely for years and was about to be pensioned off before going privately to a Danish/German enlightened Consultant. After 20 weeks of intensive intravenous treatment, she has her life back and is back at work ful time.
It's high time the UK medical profession got a grip with Lyme and other tick borne diseases contracted here in the UK. Through their determined pompus ignorance they are causing misery to many thousands of tick borne diseases sufferers. As a result of this theses folks' inability to enjoy a full and active and useful life is costing the country billions. Doctors PLEASE LISTEN TO YOUR PATIENTS AND READ THE SCIENCE. Presently the patients are far ahead of all of you in their knowledge about these treatable infections!
26yrs of being ignored by NHS doctors-Really is terrible
I suffer from Lyme Disease
Have seen for myself what this can do to a person.
Awful disease
My eldest sister has it from a tick bite when she was in New Jersey she does not deserve to suffer as she is a lovely person x
We need help and support, not pushed aside and offered anti-depresents, I am ill, not depressed. I am in x
My good friend is suffering from this disease and it's not nice. : (
I am suffering badly from Lymes, there is very little help and understanding in the UK and something needs to be done about it
My hubby has recently been tested for Lyme at a private immunology clinic and we have our fingers very firmly crossed for a positive result for Lyme. For the last 10 years, he has been passed from pillar to post, from one consultant to another, and they have all said that it is a psychological problem and that his symptom of an epileptic type seizure is 'complete nonsense', 'psychological attention seeking' and a completely inappropriate reaction to a normal situation'. In fact testing at the clinic has revealed that he has dangerously low levels of oxygen and carbon dioxide in his tissues which causes extreme debilitating fatigue and when he gets anxious or emotional, the levels drop to a point where he exhibits epileptic type symptoms. NOT all in his head after all. In very stark contrast to the last 10 years of extreme fatigue, regular seizures, confusion and severe depression, only a matter of a couple of months prior to his illness, my hubby and myself were riding around the Rocky Mountains on our motorbike having a wonderful time riding all through the amazing scenery and feeling fantastic with bags of energy. He did have a rash but it wasn't a typical bullseye and we just put it down to a heat rash as he was wearing thick riding socks in extremely hot weather. He has previously been given a diagnosis of narcolepsy but not completely fitting the criteria, depression, Lewy Body Dementia but not really fitting the criteria and finally after extensive psychological testing they decided on FrontoTemporal Dementia but admit that they have never seen a set of symptoms like his. This is because they have always assumed it is 'all in his head' when in fact if they had just tested for Lyme years ago, he could have been successfully treated and I would have my hubby back living a wonderful life and our children would have their dad back. Our grandchildren have never met the true person that is my husband. They have only known this man who seems to sleep all the
With the increase in the rat population this is becoming a big issue
Stop sticking your heads in the sand NHS!