UK Lyme Petition

My daughter has this dreadful decease and having to pay for private treatment.the government needs to make this a .notifiable decease

my daughter has chronic lyme and we cant get treatment for her in Ireland-we are at our wits end-we need help and advice.

I would like to see Lyme Borreliosis mad a notifiable disease.

I was diagnosed in 2006 with Lyme Neuroborreliosis still living with the effects of a late diagnoses, work as volunteer with tick talk ireland

Awareness is everything

I have a young friend with this illness, and I know the effect that it has had on her quality of life. Health services must be aware of this disease and act on it fast. Sufferers must have full support.

Daughter is undergoing tests for Chronic Lyme disease. . The NHS is appalling here in South East Wales uk .she has seen numerous GP's , specialists. All who have told her just to live with her symptoms get on with it :( She has now had tests done privately at the Breakspear clinic Hemel Hempstead and we are waiting on a confirmation test result. Worried sick we won't have the finances to treat her without help from the NHS.

Diagnosed privately this year after a 10 year illness following a tick bite. Classic symptoms

It took 4 years to get a diagnoses..this is not acceptable. I showed the rash to GP who did not recognise it. I had 6 months on doxycycline but 6 years on I'm not sure if I'm cured as again there's no reliable test.

Two of my children have been tested positive for lyme in germany yet NHS refuse to treat disregarding symptoms that their gp admits he does not know about reverting to porton down as the speacialists. Huge herxheimer reactions on abx doxy ignored as was target rash. No complete symptom check carried out by any uk doctor.

keep up the good work. health and happiness ++

Please get this disease recognised in the UK Too many people are suffering and not getting the correct treatment from misdiagnosis Thank you

This is not OK. my friend is very ill and has had to leave the UK to find treatment in germany. this is incredibly expensive and will take years. The UK needs to act now to prevent, detect and treat this disease.

This is a very important cause!

My sister should not have to live as a medical refugee because the uk will not treat her chronic Lyme disease.

We need recognition and treatment of this very serious disease we are being totally ignored and misdiagnosed lives like mine ruined for no reason but ignorance an negative test result for Lyme does not rule out active infection yet it is used and solely relied upon by doctors despite people having very obvious symptoms and history I had an Em rash , I had the symptoms yet I was dismissed told I had a virus I am now completely debilatated and disabled housebound and reliant on others WHY ? For the sake of antibiotics this is madness

Something needs to be done about this life ruining disease !!!

Having had a doctor refuse to give a diagnosis despite the presence of the rash...he was going for the 100% unreliable blod test. So having seen a healthy fit man become almost crippled over a year, we need to shout about this.

To help my son who due to Lymes is missing out on his children's lives and his wife. No positive help from the NHS. Lives in continuous pain and fatigue.Horrendous disease, a living nightmare destroying lives of the victims and their loved ones.

Very informative thank you Andy