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Epilepsy Care in Ontario

Epilepsy Care in Ontario

74 signatures 26 to reach 100
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Rob N. signed
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Melane D. signed
Started by Anonymous 14 years, 2 months ago

**THIS PETITION IS NOW CLOSED**


Deadline to Sign: Sunday, July 1st, 2012. 


Every year over 6500 Ontario families will experience a loved one having their first seizure.


Currently there is no organized system of care in Ontario for people with epilepsy and no government funded support system. There is not even a standardized approach to diagnosis and treatment. The Ontario Health Technology Advisory Committee's (OHTAC) report 'Epilepsy Care in Ontario' recommends how to change that! 


OHTAC's recommendations include improving and standardizing services to ensure that people with epilepsy in Ontario are accurately diagnosed, receive the appropriate care, and have a greater opportunity to find out if they are surgery candidates. 

(To see the full report please go to: http://www.ohqc.ca/en/mas/ohtac_rec_openComment.html)


Stakeholders are being asked to comment on these recommendations by the end of this week. Your support will help OHTAC convince the Ministry of Health and Long-Term Care to implement these necessary changes to epilepsy care in Ontario. 


What is missing from these recommendations? The report identifies that people with epilepsy are more likely to suffer from poor mental health, social isolation, and stigma. However, it never mentions the invaluable role that community-based epilepsy organizations play in helping to alleviate this suffering in the lives of those living with epilepsy and seizure disorders. Their services include employment support, counselling, advocacy, and social programs, which help combat the social isolation felt by too many of those living with epilepsy. We encourage OHTAC to include this significant missing piece in the final version of their report to the Ministry. 


Sign this petition to show OHTAC your support for a well-rounded action plan that addresses both medical services and community-based support services. 


To send personalized comments please e-mail them to: [email protected]


Thank you for your support. 


Updates

June 29, 2012

The momentum behind this request is heavy and constant. It is exhausting to keep pushing for changes that seem so obvious yet remain out of reach. I am still here because the need for a better system is not going away.

8 Comments

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Robert Gibson
14 years ago Featured

way too many people are falling through the cracks. do it for the kids who have no voice in this.

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Mike Barnes
14 years ago Featured

standard care is needed now!! my sister waits months just to get a basic appointment. this is ridiculous.

J
Jen Sanders
14 years ago Featured

finally! hope this actually changes things for ontario families.

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Linda Okonkwo
14 years ago Featured

this is so overdue. people shouldnt have to fight this hard just to get decent care.

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Sarah Griffin
14 years ago Featured

My son has had epilepsy for 5 years and we are tired of the runaround. It is about time the government stepped up and did something helpful.

D
David Mathis
14 years ago Featured

fix the system so nobody has to go through what we went through. it was a nightmare trying to find a doctor who actually knew what they were doing.

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peter emmily
8 years ago

I myself had epilepsy. Not to this extreme with grand mail seizures daily, but it still affects me in other ways daily. I am on medicine, which has slowly stopped working and I notice my twitches, blank stares, and memory loss (even in the midst of a sentence) starting to return. The side effects of this drug is noticeable and painful to deal with. It is so strong that if a normal person were to take my dose, they will die of an overdose.when i was going through the internet i come across Owens post thanking Dr Lewis hill for curing his seizure problem, and i got the contact of Dr Lewis hill and i quickly contacted him then he made me to know that the medication is 100% cure, and that was how i got the medicine which i used, after which i went for medical test It worked! Over a year now, i have not show any symptoms of seizure and I believe that am cure permanently if you need his help email him on [email protected]

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Amber Emile
9 years ago

I had an epileptic fit for the first time 5 years ago in the middle of supermarket on my birthday of all days, wasn't fun for my kids to see it, it still haunts, I've tried many anticonvulsants and had never been able to stop the seizures. Surgery was not an option. I was still an epileptic patient, who have completely lose hope. As the problem is always embarrassing and disturbing. While surfing the internet one fateful day, I learned about Doctor on the internet called Lawson . I contacted him with some info and I ordered for the Herbal medication and used the medication for 6 months, though hesitantly, considering the fact that I have done a lot of procedure. After which I went for medical test It worked! I've been seizure free, Over a year now, I have not show any symptoms of seizure and I believe I am cure if you want to contact him at this email [email protected]

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