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Change in the treatment of Neurological conditions: Hydrocephalus, Chiari…
Flat Head Syndrome
Updates
June 15, 2014
The feedback received from the medical community confirms that the current terminology creates significant barriers to proper diagnosis. Work is currently underway to draft a formal proposal that addresses these naming inaccuracies for the relevant authorities.
June 15, 2014
The momentum behind this effort has grown beyond my initial expectations. It is clear that the need to reclassify this condition resonates with a great number of people who face the same frustrations.
5 Comments
I have chronic Cluster with daily attacks. The pain really is far worst than headaches, and people that suffers from this deserve a more accurate definition. At least for the clearity of the diagnosis.
my husband has these every single day and the word headache just makes people think its like a regular migraine. it is so much worse than that and the doctors around here dont even know what it is half the time.
Imagine your eye becomes sentient and tries to claw its way out of your skull while something else shoves it back in. It’s a 100/10 level of agony that strips away your humanity. You sit in the dark, laughing maniacally at the irony of being alive, praying for an end because you can’t tell where the pain starts and 'you' end anymore. It is the most lonely, pointless hell on earth....-The term headache just fuels the irony that the "Worst pain imaginable"- is recognized as a "Just drink some water"- minor ache.
Suicide Nueralgia
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Status: Closed — this petition is no longer accepting signatures.
Final supporters
Updates
June 15, 2014
The feedback received from the medical community confirms that the current terminology creates significant barriers to proper diagnosis. Work is currently underway to draft a formal proposal that addresses these naming inaccuracies for the relevant authorities.
June 15, 2014
The momentum behind this effort has grown beyond my initial expectations. It is clear that the need to reclassify this condition resonates with a great number of people who face the same frustrations.
5 Comments
Greater help and understanding is needed for people who suffer from this very very painful condition. Better medication and supportive trained medical help is needed.
I have chronic Cluster with daily attacks. The pain really is far worst than headaches, and people that suffers from this deserve a more accurate definition. At least for the clearity of the diagnosis.
my husband has these every single day and the word headache just makes people think its like a regular migraine. it is so much worse than that and the doctors around here dont even know what it is half the time.
Imagine your eye becomes sentient and tries to claw its way out of your skull while something else shoves it back in. It’s a 100/10 level of agony that strips away your humanity. You sit in the dark, laughing maniacally at the irony of being alive, praying for an end because you can’t tell where the pain starts and 'you' end anymore. It is the most lonely, pointless hell on earth....-The term headache just fuels the irony that the "Worst pain imaginable"- is recognized as a "Just drink some water"- minor ache.
Suicide Nueralgia
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Greater help and understanding is needed for people who suffer from this very very painful condition. Better medication and supportive trained medical help is needed.