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Intractable Pain

Intractable Pain

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Started by Charmaine Charmaine 6 years, 5 months ago
Intractable Pain - What is it?

It’s a pain disorder, a disease on its own that MUST be treated separately from chronic pain.

The reason being is it fails to respond to treatments and therapies used on chronic pain patients. Intractable pain is constant, incurable, uncontrollable, unmanageable, excruciating, unrelenting pain. These patients are at risk of heart attack and stroke as their blood pressure and heart rate become dangerously elevated due to the high levels of pain. Their pain is of such severity that it dominates nearly every conscious moment, produces debilitating physical and mental symptoms. Without specific medical management these patients will be predominantly bed and house bound. They suffer from depression, attention deficit, confusion and suicidal tendencies.

Intractable Pain is caused by a variety of medical conditions including, but not limited to the following: Arachnoiditis, Neuropathies, Degenerative Disc Disease (post surgery and non operable) Fibromyalgia, Complex Regional Pain Syndrome, Reflex Sympathetic Dystrophy, Systematic Lupus Erythematous, Abdominal Adhesions, Migraine Vascular Headache, Headache (post trauma), osteoporosis...

140 billion Australia spent on Chronic Pain in 2018 however, it DOES NOT recognise Intractable Pain. America past laws many many years ago for Intractable Pain Patients. Australia needs to do the same. I am seeking the answer to this from our government and pain organisations. If you agree please help by signing the attached petition to help Intractable Pain to be identified and treated. Your support means the world to them.

Updates

February 25, 2020

Seeing this momentum grow brings a sliver of hope to those of us who have spent years living in the silent, suffocating grip of this pain. It feels like the reality of our suffering is finally breaking through the walls of indifference that kept us hidden for so long.

13 Comments

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Anonymous
2 years ago Featured

I have intractable pain and can’t find treatment although my state has intractable pain laws. This is the reason why I think of suicide every day. Eventually I’ll be bed bound and die from a heart attack or stroke if I can’t get treatment. I think everyone deserves some quality of life. This is inhumane to let people suffer for no reason.

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Mark Adeyemi
6 years ago Featured

Its about time we get recognized. My bp spikes so high from the pain I feel like my heart is gonna explode. Fix the system.

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Sarah Olsen
6 years ago Featured

Living with this every single day is pure torture. Doctors just dont get that my body cant handle normal chronic pain treatments. We need help now before more people give up.

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Shan Worreschk
6 years ago Featured

The terminology when describing what we suffer needs to change. Intractable needs to have its own category even in billing Medicare. Huge difference between chronic and intractable and therefore our medical system needs to emulate those changes.

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Annette McKinnon
6 years ago Featured

Intractable Pain never ends, our suffering takes over our bodies affecting Heart And most parts of our bodies, we deserve to be treated Seperatly from Chronic Pain, our whole body is taken over by this Intractable Pain that destroys us,

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Charmaine Charmaine · petition starter
6 years ago Featured

Yes Intractable Pain Patients deserve to be treated separately from Chronic Pain Patients

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Derek Morrison
6 years ago

Way Overdue

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Jade merton
6 years ago

❤️❤️❤️

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