Sarepta Therapeutics به شرکت محترم
ما امضاکنندگان این پتیشن، از شما درخواست میکنیم که با لطف و حمایت خود، به پویا که به بیماری دیستروفی عضلانی دوشن مبتلاست، کمک کنید.
داروی الویدیس امید بزرگی برای بهبود کیفیت زندگی بیماران مبتلا به این بیماری است.
:از شما تقاضا داریم تا
این دارو را بهصورت رایگان در اختیار پویا قرار دهید.1
2پویا را در برنامهها و آزمایشات بالینی مرتبط با این دارو مشارکت دهید.
بیماری دوشن تاثیرات مخربی بر زندگی افراد و خانوادههایشان دارد. پویا و خانوادهاش با چالشهای بسیاری مواجه هستند و دسترسی به دارو میتواند تغییر بزرگی در زندگی او ایجاد کند.
از شما خواهشمندیم که با اقدام انساندوستانه خود، نور امیدی برای پویا و همه بیماران مشابه روشن کنید.
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To Sarepta Therapeutics,
We, the undersigned, kindly request your support and generosity in helping Pouya, a young boy battling Duchenne Muscular Dystrophy.
The drug "Elvidis is a significant hope for improving the quality of life for patients with this devastating condition. We humbly ask that you:
1. Provide this medication to Pouya free of charge.
2. Include Pouya in clinical trials and programs related to this drug.
Duchenne Muscular Dystrophy has a profound impact on the lives of children and their families. Pouya and his family are facing numerous challenges, and access to this medication could make a life-changing difference for him.
We urge you to act with compassion and humanity to bring hope to Pouya and others like him.
With heartfelt gratitude,
Updates
December 10, 2024
We just hit five hundred signatures for Pouya. Post this link on your Facebook page right now so we can keep the pressure on Sarepta Therapeutics.
Reached 500 supporters
December 7, 2024
Reached 100 supporters
December 5, 2024
December 2, 2024
We are gaining momentum and our target of 100 signatures is within reach. Text this link to three friends right now to help us break through this threshold.
233 Comments
I stand in support of this petition. Pouya deserves a chance to fight this disease.
لطفا با پشتیبانی از این پست، صدای این جوان و سایر بیماران باشیم تا داروی مورد نیاز تهیه و به ایران برسد.
Please help Pouya and let him access to this medication and treatment to have a chance to live and change his life
لطفا این پسر جوان پویا را کمک کنید تا زنده بماند. امید کمک به موقع برسد و جانش نجات داده شود. یک دنیا ممنون.
Hi there, I really appreciate if you can help the cheerful, hopeful and beloved Pouya by sending him the free of charge medicine of Elevidys he needs to fight with the disease of Duchenne Muscular Dystrophy (DMD) and let him to be part of your clinical trials and programs related to this medicine. Thank you.
Pls help him
Please save poya
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Sarepta Therapeutics به شرکت محترم
ما امضاکنندگان این پتیشن، از شما درخواست میکنیم که با لطف و حمایت خود، به پویا که به بیماری دیستروفی عضلانی دوشن مبتلاست، کمک کنید.
داروی الویدیس امید بزرگی برای بهبود کیفیت زندگی بیماران مبتلا به این بیماری است.
:از شما تقاضا داریم تا
این دارو را بهصورت رایگان در اختیار پویا قرار دهید.1
2پویا را در برنامهها و آزمایشات بالینی مرتبط با این دارو مشارکت دهید.
بیماری دوشن تاثیرات مخربی بر زندگی افراد و خانوادههایشان دارد. پویا و خانوادهاش با چالشهای بسیاری مواجه هستند و دسترسی به دارو میتواند تغییر بزرگی در زندگی او ایجاد کند.
از شما خواهشمندیم که با اقدام انساندوستانه خود، نور امیدی برای پویا و همه بیماران مشابه روشن کنید.
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To Sarepta Therapeutics,
We, the undersigned, kindly request your support and generosity in helping Pouya, a young boy battling Duchenne Muscular Dystrophy.
The drug "Elvidis is a significant hope for improving the quality of life for patients with this devastating condition. We humbly ask that you:
1. Provide this medication to Pouya free of charge.
2. Include Pouya in clinical trials and programs related to this drug.
Duchenne Muscular Dystrophy has a profound impact on the lives of children and their families. Pouya and his family are facing numerous challenges, and access to this medication could make a life-changing difference for him.
We urge you to act with compassion and humanity to bring hope to Pouya and others like him.
With heartfelt gratitude,
Updates
December 10, 2024
We just hit five hundred signatures for Pouya. Post this link on your Facebook page right now so we can keep the pressure on Sarepta Therapeutics.
Reached 500 supporters
December 7, 2024
Reached 100 supporters
December 5, 2024
December 2, 2024
We are gaining momentum and our target of 100 signatures is within reach. Text this link to three friends right now to help us break through this threshold.
233 Comments
To all kind-hearted people around the world, Pouya is a hopeful young man battling Duchenne Muscular Dystrophy (DMD). His opportunity to continue living is critically limited, and every second counts. For Pouya and thousands of others, access to Elevidys is the only chance to survive and fight this devastating disease.
I stand in support of this petition. Pouya deserves a chance to fight this disease.
لطفا با پشتیبانی از این پست، صدای این جوان و سایر بیماران باشیم تا داروی مورد نیاز تهیه و به ایران برسد.
Please help Pouya and let him access to this medication and treatment to have a chance to live and change his life
لطفا این پسر جوان پویا را کمک کنید تا زنده بماند. امید کمک به موقع برسد و جانش نجات داده شود. یک دنیا ممنون.
Hi there, I really appreciate if you can help the cheerful, hopeful and beloved Pouya by sending him the free of charge medicine of Elevidys he needs to fight with the disease of Duchenne Muscular Dystrophy (DMD) and let him to be part of your clinical trials and programs related to this medicine. Thank you.
Pls help him
Please save poya
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To all kind-hearted people around the world, Pouya is a hopeful young man battling Duchenne Muscular Dystrophy (DMD). His opportunity to continue living is critically limited, and every second counts. For Pouya and thousands of others, access to Elevidys is the only chance to survive and fight this devastating disease.