Status: Closed — this petition is no longer accepting signatures.
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Get the UK informed about Children and Teenager's spinal illnesses
Raising Awareness of NF1
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Reached 100 supporters
February 12, 2012
8 Comments
My nephew has this and dealing with the meds is a nightmare. nobody ever knows what it is when we tell them. would be great if it was on tv
THIS NEEDS MORE ATTENTION!!! my daughter was diagnosed 5 years ago and its a constant struggle for our family.
good luck with everything. cystinosis is rarely talked about and it sucks.
Kidney transplant recipient here too. Cystinosis is tough but we gotta keep going. hope this works.
praying for a cure for all the kids fighting this.
I have 2 wonderful grandkids with this. They are my blessing!
Mother of Joanie Devine 25 yo with cystinosis.
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Status: Closed — this petition is no longer accepting signatures.
Final supporters
Updates
Reached 100 supporters
February 12, 2012
8 Comments
My son is a little over 2 years old and we just found out he had this condition I am very scared for what the future holds for him but I know god has this in his hands!!! Please help us spread awareness for this disorder!!
My nephew has this and dealing with the meds is a nightmare. nobody ever knows what it is when we tell them. would be great if it was on tv
THIS NEEDS MORE ATTENTION!!! my daughter was diagnosed 5 years ago and its a constant struggle for our family.
good luck with everything. cystinosis is rarely talked about and it sucks.
Kidney transplant recipient here too. Cystinosis is tough but we gotta keep going. hope this works.
praying for a cure for all the kids fighting this.
I have 2 wonderful grandkids with this. They are my blessing!
Mother of Joanie Devine 25 yo with cystinosis.
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My son is a little over 2 years old and we just found out he had this condition I am very scared for what the future holds for him but I know god has this in his hands!!! Please help us spread awareness for this disorder!!