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Status: Closed — this petition is no longer accepting signatures.

Irlens Syndrome funding

Irlens Syndrome funding

Closed — 86 supporters Verified

Final supporters

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Sarah H.
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D f.
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Joanne S.
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Sharla P.
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Tina P.
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Frances m.
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Renee
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Angela H.
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Patricia T.
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Tanya B.
+76 more
Started by Anonymous 14 years, 7 months ago
This petition is to help people with Irlens Syndrome get funding for any help they need to just simply get by in life. Irlens Syndrome affects the lives of 12-15% of the population. However it is easily controlled through assessment and coloured filters for both adults and children. I am a 22 year old student, I have the need to wear colour filters, however I can get no funding or financial help from the NHS. I have recently had a re-test to get the colours of my filters changed as this can often happen with sufferers. The test alone cost me £75 and then on top of that I have to pay £125 for the lenses and then the frames of my choice. Having recognised this condition since the age of 16, I am constantly disgusted that I can get no help at all. Without the glasses I really can't read for long periods of time, I often suffer with severe headaches due to this. From personal experience, I have found that when I'm reading, it tends to be on bright white paper that has a lot of writing on it, I have trouble focusing on it as the paper is just too bright for me and my brain and eyes have to work that bit harder to focus, hence the headaches. When I took the eye test, my normal reading speed of words per minute was significantly increased when the lenses were applied by 10%. At the end of the day, this is a medically recognised condition and there is no help for it sufferers. And my petition here is to change that for the future. More information about Irlens Syndromw is available at http://www.irlenuk.com

Updates

August 31, 2012

The stories coming in from people living with Irlens are heartbreaking. I am currently drafting a formal inquiry to the health board to demand they explain why this condition is excluded from essential coverage. Post this link on your Facebook page and email your local MP to force a response.

August 31, 2012

Reaching this level of visibility proves the need for Irlens funding is widespread. Post this link on your social media accounts today to make sure our reps see the momentum we are building. Email your local representative right now to demand they address the lack of NHS support for these essential filters.

16 Comments

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Frances may
8 years ago Featured

My son is 7 with severe Irlens it took me weeks to find anyone to test him and then I had to save to pay for tests and lenses this will be payments I will have to make life long so he can have reduced symptoms of his condition it’s disgusting there is no help for it and it is still not really recognised by the NHS pushing people to pay extortionate private fees.

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Emily
10 years ago Featured

I'm a sufferer and haven't been able to have coloured lenses in over two years due to there being no funding and tests and tinting costing almost £200 I care for my father as he and my mother can't work

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Anonymous
10 years ago Featured

I have irlen and i cant afford to get it fixed Im stuck as a student who cant read properly and is suffering in their education because its not seen as a serious condidtion Im doing Alevels and going into University. Is that not serious enough for the goverment??

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Genevieve Crewe
12 years ago Featured

Both my children have irlens - one especially bad. Thankfully, after years of complaining a school teacher finally took my complaints about her hatered of reading seriously. It took 2 diagnosis before we got her the correct colour glasses and several hundred pounds, but thanks to irlens east we got her the help she needed and academically the improvement was staggering. We were lucky we were able to afford the tests but many sufferers aren't so I totally support this petition!

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Samantha Jones
12 years ago Featured

I'm 37yrs old and I was assessed by college,just by chance,and found that I have irlen.Since reading with aqua overlays and writing on green paper my concentration and ability to get work.done faster has increased immensely. Roll on uni next yr x

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Kirsty SEAGER
12 years ago Featured

I have been diagnosed with irlen syndrome recently by a irlen centre by a checklist he says I have quite some serious problems and that can only be treated with an irlen glasses and they need to send me for a full evaluation including the glasses . I can't afford this even if I use my DLA my whole care package would disappear quick which isn't enough to live on

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Sarah Hayward
4 years ago

Myself and daughter have vista mesh lenses that are soo expensive. No formal diagnosis but glasses help instantly

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Sharla Payne
8 years ago

My 10 year old son has just been diagnosed and funding support is essential