This petition is about fixing all the structural and systemic problems, that are keeping MDHHS services from reaching families. Please help us help these families. There is a lot of work to do and your signature helps.
To the Michigan Legislature, MDHHS, PIHPs and all applicable officials, staff and directors
Contact:
Chris Dardzinski: 313.550.8922 [email protected]
Agenda items are the input of Michigan parents dealing with the current system. I'm working on getting this in to legislation and law on their behalf.:
Item 1:
No agency that controls Medicaid Dollars can benefit from unused funding. Restrict all funding agency employees from receiving any bonuses from unused funds.
Item 2:
Create system change for a separate entity that has no relation with the agency to handle all recipient rights complaints, grievances, and appeals. All complaints must be handled by a neutral unbiased 3rd party.
Item 3:
Provide advocate departments that aid individuals to properly submit ALL complaints and appeals.
Item 4:
Provide Self-Directed Handbook to all recipients on Self-Directed options and how the Self-Directed services are to be conducted with Budget Authority and in detailed explanation on what a Person Center Planning is and how the individual budget supports the Individual Plan of Service. All Self-Directed Recipients must be provided with a service Rate Sheet to understand and know how much the Recipient can pay a Direct Caregiver to prevent wrongful capping of Direct Caregiver pay wages.
Item 5:
Audit performed at the end of fiscal year on Financial Management Service (FMS) agencies in contract with the PIHP on how much budgets were utilized by recipients and how much budgets are sent back to PIHP.
Item 6:
PIHP must take all retracted budgets and put Community Mental Health Medicaid Dollars back to the community with providing Mental Health and Disability Resources and Mental Health and Disability Resource Centers to provide workshops on Independent Living Skills, Communication workshops, Sensory Regulation workshops. What Medicaid Dollars that are being dissolved from the current systemic administration layers needs to be moved to provide Mental Health and Disability Resource Centers that provide services to allow a Disabled or Mentally ill person to be stabilized in their home and communities. This budget line allocation will help prevent institutionalization and create jobs in the communities through the entire State. This push for contracted agencies to do their job by providing the resources will protect and support our communities and our police/ first responders by prevention of crises with the mentally ill or disabled receiving the behavioral and disability services.
Item 7:
Audit on how much Self-Directed budgets are retracted from the Disabled person’s Self-Directed Budget account that the PIHP receives and compare with the budget number that is sent back to the PIHP's general fund.
Item 8:
Audit what amount in retracted Self-Directed budgets MDHHS receive from the PIHP’s and compare with the budget number that is sent to MDHHS general fund.
Item 9:
Remove the systemic multiple administrative layers that are charging fees from the
Medicaid funding that should be going directly to Mental Health and Disability services.
This systemic issue is causing the Direct Caregiver pay wage that starts at $39 an hour oA
of the MDHHS “consideration rate sheet” layer to go through the 10 Prepaid Inpatient
Health Plan Networks, then through the 46 Community Mental Health Departments, then
through the contracted Direct Caregiver StaAing Agencies, to finally make it to the Direct
Caregiver being paid $11-$15.50 an hour after the Medicaid dollars make it down the
Systemic Chain of Command. Cut out the middleman (layers of contracts) and streamline
service funding from the State to the Support Coordination agency to get the services in the
homes and communities. This solution will create many jobs and fill Direct Caregiver
positions in all communities across the state and provide the most disabled the support
they need to survive.
We need Mental Health and Disability Resource Centers more than ever right now. Centers
that will provide families with parent training on how to use communication devices and
how to help regulate sensory disorders to stabilize our homes and communities as much
as possible.
Training parents and families would relieve Mental Health Medicaid Dollars because all
parents would want this training that would provide stability and prevention of putting
children in State Ran Hospitals that cost even more. No child should be ripped from their
homes when MDHHS is in contract to protect the family unit. Parents and families would
provide this crises prevention and medical proven prevention treatments to all caregivers
that support their loved one.
Item 10:
The following MDHHS contracted services must be registered, certified and fully licensed through LARA:
Category 1: Legal Guardian services, when the service is provided by a business. This does not apply to individuals who are legal guardians for their kids, parents, siblings.
The business will need to have an EIN and follow all state regulations.
Category 2: Facilities being used for housing and medical services of state wards through APS and CPS. No 'ghost' LLCs.
Category 3: Conservator services, meeting the same requiremnets of category 1.
Category 4: General legal counsel services, meeting the same requiremnets of category 1.
Updates
Reached 500 supporters
May 22, 2025
Reached 100 supporters
February 25, 2025
February 23, 2025
I was looking at the total earlier and we are just hovering right under that first hundred mark which is pretty wild considering how many people are actually struggling with these MDHHS hurdles every single day. If you know anyone dealing with these specific agency headaches just get the link in front of them right now because once we break past this milestone it really changes how they have to look at us.
70 Comments
my four year old daughter is autistic and the services that she receives are basic, with aba it’s basically someone coming to the house to play with her for a few hours a day. Anywhere else i call is months booked out.
It is very disturbing to hear people are getting bonuses for unused funds that should be going towards program such as this.
As a mother with a child diagnosed with autism on behalf of all mothers with a child with special needs we need more resources to cover threw medical to get the help that they need to progress in life.
I couldnt agree more with having a child on the spectrum. I live in Wyandotte and have to drive to Dearborn Heights everyday
Signed for my 9yr non verbal. And thank you for doing this. We shouldn't have to work this hard to get our children the care they deserve.
Special needs son age 30 utililizes Dhhs services
The system is broken. The automated phone service doesn't give you the option to simply speak to someone. There aren't options for all questions. It sends you round and round a loop. Simply is the operative word. They make it very very difficult to get a hold of a live person. It should be more user friendly. They also said you have to update your info every 6 months. After you do that if you need assistance within those 6 months you have to do it all over again. Fill out forms, upload bills and documents, etc. It's not always easy to upload the necessary paperwork. ETC ETC ETC
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This petition is about fixing all the structural and systemic problems, that are keeping MDHHS services from reaching families. Please help us help these families. There is a lot of work to do and your signature helps.
To the Michigan Legislature, MDHHS, PIHPs and all applicable officials, staff and directors
Contact:
Chris Dardzinski: 313.550.8922 [email protected]
Agenda items are the input of Michigan parents dealing with the current system. I'm working on getting this in to legislation and law on their behalf.:
Item 1:
No agency that controls Medicaid Dollars can benefit from unused funding. Restrict all funding agency employees from receiving any bonuses from unused funds.
Item 2:
Create system change for a separate entity that has no relation with the agency to handle all recipient rights complaints, grievances, and appeals. All complaints must be handled by a neutral unbiased 3rd party.
Item 3:
Provide advocate departments that aid individuals to properly submit ALL complaints and appeals.
Item 4:
Provide Self-Directed Handbook to all recipients on Self-Directed options and how the Self-Directed services are to be conducted with Budget Authority and in detailed explanation on what a Person Center Planning is and how the individual budget supports the Individual Plan of Service. All Self-Directed Recipients must be provided with a service Rate Sheet to understand and know how much the Recipient can pay a Direct Caregiver to prevent wrongful capping of Direct Caregiver pay wages.
Item 5:
Audit performed at the end of fiscal year on Financial Management Service (FMS) agencies in contract with the PIHP on how much budgets were utilized by recipients and how much budgets are sent back to PIHP.
Item 6:
PIHP must take all retracted budgets and put Community Mental Health Medicaid Dollars back to the community with providing Mental Health and Disability Resources and Mental Health and Disability Resource Centers to provide workshops on Independent Living Skills, Communication workshops, Sensory Regulation workshops. What Medicaid Dollars that are being dissolved from the current systemic administration layers needs to be moved to provide Mental Health and Disability Resource Centers that provide services to allow a Disabled or Mentally ill person to be stabilized in their home and communities. This budget line allocation will help prevent institutionalization and create jobs in the communities through the entire State. This push for contracted agencies to do their job by providing the resources will protect and support our communities and our police/ first responders by prevention of crises with the mentally ill or disabled receiving the behavioral and disability services.
Item 7:
Audit on how much Self-Directed budgets are retracted from the Disabled person’s Self-Directed Budget account that the PIHP receives and compare with the budget number that is sent back to the PIHP's general fund.
Item 8:
Audit what amount in retracted Self-Directed budgets MDHHS receive from the PIHP’s and compare with the budget number that is sent to MDHHS general fund.
Item 9:
Remove the systemic multiple administrative layers that are charging fees from the
Medicaid funding that should be going directly to Mental Health and Disability services.
This systemic issue is causing the Direct Caregiver pay wage that starts at $39 an hour oA
of the MDHHS “consideration rate sheet” layer to go through the 10 Prepaid Inpatient
Health Plan Networks, then through the 46 Community Mental Health Departments, then
through the contracted Direct Caregiver StaAing Agencies, to finally make it to the Direct
Caregiver being paid $11-$15.50 an hour after the Medicaid dollars make it down the
Systemic Chain of Command. Cut out the middleman (layers of contracts) and streamline
service funding from the State to the Support Coordination agency to get the services in the
homes and communities. This solution will create many jobs and fill Direct Caregiver
positions in all communities across the state and provide the most disabled the support
they need to survive.
We need Mental Health and Disability Resource Centers more than ever right now. Centers
that will provide families with parent training on how to use communication devices and
how to help regulate sensory disorders to stabilize our homes and communities as much
as possible.
Training parents and families would relieve Mental Health Medicaid Dollars because all
parents would want this training that would provide stability and prevention of putting
children in State Ran Hospitals that cost even more. No child should be ripped from their
homes when MDHHS is in contract to protect the family unit. Parents and families would
provide this crises prevention and medical proven prevention treatments to all caregivers
that support their loved one.
Item 10:
The following MDHHS contracted services must be registered, certified and fully licensed through LARA:
Category 1: Legal Guardian services, when the service is provided by a business. This does not apply to individuals who are legal guardians for their kids, parents, siblings.
The business will need to have an EIN and follow all state regulations.
Category 2: Facilities being used for housing and medical services of state wards through APS and CPS. No 'ghost' LLCs.
Category 3: Conservator services, meeting the same requiremnets of category 1.
Category 4: General legal counsel services, meeting the same requiremnets of category 1.
Updates
Reached 500 supporters
May 22, 2025
Reached 100 supporters
February 25, 2025
February 23, 2025
I was looking at the total earlier and we are just hovering right under that first hundred mark which is pretty wild considering how many people are actually struggling with these MDHHS hurdles every single day. If you know anyone dealing with these specific agency headaches just get the link in front of them right now because once we break past this milestone it really changes how they have to look at us.
70 Comments
I encourage anyone who holds a position to do more to help families get the services they desperately need. Making the system work rather than making it a hardship for so many who are left behind. So many who give up and is costing lives. Show some humanity and compassion for those who desperately need it. Please.
my four year old daughter is autistic and the services that she receives are basic, with aba it’s basically someone coming to the house to play with her for a few hours a day. Anywhere else i call is months booked out.
It is very disturbing to hear people are getting bonuses for unused funds that should be going towards program such as this.
As a mother with a child diagnosed with autism on behalf of all mothers with a child with special needs we need more resources to cover threw medical to get the help that they need to progress in life.
I couldnt agree more with having a child on the spectrum. I live in Wyandotte and have to drive to Dearborn Heights everyday
Signed for my 9yr non verbal. And thank you for doing this. We shouldn't have to work this hard to get our children the care they deserve.
Special needs son age 30 utililizes Dhhs services
The system is broken. The automated phone service doesn't give you the option to simply speak to someone. There aren't options for all questions. It sends you round and round a loop. Simply is the operative word. They make it very very difficult to get a hold of a live person. It should be more user friendly. They also said you have to update your info every 6 months. After you do that if you need assistance within those 6 months you have to do it all over again. Fill out forms, upload bills and documents, etc. It's not always easy to upload the necessary paperwork. ETC ETC ETC
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I encourage anyone who holds a position to do more to help families get the services they desperately need. Making the system work rather than making it a hardship for so many who are left behind. So many who give up and is costing lives. Show some humanity and compassion for those who desperately need it. Please.