To prevent iron buildup in the organs, which causes them to shut down, HH patients are treated through bloodletting, giving a pint or more each time they have a treatment.
There is nothing wrong with the blood of HH, no different than someone with Cystic Fibrosis. But the Red Cross refuses to accept this blood, which is often more beneficial to recovering patients because of high anemia levels in the U.S.
This costs patients and insurance companies I considerable amount. Often HH patients can’t afford to get the treatments, which greatly increases their chances of HH being fatal.
Please help us tell the Red Cross to start accepting the blood donations of HH patients!! It’s a win-win situation! More donated blood and less cost to patients. Possibly saving lives.
8 Comments
I suffer from this disease. My pint of blood is put in the bin every week it is taken. It seems such a waste here in the UK.
It's a shame my blood can't be used by those who need it.
I have HH. Our blood couldn’t be saving lives
I have been diagnosed with HH last week and the first thing I said to myself was: Hey, the best way for me to survive is now to help other people survive... Let me tell you that I was really, but really lost and disappointed when Inlearned that I cannot give me my blood .... That is seriously stupid!
My husband has to have his blood checked every month. He has blood drawn almost every other month. The disease killed his father and brother.
Red Cross, please start allowing patients with Hereditary Hemochromatosis (HH) give blood!!
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To prevent iron buildup in the organs, which causes them to shut down, HH patients are treated through bloodletting, giving a pint or more each time they have a treatment.
There is nothing wrong with the blood of HH, no different than someone with Cystic Fibrosis. But the Red Cross refuses to accept this blood, which is often more beneficial to recovering patients because of high anemia levels in the U.S.
This costs patients and insurance companies I considerable amount. Often HH patients can’t afford to get the treatments, which greatly increases their chances of HH being fatal.
Please help us tell the Red Cross to start accepting the blood donations of HH patients!! It’s a win-win situation! More donated blood and less cost to patients. Possibly saving lives.
8 Comments
There is nothing "wrong" with the blood of HH patients. It is time the Red Cross adapt its policies. A phlebotomy at a hematologist's clinic can cost $300. We are talking about life-and-death here! Red Cross, aren't you in the business of saving lives?
I suffer from this disease. My pint of blood is put in the bin every week it is taken. It seems such a waste here in the UK.
It's a shame my blood can't be used by those who need it.
I have HH. Our blood couldn’t be saving lives
I have been diagnosed with HH last week and the first thing I said to myself was: Hey, the best way for me to survive is now to help other people survive... Let me tell you that I was really, but really lost and disappointed when Inlearned that I cannot give me my blood .... That is seriously stupid!
My husband has to have his blood checked every month. He has blood drawn almost every other month. The disease killed his father and brother.
Red Cross, please start allowing patients with Hereditary Hemochromatosis (HH) give blood!!
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There is nothing "wrong" with the blood of HH patients. It is time the Red Cross adapt its policies. A phlebotomy at a hematologist's clinic can cost $300. We are talking about life-and-death here! Red Cross, aren't you in the business of saving lives?