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Better ASD Services and Referral/diagnosis service for our children on the Isle of Wight

58 Comments

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Tazmin Ashworth
8 years ago

Still waiting for an follow up for my daughter's referral and that was over a year ago.

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Jim Smith
8 years ago

My sons initial assessment was done in March 2016 and we are still waiting. My wife was told yesterday that the NHS don’t know how long it will be but will let us know when they have a timescale. Brilliant.

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Kimberley Jennings
8 years ago

Please support this. As an island community we are already disadvantaged in access to specialist services across our education and health systems. There is already a high level of unemployment and we rely heavily on seasonal tourism to boost the economy. Our children deserve the very best, they are our future and every child deserves to be treated equally, fairly and with respect. We need to be supporting those families and children with difficulties, those with spectrum disorders and working alongside families to nurture and care for their children in the very best way...and ultimately allowing the gift in each child to blossom and grow. We can only do this eith access to a wife range of services. Thank you.

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Mandy Kennedy
8 years ago

My son was diagnosed at 2, 20 years ago (under a Labour government I might add) and received exceptional services and input from a very early age. I strongly believe that even though he has severe autism this early diagnosis and intervention is why he has reached his full potential and lives a full life. It is vital to get diagnosis and intervention as early as possible so these youngsters can reach their full potential. Remember a society can be judged on how they treat their most vulnerable, shame on you I.O.W.

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Michelle Collins
8 years ago

Such an important issue that needs to be listened to! Cuts to our services are destroying our children's futures. Please sign

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Teri
8 years ago Featured

As a mum with two asd children who were diagnosed at an early age (luckily for us we were not living on the Isle of Wight back then!) I am horrified at the treatment that other young children are receiving here. The damage that is being done to them by being ignored is irreversible, these children are in need and no one seems to care. Something must be done. Soon.

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Fiona Caulfield
8 years ago

the situation here in the Isle of Wight regarding children on the ausistic spectrum and diagnosis, is disgusting. our children are not some kind of second class citizens. they have the same same rights to help as any other child. yet they cannot access services or get help they need to help them reach their full potential because they have no way to get a diagnosis. This problem needs to be fixed and fast.

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Jennifer longworth
8 years ago

This has to change it the families will suffer more.

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Tracey Engels
8 years ago

The parents and the children need these services to be in place so they can get all the help they need.

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Tina Orledge
8 years ago

My lb has not even got to the ADRC so this is worrying has the paediatrician has no where to send him to get diagnosed

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Lorraine Gustar
8 years ago

These children need assessments as they are being failed miserably..... they are out in mainstream schools with no provisions and are set up to fail along with having to wait years for diagnosis.......13 years in my case

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Lucie prince
8 years ago

I feel completely let down because of the area I live in. I'm scared for my child's future and that if he does encounter any struggles that there is very little to no support for him. I'm petrified that he will leave school with no proper education because he will have been let down by the system just like my step son was ... I feel it's extremely unfair that we have to fight so hard for diagnosis when I know places like wales get huge help and support with diagnosis of learning difficulties etc ... they even get free prescriptions no matter who they are ... !!

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Jo Wright
8 years ago

My son is now 23 and has ASD ADD dyspraxia dyslexia auditry/memory disorder and well as a goatnof other things and we have had no support since he was 16 and then limited before that and only because of piers rowlendson Not enough support for children and young adults.

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Catherine Hammond
8 years ago

We are worried about the withdrawal of funding for SEN on the island. I have a son diagnosed with autism and PDA.

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Sarah mitchell
8 years ago

My daughter was referred over a year ago now and was accepted to be seen by the Adrc. We are now stuck in limbo!

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Maria Villa Vine
8 years ago

As parents of children with additional needs we understand the devastating long term consequences of lack of resources.

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Amelia Paine
8 years ago

I know what it’s like to go through the stages of diagnosis and get the help needed for your child, it’s painfully slow and lacking of services and support needed by a lot of children and their families

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Rachel Filipe
8 years ago

Grandson starts school in sept, still waiting for a diagnosis,

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Kimberley Gray
8 years ago

I have one son with diagnosis of As he and add but my other son is currently awaiting diagnosis.

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Juliet young
8 years ago

We have been waiting for over a year for diagnosing