The published paper of the PACE trial study into ME is a “Travesty of Science and a Tragedy for people with ME”
In light of the knowledge that the study has now been exposed as seriously flawed- in that it did not actually study people with ME -we the undersigned demand that the authors withdraw the paper with immediate effect.
In an unprecedented move the PACE trial was part funded by the Department of Work and Pensions. With final costs now reported to be between £4 and £5 million and a time scale of 8 years to complete it cannot be said to be a “value for money” exercise. The survey outcome has influenced the guidelines for ME produced by NICE (National Institute for Clinical Excellence), the ME services determined by BACME (British Association for CFS ME) and benefit support by the DWP (Department of Work and Pensions).
This petition will be presented to the Editor of the Lancet, the DWP, the MRC, the APPG for ME and as many MPs that we can identify who have an interest in ME.
Updates
Reached 500 supporters
July 30, 2011
June 28, 2011
We just hit 100 signatures. The momentum is building.
Reached 100 supporters
June 26, 2011
7 Comments
The changes made to the protocols midway through are extraordinary, and as if designed to make an unsuccessful trial appear successful.
sick and tired of seeing millions of pounds wasted on research that actually hurts patients.
JUST TOTAL FICTION. How did they ever get this published in the first place??
My life has been ruined by these bad guidelines based on junk science. Retract it now.
The protocol changes were clearly manipulated to get the results they wanted. It is shameful.
Disgraceful waste of public money.
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The published paper of the PACE trial study into ME is a “Travesty of Science and a Tragedy for people with ME”
In light of the knowledge that the study has now been exposed as seriously flawed- in that it did not actually study people with ME -we the undersigned demand that the authors withdraw the paper with immediate effect.
In an unprecedented move the PACE trial was part funded by the Department of Work and Pensions. With final costs now reported to be between £4 and £5 million and a time scale of 8 years to complete it cannot be said to be a “value for money” exercise. The survey outcome has influenced the guidelines for ME produced by NICE (National Institute for Clinical Excellence), the ME services determined by BACME (British Association for CFS ME) and benefit support by the DWP (Department of Work and Pensions).
This petition will be presented to the Editor of the Lancet, the DWP, the MRC, the APPG for ME and as many MPs that we can identify who have an interest in ME.
Updates
Reached 500 supporters
July 30, 2011
June 28, 2011
We just hit 100 signatures. The momentum is building.
Reached 100 supporters
June 26, 2011
7 Comments
This flawed study must be withdrawn to protect the work being done to help sufferers of this condition.
The changes made to the protocols midway through are extraordinary, and as if designed to make an unsuccessful trial appear successful.
sick and tired of seeing millions of pounds wasted on research that actually hurts patients.
JUST TOTAL FICTION. How did they ever get this published in the first place??
My life has been ruined by these bad guidelines based on junk science. Retract it now.
The protocol changes were clearly manipulated to get the results they wanted. It is shameful.
Disgraceful waste of public money.
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This flawed study must be withdrawn to protect the work being done to help sufferers of this condition.