International Trigeminal Neuralgia Awareness Day October 7th!
5,071 Comments
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Robyn Mainland
9 years ago
Trigeminal Neuralgia needs to be recognized by WHO so that funding and research can go towards finding a cure for this extremely painful condition from which I suffer daily!!
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Anonymous
9 years ago
It would be horrible to have this disease. They need relief.
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Tina Nickeas
9 years ago
Such a disabilitating pain. My amazing friend is a sufferer. I see her struggle with it every day. Please sign )O(
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Deborah London
9 years ago
I am a newcomer to this disorder but it is horrible!!!
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Pamela Smith
9 years ago
Please help to end the debilitation and suffering from Trigeminal Neuralgia!
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Cathy Vidnansky
9 years ago
I am newly diagnosed with TN. I read daily of people who suffer unbearable pain for years. Hear our pain!
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Antoinette whiting
9 years ago
My sister is a warrior no matter what
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Victoria Smith
9 years ago
Have bilateral, ocular ATN
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Amy M Ryder
9 years ago
This needs to happen!!!
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Joann Harrison
9 years ago
I have TN and I have 32 years in service to the Federal Government. I'm close to retirement but the pain just keeps getting worse making it hard to concentrate. I'm hoping to make it through until I can retire but not everyone with TN have the same option.
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Connie Wilson
9 years ago
Please help
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Jane Gregory
9 years ago
Please add TN to the WHO list of conditions
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Nicole Lentz
9 years ago
My mother has suffered from this awful condition for 25 years. No one should have to endure this. It is inhumane! Please let this year be the year we find a cure.
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Eloise Hay
9 years ago
I suffer from Trigeminal Neuralgia and I would love for more awareness about this horrible affliction and for some research into actual cures rather than temporary bandaids. I am only in my 30's and have 2 primary aged kids, I am scarred for my future if no cure is found, I do not want to become a burden for my kids. I want to be an active mum for the rest of my life.
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Nancy Laux Cagle
9 years ago
In hopes that more people, including the medical community, will become more familiar with this terrible condition.
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LYNN SCHREINER
9 years ago
Very Healthy for 52 Years.. until 8 weeks ago when Trigeminal Neuralgia hit me! Unimaginable and Absolute worst Pain! Thankful medicine has helped for now. Medicine brings on other issues, that makes it hard to live a normal life. Please take this disease Serious!
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Lawrence Barnard
9 years ago
My sister has this awful affliction.
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Lorna johnson
9 years ago
My mum suffers with this horrific disease. And after brain surgery, the surgeon classed it as a success although it's made her worse! Something needs to be done. So many people suffering when surgeons who think they are god are giving wrong advice and then claiming people are 'fixed' ..my mum is not a one off case. Everyone she talks to who has had the surgery has ended up the same!
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Cathy Sentner
9 years ago
This debilitating condition really needs awareness and attention!!
D
Deborah Mansell
9 years ago
I have had TN1 and TN2 for 28 years. In 2006 it stopped going into remission very often, and since 2013 has been my constant companion. Thankfully medication has been helpful, but I have had to increase the dose to levels that makes it hard to work or grocery shop or do anything that requires concentration. I fear the time will come when I am unable to work, and then what?
Trigeminal Neuralgia needs to be recognized by WHO so that funding and research can go towards finding a cure for this extremely painful condition from which I suffer daily!!
It would be horrible to have this disease. They need relief.
Such a disabilitating pain. My amazing friend is a sufferer. I see her struggle with it every day. Please sign )O(
I am a newcomer to this disorder but it is horrible!!!
Please help to end the debilitation and suffering from Trigeminal Neuralgia!
I am newly diagnosed with TN. I read daily of people who suffer unbearable pain for years. Hear our pain!
My sister is a warrior no matter what
Have bilateral, ocular ATN
This needs to happen!!!
I have TN and I have 32 years in service to the Federal Government. I'm close to retirement but the pain just keeps getting worse making it hard to concentrate. I'm hoping to make it through until I can retire but not everyone with TN have the same option.
Please help
Please add TN to the WHO list of conditions
My mother has suffered from this awful condition for 25 years. No one should have to endure this. It is inhumane! Please let this year be the year we find a cure.
I suffer from Trigeminal Neuralgia and I would love for more awareness about this horrible affliction and for some research into actual cures rather than temporary bandaids. I am only in my 30's and have 2 primary aged kids, I am scarred for my future if no cure is found, I do not want to become a burden for my kids. I want to be an active mum for the rest of my life.
In hopes that more people, including the medical community, will become more familiar with this terrible condition.
Very Healthy for 52 Years.. until 8 weeks ago when Trigeminal Neuralgia hit me! Unimaginable and Absolute worst Pain! Thankful medicine has helped for now. Medicine brings on other issues, that makes it hard to live a normal life. Please take this disease Serious!
My sister has this awful affliction.
My mum suffers with this horrific disease. And after brain surgery, the surgeon classed it as a success although it's made her worse! Something needs to be done. So many people suffering when surgeons who think they are god are giving wrong advice and then claiming people are 'fixed' ..my mum is not a one off case. Everyone she talks to who has had the surgery has ended up the same!
This debilitating condition really needs awareness and attention!!
I have had TN1 and TN2 for 28 years. In 2006 it stopped going into remission very often, and since 2013 has been my constant companion. Thankfully medication has been helpful, but I have had to increase the dose to levels that makes it hard to work or grocery shop or do anything that requires concentration. I fear the time will come when I am unable to work, and then what?