International Trigeminal Neuralgia Awareness Day October 7th!

I have recently been diagnosed with TN

It needs to resources for research around this disease. Many people suffer but may not correctly diagnosed and there with not the right treatment. Healthcare, both the staff at the health centers and pain clinics must gain more knowledge about trigeminal neuralgia and related disorders. Suffering from trigeminal neuralgia affects your whole life, then relapses can strike when you least expect or you live with this extreme pain 24 hours a day, year round. Have myself been through and where the pain from surgery micro vascular dekompressionn at Uppsala University Hospital and my wish is that more people can get help through this type of surgery. Obviously I'm aware that all are not helped but everyone should have the chance to get the right diagnosis and where with the help healthcare can provide, without you having to fight against both disease and unsympathetic doctor / health care or getting the wrong treatment.

My mom have trigeminal neuralgia please help to find the cure...mi mama tiene neuralgia del trigemino por favor ayudenos a encontrar la cura!!!

I've suffered for nine years. We definately need more awareness among health professionals. I've come into contact with nurses, dentists, and ER doctors with very little knowledge of TN.

I have had suicidal nerve pain in my hands and feet. If my nerve pain would have been in my face I would have had to say good bye cruel world. Lyrica and surprisingly flexural (a mussel relaxer) helps when used with Neurontin or similar medication. DO NOT LEAVE PAIN MANAGMENT UNTIL THE PAIN IS TOLERABLE. THERE ARE MORE DRUGS TO TRY. PLEASE DO NOT SUFFER SIMPLY BECAUSE YOU DID NOT PUSH YOUR DOCTORS HARD ENOUGH TO GET WHAT YOU NEED. PUSH HARD~

please help us find a complete cure for trigeminal neuralgia

Please add Trigeminal Neuralgia to your organization to aid in the awareness of this debilitating disease. Thanking you in advance. Marilyn MacDonald

PLEASE HELP.

Please also come up with a better description of the "diagnosis" of Persistent Idiopathic Facial Pain. Our pain might be in our heads, but it isn't in our heads. It's real, It's devastating. It's life altering. And we need something that isn't just a garbage diagnosis.

PLEASE, PLEASE, TN to the WHO. I have never known pain like this. We need help in finding new treatment and understanding of this terrible condition.

This is very important and needs to be done.

I sincerely hope there will be a positive outcome to this petition. In my case, I have periods of remission but when it strikes I am totally disabled and crying out with the most extreme pain imaginable.

I was diagnosed with Trigeminal Neuralgia last July 2013. It has been tremendously painful, quite like my second brain surgery for two more brain aneurysms 13 years ago. Both the surgery and the trigeminal Neuralgia are on the right side of my head. It sure makes me feel as though I'm having another aneurysm that has ruptured, like the first one , 40 years ago. I am taking the generic of Topamax, 150mg am and pm. It was helping but now trigeminal neuralgia has come back. It comes back hard and fast -- instant pain. Let's hope and pray for relief very soon. Thank You God Bless Suzanne Lindsey

I believe I have this but have never been diagnosed properly !! Terrible Pain !! Drs. Will not give medicine !!

My 11 yr. old has been stricken with TN. We can all make a difference and end the suicide disease. There is HOPE!

I am 30 years old and was diagnosed with TN last year, possibly due to my MS. Please help us spread awareness.

I've been suffering with TN since 2003 but it wasn't diagnosed until approximately a year and a half later. Experienced the excruciating pain, the teeth issues, family worries, job issues (and I'm a teacher that needs to talk on a daily basis which became extremely difficult) and, most sadly, the suicidal feelings. Considering all of this and the fact that this is known as 'The Suicidal Disease, patients deserve to have awareness brought to this disease so to help do away with such a debilitating disease.

Hideous disease. My step grandson has this. Terrible. Nothing you can do, no cure. He lives with pain 24/7 --365 days a year. I pray for him and all who suffer this hideous disease.

Please help those who are suffering with this condition! It should be on the Health Topics list.

I have survived with TN for @ 5years now. I have pain every day, and I want others who may not be aware of this disease to know the symptoms.