International Trigeminal Neuralgia Awareness Day October 7th!

For my BFF

My sister has this disease I've seen first hand how awful it is!

End the pain please find a cure!

I have TN ...it takes away life as we know it and turns you into a recluse who wants to hide from everyone & everything because you dont want people to see you like this...some get to the point the pain is so bad they cant wash their hair ...i got to the point i couldnt eat drink or wash my face for days...& the pain...the PAIN is unbearable!!! Searing ...shocking...stabbing pain !!! You cant imagine it unless you have been there!

I have been suffering from trigenimal neuralgia for the past 10 years. And I was diognised with ocipital neuralgia last year as well.

Been fighting for two years and 4 moths now. Hoping for relief soon...

I had no idea this even existed until my sister (39 yo) was diagnosed with it, and she is suffering incredible pain, and the only 'assistance' seems to be intensive drug therapy. This can't be the only way!

I really think there needs to be more awareness about TN and ATN. So many people have no idea about what us sufferers go through each day.

I have stuffed from TN for 2 years and it had ruined my life and the limited resources and education materials make me feel like I've hit a wall. I've had a 3 stat MIR@Stanford and am not a candidate for decompression surgery. They tell me my only options are exploratory brain surgery. The pain is unbearable!

Please sign and bring awareness to this !!

I have suffered from Trigeminal Neuropathy since my jaw joint replacement surgery back on May 2007 when the trigeminal nerve was damaged during the surgery. I have been in pain 24/7, everyday since. The intensity varies, but doesn't go below a 5, and is mostly around at least a 7 or above. I'm on social security disability, which is the very last thing I ever wanted to do. Please help us get the word out on this devastating disease. We need research into what can be done to help, or even cure this debilitating illness. This has completely changed my life, and my future is depressing. I've been told there is nothing that can be done for me except for pharmaceuticals, which still doesn't take away all the pain. I thank you for your time and attention to this very important matter. Sincerely, Tina Mariano Norton [email protected]

It is a great thing to raise an awareness of this condition as it is not a very common.

I hope my comments have helped ,and hope that awareness of this secret condition will be made known,so that a cure ,hopefully will be found.

Signing in honor of my mom & for all who suffer from this horrific disease. May there be a cure soon to help all who are in pain. God bless!

took 10 years for correct diagnosis

Please recognize this as a very serious disease. You truly want to commit suicide. It is that bad.

I have been living in pain, for a very long time.

Vivo en el estado de Oregon US.En febrero del 2006 comenze con esta terrible enfermedad,por dos anos sin cura ni alivio vivi entre visitas a mi doctor regular y dentistas.en diciembre del 2007 en Morelia Mich,Mex,me diagnosticaron con neuralgia del trigemino, con un tratamiento a con botox y acupuntura estuve sin dolor por dos anos.regreso en el 2009,mas intenso el dolor,en Oregon comenze tratamiento con un neurologo tomando carbamazepine,con horribles reacciones secundarias y sin alivio al dolor.,en abril del 2013 fui operada..DESCOMPRENSION MICROVASCULAR.del nervio trigemino,retirandose el dolor inmediatamente despues de la operacion,pero dejandome con mi vista afectada,perdida total de audicion en mi oido derecho,ademas de sufrir de paralisis facial a los cuatro dias despues de la cirugia hoy a casi 11 meses mi cuello ,parte de mi cara y en el area de la cirugia siguen dormidos y adoloridos.,comenzando a sentir molestias en mi cara de nuevo ..pequenos calambres en mi mejilla piquetes en mi labio..me aterra volver a sufrir dolor...POR FAVOR AYUDENOS A QUE ESTA ENFERMEDAD SEA CONOCIDA MUNDIALMENTE..ES TERRIBLE,ES LO MENOS QUE MERECEMOS.YA QUE NO HAY UNA CURA SEGURA NI DEFINITIVA,LOS QUE PADECEMOS ESTA ENFERMEDAD NOS CAMBIA LA VIDA PARA SIEMPRE..

Help us! Please!! No life just hurt :-(

Please.. help us..