International Trigeminal Neuralgia Awareness Day October 7th!
5,071 Comments
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Sharrie Sexton-Bruno
12 years ago
I have a sister who suffers daily with this and I agree that it needs to be added to the list of health topics to be discussed! Knowledge is POWER!!!!
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Kathleen Golden
12 years ago
We need a tv ad so people know we are out there with no cure. Magazines even!
A
Anonymous
12 years ago
Awareness needed
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Dr Mike Reed, UK
12 years ago
I have had TN now for 9 years and it is sadly, life changing!
Knowledge of TN is very low across the whole spectrum of the population, and this includes doctors and dentists. Training time at medical school on TN verges on zero.
Anything which raises awareness can only help. If the WHO would list it, that would help sufferer's across the globe.
Last year's TN Awareness Day got the ball rolling, hopefully this year it will gain momentum.
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Nancy Kurtz
12 years ago
Please put Trigeminal Neuralgia on "Health Topics" list. So many have this awful disease and we need to have this made known to everyone that it is real and not made up. I have suffered from this since 2008 and I have increased my meds many times. It is something I suffer and also my family. I can't work because the sharp electrics shocks can attack at any time. No boss is going to believe about my illness. I am tired and people need to know it is real.
Thank you,
Nancy Kurtz
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Sundy Chen
12 years ago
My uncle has suffered with TN for a long time, and a surgury may cause some harmful side effect. People should pay more attention to this disease and a more suitable treatment should be discovered!
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Kay F. Heigh
12 years ago
My daughter has this horrible disease and it is heart breaking to know she is in excruciating pain and there is nothing to do to help her.
I just attended the TNA conference in Indiana and it was so informative.
C
Champagne DeGrace
12 years ago
Im 24yrs old with this disease and a mother of 3.
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Champagne DeGrace
12 years ago
Im 24yrs old with this disease and a mother of 3.
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Anonymous
12 years ago
I also suffer from TN and hope for a cure to this painful illness.
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carol campbell
12 years ago
I really would like to be updated on T>N> because I have been diagnosed with that disorder.
C
Carolyn A. Watts Carver
12 years ago
I've suffered from trigeminal neuralgia since a dentist pulled an infected absceed tooth. The trauma of have this extraction was done may have damaged my nerve cause I've experienced nothing but burning,stabbing, excruciating pain since 2007. Another oral surgeon told me the name of pain I was experiencing and that I should see a neurologist. The pain hasn't stopped yet and I praying it will soon!
Y
Yanique Salmon
12 years ago
Supporting my friend, who is supporting her sister.
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Karen pearce
12 years ago
This an important petition to acknowledge TN
W
Wendy Cook
12 years ago
My sister suffers from this. Please sign and help this cause.
D
Dwaine Zanders
12 years ago
Help!
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Dwaine Zanders
12 years ago
Help!
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lucia PG
12 years ago
My father suffers this terrible desease and i need help to help him too. I live in Perugia. I'm looking for a specialist . Sincerely Lucy
D
david johnson
12 years ago
My wife has recently been diagnosed with TN.
It is terrible to see her suffer so much.
I was not aware that this condition existed.
I truly hope that more investigation can be made available to find a solution for my wife and all the other sufferers in the world.
Kind regards.
I have a sister who suffers daily with this and I agree that it needs to be added to the list of health topics to be discussed! Knowledge is POWER!!!!
We need a tv ad so people know we are out there with no cure. Magazines even!
Awareness needed
I have had TN now for 9 years and it is sadly, life changing! Knowledge of TN is very low across the whole spectrum of the population, and this includes doctors and dentists. Training time at medical school on TN verges on zero. Anything which raises awareness can only help. If the WHO would list it, that would help sufferer's across the globe. Last year's TN Awareness Day got the ball rolling, hopefully this year it will gain momentum.
Please put Trigeminal Neuralgia on "Health Topics" list. So many have this awful disease and we need to have this made known to everyone that it is real and not made up. I have suffered from this since 2008 and I have increased my meds many times. It is something I suffer and also my family. I can't work because the sharp electrics shocks can attack at any time. No boss is going to believe about my illness. I am tired and people need to know it is real. Thank you, Nancy Kurtz
My uncle has suffered with TN for a long time, and a surgury may cause some harmful side effect. People should pay more attention to this disease and a more suitable treatment should be discovered!
My daughter has this horrible disease and it is heart breaking to know she is in excruciating pain and there is nothing to do to help her. I just attended the TNA conference in Indiana and it was so informative.
Im 24yrs old with this disease and a mother of 3.
Im 24yrs old with this disease and a mother of 3.
I also suffer from TN and hope for a cure to this painful illness.
I really would like to be updated on T>N> because I have been diagnosed with that disorder.
I've suffered from trigeminal neuralgia since a dentist pulled an infected absceed tooth. The trauma of have this extraction was done may have damaged my nerve cause I've experienced nothing but burning,stabbing, excruciating pain since 2007. Another oral surgeon told me the name of pain I was experiencing and that I should see a neurologist. The pain hasn't stopped yet and I praying it will soon!
Supporting my friend, who is supporting her sister.
This an important petition to acknowledge TN
My sister suffers from this. Please sign and help this cause.
Help!
Help!
My father suffers this terrible desease and i need help to help him too. I live in Perugia. I'm looking for a specialist . Sincerely Lucy
My wife has recently been diagnosed with TN. It is terrible to see her suffer so much. I was not aware that this condition existed. I truly hope that more investigation can be made available to find a solution for my wife and all the other sufferers in the world. Kind regards.
I am a sufferer for 19yrs.