International Trigeminal Neuralgia Awareness Day October 7th!

I have suffered from TN for about 5 years and this the most painful thing I have experienced.

I have had trigeminal neuralgia for nearly five years (I am now 22.) It does not just affect older people as is commonly implied. It is a truly terrible condition and deserves proper recognition!

I am suffering with this horrid disease as I type these comments. It is difficult to explain to others what it is and how painful it is. Awareness and research are needed so that better treatment can be provided instead of the bandaid types available now.

TN is such a painful disease , our grandson has suffered with it for several years . He has undergone numerous surgeries to help correct the problem and through it all it all the TN caused many other painful problems . He was laughed at and humiliated by doctors that did not acknowledge TN or understand it at all and was told his problems were physic logical ! No one especially a child should have to go through such Pain and Humiliation !! Please there needs to be More Awareness and Medical Education for Trigeminal Neuralgia - this is a issue that CAN NOT WAIT !! People look at you and when you explain TN - really well there is medicine to help right - they Do Not understand the severity of this disease or the Pain it causes !!! You can not even go out side or go forward with your life , brush your teeth , eat , and the least of CN NOTS GO ON AND ON !! PLEASE ADD TRIGEMINAL NEURALGIA TO THE TOP OF HEALTH TOPICS !! Thank you - Sincerely Linda H. Drumm

i have this and it takes away life as you know it...pain is your constant companion

A rare condition that is more prevalent in older women... I must be lucky then as 55 year male! Trigeminal Neuralgia, it's plain vicious. I'm have put together a website that hopefully will offer somewhere to retreat to without doom gloom and despondency. We may have the "suicide disease" but we are determined to live. www.giantmousehq.com Take care all.

We are in dire need for more research and awareness on this extremely painful disease. Please help.

Have had chronic pain in the upper 2/3 of the right side of my face since 2006

I suffer from this terrible disease. Took a while to diagnose me. My dentist triggered this when starting a root - canal. My family doc new right away unfortunately I wasted alot of time with the dentist.

I have had TN for 12 years now. I have been lucky in that I was diagnosed within the first month, and medications had kept me pain free for almost 11 years. I am now considering brain surgery.

Thank you from a TN sufferer.

Hello! I am Angela and I am 36 years old. I am suffering this horrible disease for 4 months and it is terrible. I am from Spain and Doctors only give me moré and moré pills. I would like to know more about TN to find a good solution. Thank you very much.

My next door neighbor has this awful condition. He and his wife have been through hell. We need genuine medical research and effective treatments !

Keep up the vote rates please for my mum

Please help find a treatment or cure so I can be a mom and a wife again instead of a life consumed by pain, meds, drs, hopelessness, uselessness, and disability.

I went thru multiple health care professionals and doctors before I found one who understood what I am going thru.

I wish this was more know a few years back, may be someone could have helped my aunty x

my hubby has this terrible illness .had MVD 3 weeks ago.so far so gd. We went to the millenium bridge newcastle last Oct 7th as it was lit up teal fir TN Awsreness day .hope they do it this year too .. wishing all sufferers and their carers pain free days xx

hope for the support in finding the case study...

I am a 29 year old woman with ATN. (Atypical Trigeminal Neuralgia). We need to find a cure!!!