International Trigeminal Neuralgia Awareness Day October 7th!
5,071 Comments
D
David Bundy
12 years ago
We need more accurate numbers for trigeminal sufferers. It affects all ages. Please help us!
J
Joy Witte
12 years ago
Please work on TN. My husband suffers from it and I've never seen him this way.
C
Charlene
12 years ago
I have been living with Atypical TN for 3yrs now, the most difficult thing is trying to make people understand what TN is. It has affected my family, social and work life. I am a Police Officer and it is difficult to work in pain, it is more difficult helping your colleagues understand this when they don't see any injuries to your body. I get you look fine, or I had a toothache the other day and went to my dentist etc., I am sure you have all heard them and more. I am so glad to sign this petition so more people will become aware of this awful illness called TN. I have spoken out where I live on a 22 square mile island, and it has resulted in people who were suffering in silence to finally put a name to what they were experiencing and tell their doctors it hasn't been all in their head. I have had six procedures including MVD, nothing has worked for me, all meds have failed. Off to see a different doctor in a few days, hope he can help.
D
Dan Badger
12 years ago
In support of Ali Vollmer
L
Lory Badger
12 years ago
In support of Ali Vollmer
S
Susan and Michael Francis
12 years ago
My husband is the sufferer and I look after him as best I can when he is havving an attack. It is distressing for both of us.
T
Tammy
12 years ago
Ali Volmer
J
Jeff Vollmer
12 years ago
In support of my beautiful wife Ali Vollmer and all that she deals with
N
Nancy Costas
12 years ago
In support of Ali Volllmer
B
Brittany Corwin
12 years ago
My mom suffers from TN and it's crazy and all about support!
A
Anonymous
12 years ago
I am supporting Ali Vollmer
P
Pamela Hansen
12 years ago
I have suffered with this for 12 years. Medications are no longer working. I am looking into brain surgery.
N
Nancy perez
12 years ago
I am suffering with trigeminal neuralgia ,can you please help.thank you
H
Hanney Musawa
12 years ago
I know first hand of the agony of Trigeminal Neuralgiia.
I have described the pain as:
"...Shocks of excruciating pain radiate across the side of the face like a fierce electric shock. It feels like fire or hot coal is being held to the face while that same face is being stabbed with a sharp object and a razor-blade scraping down it leaving it raw and bleeding. When the sharp, stabbing and shock-like pain starts, there is no relief for days, months or even years..."
I have come across stories of sufferers in the developing world who go through life suffering from TN but because they don't know what it is and those around them don't know what it is, they are regarded as insane.
There is not enough awareness of the condition. A cure must start with creating awareness so people can understand what it is.
I fully support this petition.
D
Doris Stewart
12 years ago
Worse pain than I ever could imagine!
K
Kate Rooney
12 years ago
I suffer from TN, began a few months ago, my entire life has changed. I had never known of this disease.
A
ashley
12 years ago
http://www.mirror.co.uk/news/uk-news/woman-threw-herself-car-park-3812690
This article above will be if my TN becomes permanent. I am 23. I remember my first attack in 6th grade.during my science class. I get attacks often and as time passes the remission time shrinks. TN needs to be recognized. I feel lucky...there are people who have TN on both sides of their face. There are People who arent blessed with a remission period.
L
Lee-Ann Anderson
12 years ago
Spread the message, every disorder should be recognized and understudy. Rare or common.
W
Wenzel
12 years ago
My wife has been suffering with Atypical TN for almost 3 years now and the South African medical and insurance industries are ill-equipped to deal with or understand this disease that has turned our lives into such turmoil. I hope that more awareness can help them understand this disease and the impact that it has on the family. As she does not suffer alone, we suffer with her. God bless all those families that have to deal with TN.
We need more accurate numbers for trigeminal sufferers. It affects all ages. Please help us!
Please work on TN. My husband suffers from it and I've never seen him this way.
I have been living with Atypical TN for 3yrs now, the most difficult thing is trying to make people understand what TN is. It has affected my family, social and work life. I am a Police Officer and it is difficult to work in pain, it is more difficult helping your colleagues understand this when they don't see any injuries to your body. I get you look fine, or I had a toothache the other day and went to my dentist etc., I am sure you have all heard them and more. I am so glad to sign this petition so more people will become aware of this awful illness called TN. I have spoken out where I live on a 22 square mile island, and it has resulted in people who were suffering in silence to finally put a name to what they were experiencing and tell their doctors it hasn't been all in their head. I have had six procedures including MVD, nothing has worked for me, all meds have failed. Off to see a different doctor in a few days, hope he can help.
In support of Ali Vollmer
In support of Ali Vollmer
My husband is the sufferer and I look after him as best I can when he is havving an attack. It is distressing for both of us.
Ali Volmer
In support of my beautiful wife Ali Vollmer and all that she deals with
In support of Ali Volllmer
My mom suffers from TN and it's crazy and all about support!
I am supporting Ali Vollmer
I have suffered with this for 12 years. Medications are no longer working. I am looking into brain surgery.
I am suffering with trigeminal neuralgia ,can you please help.thank you
I know first hand of the agony of Trigeminal Neuralgiia. I have described the pain as: "...Shocks of excruciating pain radiate across the side of the face like a fierce electric shock. It feels like fire or hot coal is being held to the face while that same face is being stabbed with a sharp object and a razor-blade scraping down it leaving it raw and bleeding. When the sharp, stabbing and shock-like pain starts, there is no relief for days, months or even years..." I have come across stories of sufferers in the developing world who go through life suffering from TN but because they don't know what it is and those around them don't know what it is, they are regarded as insane. There is not enough awareness of the condition. A cure must start with creating awareness so people can understand what it is. I fully support this petition.
Worse pain than I ever could imagine!
I suffer from TN, began a few months ago, my entire life has changed. I had never known of this disease.
http://www.mirror.co.uk/news/uk-news/woman-threw-herself-car-park-3812690 This article above will be if my TN becomes permanent. I am 23. I remember my first attack in 6th grade.during my science class. I get attacks often and as time passes the remission time shrinks. TN needs to be recognized. I feel lucky...there are people who have TN on both sides of their face. There are People who arent blessed with a remission period.
Spread the message, every disorder should be recognized and understudy. Rare or common.
My wife has been suffering with Atypical TN for almost 3 years now and the South African medical and insurance industries are ill-equipped to deal with or understand this disease that has turned our lives into such turmoil. I hope that more awareness can help them understand this disease and the impact that it has on the family. As she does not suffer alone, we suffer with her. God bless all those families that have to deal with TN.
hope we can make a difference