International Trigeminal Neuralgia Awareness Day October 7th!
5,071 Comments
K
Karen Williams
11 years ago
Yes, yes, yes. Make all aware that this suicidal pain is real and so intolerable yet, has to be endured or not!
C
cathie Gagnon
11 years ago
I live with this pain everyday, the medications that I take help keep the painat bay but I always feel it a little bit and the medications I'm on make me dopey and it 's very hard to keep sharp at work, I'm also limited what I can do at work because of the meds which puts me at a disposition of making less money and getting fewer hours of work. The pain without the medication does make me just want to curl up and sleep forever in order to be freed from the excruiating pain. Neuralgia for me is horribly disabling pain in my face, sinus, eyes, ear, and right side of my gums.
F
Fenna Vandervelden
11 years ago
My mom is the most fantastic, sweet, carring woman i know and she sufferd badly from TN! Please please please let there come a treatment for all those people!
N
Norman Taylor
11 years ago
Terrible illness not widely known by many. Painful, distressing and debilitating.
A
Amanda
11 years ago
I have trigeminal neuralgia... :( It all started May 2013. I would never wish this upon anyone!
D
Daniel Perez
11 years ago
LA NEURALGIA DEL TRIGEMINO,ES UNA PESADILLA EL DOLOR MAS GRANDE DEL MUNDO,NADIE MERECE TANTO DOLOR,TAN CRUEL..POR FAVOR ANADA ESTA ENFERMEDAD A LA LISTA ...NECESITAMOS AYUDA YA!!!
C
Christopher Landers
11 years ago
This condition is a brutal affliction that causes
V
Victoria Brown
11 years ago
Recently diagnosed with this horrible affliction. We need research to find a cure and people to spread the word.
L
lorri bates
11 years ago
My mom suffered for many years this is a horrible disorder and nobody should have to suffer with this much pain.
It was terrible seeing my mom suffer for years and there was nothing anyone could do.
L
Lawrence R. Bernstein
11 years ago
I'm doing research on new ways to eliminate the pain.
S
Susan Parry
11 years ago
This petition is a good step toward raising awareness. Go for it!
D
dan smyth
11 years ago
Somehing must be done with this debilitating
J
Jane A Irving
11 years ago
More awareness of facial pain disorders is needed to spur more funding for outreach and research. Those who suffer from trigeminal neuralalgia or related facial pain and those close to these sufferers know the tremendous need for lasting pain relief. Awareness gives support to those in pain and funding leads to research supporting medical answers.
L
Linéa Marketos
11 years ago
Although I too suffer from this painful, debilitating disease, I hear the cries of others who are much younger than me, mothers and fathers whose suffering is far worse than mine, trying to hide their horrendous pain from their children, attempting to hide it to keep their jobs, trying to conceal it from people who dismiss their suffering. This affliction needs to be legitimized so doctors are aware of it, recognize symptoms and are familiar with treatments; that sufferers can be recognized as disabled and are eligible for disability income; and especially, so research is supported for better medications, treatments and to find a cure.
C
connie fini
11 years ago
TN Awareness
A
AnneElizabeth Urban
11 years ago
For Rebekah Urban, love love love you.
E
Elaine Peterson
11 years ago
My neighbor is a sweet, beautiful, smart high school senior and suffers from TN. To hear the stories from her mom of trying to comfort her, and find help is heartbreaking. Rebekah, we're praying for you!
E
Elaine Peterson
11 years ago
My neighbor is a sweet, beautiful, smart high school senior and suffers from TN. To hear the stories from her mom of trying to comfort her, and find help is heartbreaking. Rebekah, we're praying for you!
A
Antonino Geraci
11 years ago
It would be a great step for us that have Trigeminal Neuralgia if the WHO decided for an International day for TN. So maybe less peoples will think that we are only crazy.
P
patricia m denke
11 years ago
I have been living (using the term loosely) with atypical trigeminal neuralgia (which is a weird way of saying both constant pain and electric shock-like pain) since 1996. my sister has also had it that long, although her situation now involves several cranial nerves. another sister also battles it, and recently, a cousin joined us in our little group. My sisters and I take acyclovir in huge amounts, which. seems to help, but the attitude of the doctors seems to be something between "oh God,It's you again" and "It's all in your head". my dentist, however, is great.
Yes, yes, yes. Make all aware that this suicidal pain is real and so intolerable yet, has to be endured or not!
I live with this pain everyday, the medications that I take help keep the painat bay but I always feel it a little bit and the medications I'm on make me dopey and it 's very hard to keep sharp at work, I'm also limited what I can do at work because of the meds which puts me at a disposition of making less money and getting fewer hours of work. The pain without the medication does make me just want to curl up and sleep forever in order to be freed from the excruiating pain. Neuralgia for me is horribly disabling pain in my face, sinus, eyes, ear, and right side of my gums.
My mom is the most fantastic, sweet, carring woman i know and she sufferd badly from TN! Please please please let there come a treatment for all those people!
Terrible illness not widely known by many. Painful, distressing and debilitating.
I have trigeminal neuralgia... :( It all started May 2013. I would never wish this upon anyone!
LA NEURALGIA DEL TRIGEMINO,ES UNA PESADILLA EL DOLOR MAS GRANDE DEL MUNDO,NADIE MERECE TANTO DOLOR,TAN CRUEL..POR FAVOR ANADA ESTA ENFERMEDAD A LA LISTA ...NECESITAMOS AYUDA YA!!!
This condition is a brutal affliction that causes
Recently diagnosed with this horrible affliction. We need research to find a cure and people to spread the word.
My mom suffered for many years this is a horrible disorder and nobody should have to suffer with this much pain. It was terrible seeing my mom suffer for years and there was nothing anyone could do.
I'm doing research on new ways to eliminate the pain.
This petition is a good step toward raising awareness. Go for it!
Somehing must be done with this debilitating
More awareness of facial pain disorders is needed to spur more funding for outreach and research. Those who suffer from trigeminal neuralalgia or related facial pain and those close to these sufferers know the tremendous need for lasting pain relief. Awareness gives support to those in pain and funding leads to research supporting medical answers.
Although I too suffer from this painful, debilitating disease, I hear the cries of others who are much younger than me, mothers and fathers whose suffering is far worse than mine, trying to hide their horrendous pain from their children, attempting to hide it to keep their jobs, trying to conceal it from people who dismiss their suffering. This affliction needs to be legitimized so doctors are aware of it, recognize symptoms and are familiar with treatments; that sufferers can be recognized as disabled and are eligible for disability income; and especially, so research is supported for better medications, treatments and to find a cure.
TN Awareness
For Rebekah Urban, love love love you.
My neighbor is a sweet, beautiful, smart high school senior and suffers from TN. To hear the stories from her mom of trying to comfort her, and find help is heartbreaking. Rebekah, we're praying for you!
My neighbor is a sweet, beautiful, smart high school senior and suffers from TN. To hear the stories from her mom of trying to comfort her, and find help is heartbreaking. Rebekah, we're praying for you!
It would be a great step for us that have Trigeminal Neuralgia if the WHO decided for an International day for TN. So maybe less peoples will think that we are only crazy.
I have been living (using the term loosely) with atypical trigeminal neuralgia (which is a weird way of saying both constant pain and electric shock-like pain) since 1996. my sister has also had it that long, although her situation now involves several cranial nerves. another sister also battles it, and recently, a cousin joined us in our little group. My sisters and I take acyclovir in huge amounts, which. seems to help, but the attitude of the doctors seems to be something between "oh God,It's you again" and "It's all in your head". my dentist, however, is great.