International Trigeminal Neuralgia Awareness Day October 7th!

This debilitating disease needs to be a topic even nurses I have dealt with have zero understanding of the disease. We need to raise awareness

glad to be apart of

As the daughter of a Trigeminal Neuralgia sufferer, I realise the importance of funding/awareness of this horrible condition!

14 years of pain, multiple procedures and many medications. Thank God for the support groups and trigeminal neuralgia association that has been such a rich source of information and support. I don't think I would be here today without them.

Diagnosed 2012, suffered all my life. Now 52 and currently on disability due to trigeminal neuralgia. Every day is a challenge and I am blessed to have a wonderful husband and friends & family who try to get this but still can't see anything wrong outside my body.

As someone who has TN, I really welcome this initiative and give my wholehearted support.

Please at Trigeminal neuralgia to the Health Topics list

Suffering TN since 2010

Please add TN to the list we need more awareness of this disease and solutions

Waiting list in this country is way too long to be seen, TN also know as the suicide pain, things need to change.

Please help

I would smile but smiling actually hurts real bad

I was diagnosed with type 1 and type 2 in 2012.

More awareness can create opportunity for more research to cure a disease that is becoming more common.

More needs to be done to provide treatment for TN

This is an unbelievably agonizing condition that just stops the life f the sufferer and their family, because even the medicine has disabling side effects.It needs recognition and awareness.

I have run the gammer of currently available treatments, drugs, MVD, Cyber Surgery and now Pulsed Radiofrequency Ablation without success as yet. I live on the hope for the breakthrough treatment discovered through research to finally find the relief I so long for.

Our lives changed overnight when my husband was struck with TN2. He has been in severe pain every day 24/7 since September 12, 2012. That's two years ago today. It feels like a lifetime. He was a highly respected and sought after physician assistant and he hasn't been able to work since that day. He is somewhat better since a vascular decompression surgery last April, but he still has daily pain that is unpredictable. He is still on heavy meds that have made him a different person. I had never even heard of this disease, but I know it well now. Please help those of us who suffer directly and indirectly from this cruel disease.

This is a very debilitating condition, and when you take the appropriate medications to eliminate the pain, you can't function well enough to work. It frightens me that no one knows about this disease and that more research is not being done. It feels like I am doomed to a lifetime of pain just to be able to hold my job!

I was finally diagnosed with Trigeminal Neuralgia in 2009, after several trips to the emergency room and dentist, my family practitioner finally referred me to a neurologist. However, my referral documents had notes from my doctor that stated I maybe “FAKING” symptoms. That first year was unbearable and humiliating. I have had 2 surgeries since then with no relief. Please, assist us to get the help that we need.