International Trigeminal Neuralgia Awareness Day October 7th!
5,071 Comments
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Cristina Marie Babl
11 years ago
I have bilateral TN as well as Occipital Neuralgia and Fibromyalgia. I am on 20 medications a day several times a day. I am not a surgical candidate as I have had 16 previous head surgeries as a child.and I am running out of options. Trying to get accepted as a patient at John Hopkins. I have been on every medication used to treat TN since I was diagnosed in 2009. Please help us raise awareness and find a cure. I don't know how much longer some of us will survive, including myself.
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Mrs Marilyn Greybanks
11 years ago
I have suffered with this 3 times in the past 10years it is as they say suicidal pain.
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Anonymous
11 years ago
Please listen to those who are suffering.
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Tammy Rafuse
11 years ago
I've recently been diagnosed with TN. I didn't know what TN was until it happened to me. Thank you for bringing awareness, it's difficult for people to understand.
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Edna LeClair
11 years ago
Please help.
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Dawn Wamboldt
11 years ago
my grandfather and mom both have this painful disease.
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Agnes DeGroot
11 years ago
I want to share what has worked for me-
magnesium 500 mg twice per day
B complex
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Cynthia Cross
11 years ago
After MVD 6 years ago on one side and nerve combing on the other, my TN is back on the MVD side. It is so debilitating and I'm back where I started 6 years ago. Please help us cure this ugly disease.
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Brandon Owens
11 years ago
Please help these people!!! My friend suffers from this on a daily basis! It hurts to see her in so much pain that she can't help even herself! This needs to be further researched!
X
xavier cox
11 years ago
Please help our loved ones. We need a cure for this!!
R
Rachel reece
11 years ago
My mom has trigeminal neuralgia also non as TN she has had it for 5 is years now. She is the most amazing person she is my hero and she is the strongest person I no this disease needs to be heard
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Peter Richards
11 years ago
My friend Antonia suffers greatly from TN. She asked me to sign in support.
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frances tracey
11 years ago
I have had 3tooth attractions and years of pain before being diagnosed with atypical trigeminal neuralgia both are terrible terrible to live with
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Ashlee
11 years ago
Signing for my dad who has this
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Kate
11 years ago
Happy to add my name to the list
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Catherine Rogers
11 years ago
Fingers crossed with even one more signature on this petition will help with finding a cure. Stay strong
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Bonnie Cohen
11 years ago
I am 44 and have been dealing with Trigeminal Neuralgia for 2 years, always changing medication due to getting extremely I'll or they stop working. It is on the left side of my face & in my left eye. I am not a surgical candidate and this is the worst pain I have ever felt in my entire life! I never know when the pain will start. Chewing & talking seem to bring on episodes now so I have been on a liquid diet! It's depressing and isolating! I am so sedated on my current medication I can't drive or work. I want my life back, driving working and being social. I had a craniotomy 2 1/2 years ago for a brain tumor which left a huge incision, that unfortunately is tender & painfull. This is from my right ear to just past the center of my skull. So there are times that my entire skull hurts especially in these brutal NY winters. I try to smile or laugh through the pain but when the doors are closed I cry or scream from the pain and feel isolated! I am a artist and left handed, but since brain surgery have tremors in my left hand which sometimes makes simple tasks like writing or using utensils difficult. I can get past most of that except this aweful dibitating pain of Trigeminal Neuralgia!! The Pain is so debilitating! Use to be called the "suicide disease " and I can see why. However, it should never come to this ever!!! We need to find a cure. So please come together with all of us on October 7th " National Trigiminal Neurelgia Awareness Day!" The more people that know about this invisible disease, the more research with be done to find a cure! Only 1 in 20,000 of us unlucky people are inflicted by this pain disorder
V
Vanessa Bayonet
11 years ago
I suffer from this horrible disease. Not enough knowledge o research is being done to find a cure for this extremely painful disorder. Awareness is needed to stop this horrendously painful disorder.
E
elizabeth higginbotham
11 years ago
My daughter has this horribly painful condition.It's awful to watch your child screaming in pain and not be able to help.Even morphine doesn't help.It's cruel.There is not enough research into why this happens ,or enough awareness of its effect on ordinary life.
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Tarun.P.N
11 years ago
Hi, My mother is very badly affected by this ailment.
I have bilateral TN as well as Occipital Neuralgia and Fibromyalgia. I am on 20 medications a day several times a day. I am not a surgical candidate as I have had 16 previous head surgeries as a child.and I am running out of options. Trying to get accepted as a patient at John Hopkins. I have been on every medication used to treat TN since I was diagnosed in 2009. Please help us raise awareness and find a cure. I don't know how much longer some of us will survive, including myself.
I have suffered with this 3 times in the past 10years it is as they say suicidal pain.
Please listen to those who are suffering.
I've recently been diagnosed with TN. I didn't know what TN was until it happened to me. Thank you for bringing awareness, it's difficult for people to understand.
Please help.
my grandfather and mom both have this painful disease.
I want to share what has worked for me- magnesium 500 mg twice per day B complex
After MVD 6 years ago on one side and nerve combing on the other, my TN is back on the MVD side. It is so debilitating and I'm back where I started 6 years ago. Please help us cure this ugly disease.
Please help these people!!! My friend suffers from this on a daily basis! It hurts to see her in so much pain that she can't help even herself! This needs to be further researched!
Please help our loved ones. We need a cure for this!!
My mom has trigeminal neuralgia also non as TN she has had it for 5 is years now. She is the most amazing person she is my hero and she is the strongest person I no this disease needs to be heard
My friend Antonia suffers greatly from TN. She asked me to sign in support.
I have had 3tooth attractions and years of pain before being diagnosed with atypical trigeminal neuralgia both are terrible terrible to live with
Signing for my dad who has this
Happy to add my name to the list
Fingers crossed with even one more signature on this petition will help with finding a cure. Stay strong
I am 44 and have been dealing with Trigeminal Neuralgia for 2 years, always changing medication due to getting extremely I'll or they stop working. It is on the left side of my face & in my left eye. I am not a surgical candidate and this is the worst pain I have ever felt in my entire life! I never know when the pain will start. Chewing & talking seem to bring on episodes now so I have been on a liquid diet! It's depressing and isolating! I am so sedated on my current medication I can't drive or work. I want my life back, driving working and being social. I had a craniotomy 2 1/2 years ago for a brain tumor which left a huge incision, that unfortunately is tender & painfull. This is from my right ear to just past the center of my skull. So there are times that my entire skull hurts especially in these brutal NY winters. I try to smile or laugh through the pain but when the doors are closed I cry or scream from the pain and feel isolated! I am a artist and left handed, but since brain surgery have tremors in my left hand which sometimes makes simple tasks like writing or using utensils difficult. I can get past most of that except this aweful dibitating pain of Trigeminal Neuralgia!! The Pain is so debilitating! Use to be called the "suicide disease " and I can see why. However, it should never come to this ever!!! We need to find a cure. So please come together with all of us on October 7th " National Trigiminal Neurelgia Awareness Day!" The more people that know about this invisible disease, the more research with be done to find a cure! Only 1 in 20,000 of us unlucky people are inflicted by this pain disorder
I suffer from this horrible disease. Not enough knowledge o research is being done to find a cure for this extremely painful disorder. Awareness is needed to stop this horrendously painful disorder.
My daughter has this horribly painful condition.It's awful to watch your child screaming in pain and not be able to help.Even morphine doesn't help.It's cruel.There is not enough research into why this happens ,or enough awareness of its effect on ordinary life.
Hi, My mother is very badly affected by this ailment.