International Trigeminal Neuralgia Awareness Day October 7th!
5,071 Comments
I
Isabella
11 years ago
I have suffered from trigeminal neuralgia for years, and am tired of constantly having to explain my illness to everybody I meet. It's time we educated people about trigeminal neuralgia.
M
Miss Alison Barclay
11 years ago
I am a sufferer of TN, and have been for many years
T
Teontry Woodruff
11 years ago
I was diagnosed with TN August 2010. It took several misdiagnosis before my neurosurgeon got it right. In March 2012 I underwent MVD to suppress this Horrible Disease. Only 65% successful I would say because they have slowed down bit more powerful it seems. This is the worst.
T
tina horton
11 years ago
In memory of my uncle Richard.
M
megan kephart
11 years ago
Suffered 3 years. Now 10 dys post Mvd.
K
Karen Rogers
11 years ago
My mother has this disease and it is terrifying to see her go through the pain that comes with this. It would be wonderful to see something positive come out of this. Please find a cure for my mom and all the others.
K
Kristina Copeland
11 years ago
I developed TN on June 5th. My doctor said that hes been a doctor for over thirty years now and he has only seen 2 cases, one being me and the other, another woman he treats. Both at the same time. I was hospitalized for a week and out on sick leave for three months, it cleared up for about five weeks now but as of Wednesday night, its back and it's BAD right now!
D
Daphna Krim
11 years ago
Trigeminal Neuralgia is a serious and debilitating disease that affects more people than we even realize. A great deal more scientific research is needed toward the development of safe and effective medical treatments for TN.
A
Anonymous
11 years ago
I've had TN for 5yrs now. 6 brain surgeries later, it has only progressed even further. A cure will give so many people their life back!
L
Leslee Harding
11 years ago
I have suffered for 25 years. Please raise awareness of this terrible painful disease.
J
Joan Revis
11 years ago
I am 33 years old and I suffer from TN. I feel like my life has completely stopped. The lack of awareness has caused me to suffer for the past 3 years with no resolution for my disease. I hope that more people will be aware of this condition and what it does to those who suffer from it. My grandmother and cousin have also suffered from this disease and I hope that the next generation will not have to suffer the same way that we have suffered. Please help us find a cure.
S
Spring Bridgers
11 years ago
PLEASE help my sister!!! Her pain NEVER goes away!!! I have watched her deteriorate over the last year from TN and she is only 33 years old.WE BEG YOU!
C
Crystal Biggs
11 years ago
I am a healthy 28 year old female that was officially diagnosed with TN on October 6th, 2014 by an ER Physician. I had searched for answers to my debilitating pain myself prior to telling my GP about the disease, for which she did not know existed. I believe that if the dentist, 2 endodontists and general practitioner I had over the past month were aware of this disorder and its HORRIBLE symptoms, I would not have had the 3 unnecessary and painful dental procedures in the month of September. I would not have lost 15 lbs in 4 weeks (which I assure you, I did not need to lose). I would not have been put on over 10 medications. And I would not have had to take a trip to the ER for severe pain, malnutrition, and dehydration. People, MDs and Dentists especially, need to be aware and educated on this disorder so that they can identify the warning signs and medical professionals can diagnose it properly.
M
Maxine Rose
11 years ago
I am a sufferer of these horrible sickness and believe we need help and research to better understand.
E
enda weekes
11 years ago
i have been suffering with this condition for years now but was diagnosed just over a year ago, persons do not understand the magnitude and severity of the the pain i endure when i have an attack and the medicines prescribed by the doctors all seem to have debilitating side effects. i wish that something can be done to assist sufferers like myself
J
Jackie Houghton
11 years ago
Yes, this needs to be done. Please. I am extremely fortunate to have an amazing neurosurgeon who has performed 2 MVDs on me since 2005. The last one in 2013. Pain free, drug free, I am a happy woman. To make it even more personal, Oct. 7th is my birthday.
L
Lynn Barsalou
11 years ago
Thank you
L
Lisa Smith
11 years ago
I wasn't aware of this, I'm glad now that I have seen it. After my husband had his stroke he has always complained about this "electrical feeling" in half of his face. He doesn't get it as often as he used to but it still does affect him.
Thanks for the education!!
A
Anonymous
11 years ago
For Jeanette.
A
Andrea Blackburn
11 years ago
My best friend and I both suffer with TN. We are only early 30's and are terrified of what it will be like for us in the future without a cure! Please help spread awareness!!!
I have suffered from trigeminal neuralgia for years, and am tired of constantly having to explain my illness to everybody I meet. It's time we educated people about trigeminal neuralgia.
I am a sufferer of TN, and have been for many years
I was diagnosed with TN August 2010. It took several misdiagnosis before my neurosurgeon got it right. In March 2012 I underwent MVD to suppress this Horrible Disease. Only 65% successful I would say because they have slowed down bit more powerful it seems. This is the worst.
In memory of my uncle Richard.
Suffered 3 years. Now 10 dys post Mvd.
My mother has this disease and it is terrifying to see her go through the pain that comes with this. It would be wonderful to see something positive come out of this. Please find a cure for my mom and all the others.
I developed TN on June 5th. My doctor said that hes been a doctor for over thirty years now and he has only seen 2 cases, one being me and the other, another woman he treats. Both at the same time. I was hospitalized for a week and out on sick leave for three months, it cleared up for about five weeks now but as of Wednesday night, its back and it's BAD right now!
Trigeminal Neuralgia is a serious and debilitating disease that affects more people than we even realize. A great deal more scientific research is needed toward the development of safe and effective medical treatments for TN.
I've had TN for 5yrs now. 6 brain surgeries later, it has only progressed even further. A cure will give so many people their life back!
I have suffered for 25 years. Please raise awareness of this terrible painful disease.
I am 33 years old and I suffer from TN. I feel like my life has completely stopped. The lack of awareness has caused me to suffer for the past 3 years with no resolution for my disease. I hope that more people will be aware of this condition and what it does to those who suffer from it. My grandmother and cousin have also suffered from this disease and I hope that the next generation will not have to suffer the same way that we have suffered. Please help us find a cure.
PLEASE help my sister!!! Her pain NEVER goes away!!! I have watched her deteriorate over the last year from TN and she is only 33 years old.WE BEG YOU!
I am a healthy 28 year old female that was officially diagnosed with TN on October 6th, 2014 by an ER Physician. I had searched for answers to my debilitating pain myself prior to telling my GP about the disease, for which she did not know existed. I believe that if the dentist, 2 endodontists and general practitioner I had over the past month were aware of this disorder and its HORRIBLE symptoms, I would not have had the 3 unnecessary and painful dental procedures in the month of September. I would not have lost 15 lbs in 4 weeks (which I assure you, I did not need to lose). I would not have been put on over 10 medications. And I would not have had to take a trip to the ER for severe pain, malnutrition, and dehydration. People, MDs and Dentists especially, need to be aware and educated on this disorder so that they can identify the warning signs and medical professionals can diagnose it properly.
I am a sufferer of these horrible sickness and believe we need help and research to better understand.
i have been suffering with this condition for years now but was diagnosed just over a year ago, persons do not understand the magnitude and severity of the the pain i endure when i have an attack and the medicines prescribed by the doctors all seem to have debilitating side effects. i wish that something can be done to assist sufferers like myself
Yes, this needs to be done. Please. I am extremely fortunate to have an amazing neurosurgeon who has performed 2 MVDs on me since 2005. The last one in 2013. Pain free, drug free, I am a happy woman. To make it even more personal, Oct. 7th is my birthday.
Thank you
I wasn't aware of this, I'm glad now that I have seen it. After my husband had his stroke he has always complained about this "electrical feeling" in half of his face. He doesn't get it as often as he used to but it still does affect him. Thanks for the education!!
For Jeanette.
My best friend and I both suffer with TN. We are only early 30's and are terrified of what it will be like for us in the future without a cure! Please help spread awareness!!!