International Trigeminal Neuralgia Awareness Day October 7th!
5,071 Comments
C
Claudia Gambino
11 years ago
My dear friend, Angela in England has this and I want to know more about it.
L
lise chianello
11 years ago
I live with TN, awareness needs to be done please help us out
L
lise chianello
11 years ago
I live with TN, awareness needs to be done please help us out
J
jolene gibbs
11 years ago
Had had an MRI last week. Today the neurologist told me I have this as well as 3 cerebral white matter subcortical hyperintensities. I am only 39... i don't have alot of info on either but what I have read, I am scared... Originally I was told I had cluster headaches, with hemipelagic migraines. My last neurologist told me the facial droops and what not were called horners syndrome. .. the new neurologist doesn't seem to know a lot and just wants to push pills...i don't want pills..i am not a pain pill seeker... i just want to know what's wrong with me without having to pop pills... help me not the pharmaceuticals
J
jolene gibbs
11 years ago
Had had an MRI last week. Today the neurologist told me I have this as well as 3 cerebral white matter subcortical hyperintensities. I am only 39... i don't have alot of info on either but what I have read, I am scared... Originally I was told I had cluster headaches, with hemipelagic migraines. My last neurologist told me the facial droops and what not were called horners syndrome. .. the new neurologist doesn't seem to know a lot and just wants to push pills...i don't want pills..i am not a pain pill seeker... i just want to know what's wrong with me without having to pop pills... help me not the pharmaceuticals
M
Momo Tsutsumi
11 years ago
Signing for my sister and others who suffer and fight every single day.
M
Momo Tsutsumi
11 years ago
Signing for my sister and others who suffer and fight every single day.
M
mary miller
11 years ago
Help
M
mary miller
11 years ago
Help
A
Anonymous
11 years ago
If you are reading this, google TRIGEMINAL NEURALGIA AND SUICIDE DISEASE and do read some of the support forums. You will see that it is painful enough to imagine what these individuals go through on a day to day basis with this excruciating chronic pain condition. It is even more painful when your loved one(s) is going through this illness. Please do add TN on the "Health Topics" list!!!
H
Huzaifah Hassan
11 years ago
If you are reading this, google TRIGEMINAL NEURALGIA AND SUICIDE DISEASE and do read some of the support forums. You will see that it is painful enough to imagine what these individuals go through on a day to day basis with this excruciating chronic pain condition. It is even more painful when your loved one(s) is going through this illness. Please do add TN on the "Health Topics" list!!!
P
pam
11 years ago
We need a cure for this monster : (
P
pam
11 years ago
We need a cure for this monster : (
A
Amy L. Kovacs
11 years ago
I have atypical TN, and appreciate the idea of spreading awareness for this painful disease.
A
Amy L. Kovacs
11 years ago
I have atypical TN, and appreciate the idea of spreading awareness for this painful disease.
L
Lori-Lynn Ross
11 years ago
I've TN at age 32 since 1999. I've tried every medication, had MVD Surgery, Electric Stim Implant and lastly Cyberknife which has left me with a new level of hell, Anesthesia Dolorosia.
L
Lori-Lynn Ross
11 years ago
I've TN at age 32 since 1999. I've tried every medication, had MVD Surgery, Electric Stim Implant and lastly Cyberknife which has left me with a new level of hell, Anesthesia Dolorosia.
A
Anonymous
11 years ago
I had a total bilateral jaw replacement done in 2012. I have been suffering with TN since then. I find it so frustrating that many people and medical professionals know very little about the condition. I also find that treatment options are quite limited. This condition has kept me from returning to my job and from living the full life I once led. I am happy to be a part of bringing this to the forefront and to educate others of this difficult diagnosis.
S
Sarah
11 years ago
I had a total bilateral jaw replacement done in 2012. I have been suffering with TN since then. I find it so frustrating that many people and medical professionals know very little about the condition. I also find that treatment options are quite limited. This condition has kept me from returning to my job and from living the full life I once led. I am happy to be a part of bringing this to the forefront and to educate others of this difficult diagnosis.
R
Ria Faaij- van Straten
11 years ago
I`ve this "Suicide DIsease" Chronic TN now for 25 years and I hope so there comes a cure that help against this horrible pain for me and many other patients with TN
My dear friend, Angela in England has this and I want to know more about it.
I live with TN, awareness needs to be done please help us out
I live with TN, awareness needs to be done please help us out
Had had an MRI last week. Today the neurologist told me I have this as well as 3 cerebral white matter subcortical hyperintensities. I am only 39... i don't have alot of info on either but what I have read, I am scared... Originally I was told I had cluster headaches, with hemipelagic migraines. My last neurologist told me the facial droops and what not were called horners syndrome. .. the new neurologist doesn't seem to know a lot and just wants to push pills...i don't want pills..i am not a pain pill seeker... i just want to know what's wrong with me without having to pop pills... help me not the pharmaceuticals
Had had an MRI last week. Today the neurologist told me I have this as well as 3 cerebral white matter subcortical hyperintensities. I am only 39... i don't have alot of info on either but what I have read, I am scared... Originally I was told I had cluster headaches, with hemipelagic migraines. My last neurologist told me the facial droops and what not were called horners syndrome. .. the new neurologist doesn't seem to know a lot and just wants to push pills...i don't want pills..i am not a pain pill seeker... i just want to know what's wrong with me without having to pop pills... help me not the pharmaceuticals
Signing for my sister and others who suffer and fight every single day.
Signing for my sister and others who suffer and fight every single day.
Help
Help
If you are reading this, google TRIGEMINAL NEURALGIA AND SUICIDE DISEASE and do read some of the support forums. You will see that it is painful enough to imagine what these individuals go through on a day to day basis with this excruciating chronic pain condition. It is even more painful when your loved one(s) is going through this illness. Please do add TN on the "Health Topics" list!!!
If you are reading this, google TRIGEMINAL NEURALGIA AND SUICIDE DISEASE and do read some of the support forums. You will see that it is painful enough to imagine what these individuals go through on a day to day basis with this excruciating chronic pain condition. It is even more painful when your loved one(s) is going through this illness. Please do add TN on the "Health Topics" list!!!
We need a cure for this monster : (
We need a cure for this monster : (
I have atypical TN, and appreciate the idea of spreading awareness for this painful disease.
I have atypical TN, and appreciate the idea of spreading awareness for this painful disease.
I've TN at age 32 since 1999. I've tried every medication, had MVD Surgery, Electric Stim Implant and lastly Cyberknife which has left me with a new level of hell, Anesthesia Dolorosia.
I've TN at age 32 since 1999. I've tried every medication, had MVD Surgery, Electric Stim Implant and lastly Cyberknife which has left me with a new level of hell, Anesthesia Dolorosia.
I had a total bilateral jaw replacement done in 2012. I have been suffering with TN since then. I find it so frustrating that many people and medical professionals know very little about the condition. I also find that treatment options are quite limited. This condition has kept me from returning to my job and from living the full life I once led. I am happy to be a part of bringing this to the forefront and to educate others of this difficult diagnosis.
I had a total bilateral jaw replacement done in 2012. I have been suffering with TN since then. I find it so frustrating that many people and medical professionals know very little about the condition. I also find that treatment options are quite limited. This condition has kept me from returning to my job and from living the full life I once led. I am happy to be a part of bringing this to the forefront and to educate others of this difficult diagnosis.
I`ve this "Suicide DIsease" Chronic TN now for 25 years and I hope so there comes a cure that help against this horrible pain for me and many other patients with TN