International Trigeminal Neuralgia Awareness Day October 7th!

I've been living with this awful disease for far too long. It's the worst pain I've ever felt in my life and I've had 2 children and that was nothing compared to the pain of Trigeminal neuralgia. We need a cure and we need it sooner than later

I'm a sufferer , already had one MVD OP which lasted 2 half years and its come back :(

We with TN need our lives back!! We need to be understood and heard!! We need a cure!!

#1 doctors need to be trained to recognize TN, I diagnosed myself looking on google long before anyone would believe me #2 There needs to be more research as it is so hard to effectively treat TN without all the nasty side effects

I was blessed to have a good doctor and the right prescription so it has left me Praise the Lord but it is very real and imaginably debilitating.

Please add all these to your Health Topics list. Resources for funding are needed.

After enduring many years of fibromyalgia, my sister developed a brain tumor. It was not malignant, but it was life threatening because it was deeply located and pressed against the brain stem. She had gamma knife radiation, but it continued to grow. After 4 years of various treatments, complications and pain, she finally found a surgeon at UCSF that would operate on it, removing much, but not all, of the tumor. She then developed Trigeminal Neuralgia, which she described as a total game changer. She'd suffered constant pain for many years, but she said it didn't come close to touching the excruciating pain of TN. She says it is a pain, that without relief, she cannot, will not, endure. She is getting some relief for now from meds and botox injections. She is only 50 years old. She cannot survive to old age with this pain. Please help!

I have had TN for over ten years on both sides of my face. So far I have not found any relief and spend every day of my life nauseous and in excruciating pain. Please help us!

I have tn and glad to fight this battle

Please listen to us when we say they pain we have is real. We need help finding a cure. it should be as high on the list as any other disease not shoved under a pile of papers and not thought of again. We need help this disease is serious I live in pain 24/7 as well as a lot of us do and yet no one feels the need or want or care to help us. WHY NOT ? Please help find a cure too.

I have atypical trigeminal neauragial

Please find a cure!! If someone you love had it, YOU would!!

As A TN Sufferer I Stand Behind This Movement...

I have Trigeminal Neuralgia and after having brain surgery in March of 2015 (which was unsuccessful) I now also have Anesthesia Dolorosa. So I am now battling two facial pains/disorders. My entire family and support system is praying that this petition is successful so that Trigeminal Neuralgia is listed on the WHO Health Topic List. We need the funding & awareness so that all of us suffering with facial pains can have some hope for research which will in turn provide new treatments, procedures, medications etc. that actually work and help us get some sort of relief from this unrelenting pain that is absolutely debilitating. I am only 43 and my life, every single aspect of my life, has been affected by this horrific disease. Hoping for a cure

I suffer from this disease.. We need awareness and a cure

We need this to be recognised and make people aware of this condition.

I am living with this horrible disease that is so cruel to the mind of the person who has it.And it is torturing love ones also who do not know how to help but watch the person suffer because no one has a cure. Please Please Please help to find a cure or stem cell research. I will be a lab rat for this. This disease is making me a prisioner. Please I beg you... Christina Bell

My father has suffered from this from over 20 years now.

My best friend has this disease. It is a horrible thing. Not only because of what she has to deal with but also because people think she is faking the pain is that she should be able to function with a "headache." They just don't understand.

I have suffering T N over 20 years.