International Trigeminal Neuralgia Awareness Day October 7th!
5,071 Comments
S
Sharon Salazar
10 years ago
Please give us a voice & recognize our suffering!!!
C
C Speece
10 years ago
In memory of Dawn Winner
T
Terra Ela8
10 years ago
I have TN.
A
Andriana Drongitis
10 years ago
The agony of watching a loved one suffer from this "condition" or disease cannot be expressed in words.
D
Danielle Taylor
10 years ago
I am signing this petition today...
J
Jennifer B Carter
10 years ago
Please don't tell me after 18 years of suffering that one day my pain will end.
Be proactive in my care, help me, help us !
A
Anonymous
10 years ago
There needs to be more awarness & research to this awful disease.
A
Angela Kennedy
10 years ago
I suffered from TN1. I've had MVD and gamma knife surgery and am currently medication and pain free. My amazing neurosurgeon is Dr. Dong Kim. He gave me back my life.
S
Shelbie
10 years ago
We deserve the right to have information available for our own need and to teach others what this disease is
A
Anonymous
10 years ago
Please act now and make a difference to TN patients
Y
yvonne mc collum
10 years ago
I personally suffer from Trigeminal Neuralgia. I know how real and how much it can dominate my life. I do not want it but it found me and I am stuck with it. Help make people aware so maybe people might be able to understand our struggles and research may step up to help people like me.
E
Elizabeth Ann Umar
10 years ago
I was a TN sufferer thank god i have had no pain for 5 months now and hope this to continue
L
Linda Preston
10 years ago
please dear god ....help
D
Donna Quintana
10 years ago
Fighting for quicker proper diagnosis and better treatment options
M
Mandy
10 years ago
I have suffered from TN for over 12 years and a lack of knowledge and understanding by my GP delayed referrals for assessment such as MRI to identify the cause of the TN, also resulting in a dependence on prescription painkillers. After a long battle i had MVD surgery to treat the cause of my TN.
J
Jenny Harrison
10 years ago
I have type 2 trigeminal neuralgia and mvd twice.
K
Kathryn Murphy
10 years ago
I have had inoperable atypical bilateral trigeminal neuralgia for 13 years, and get treated like a junkie at my ER. It takes so long to get a dr to believe me and validate my pain that it is often more effective to stay home and scream in pain. Almost no one knows about this disease. And almost no one believes you when you try to tell them.
M
michelle tuazon
10 years ago
So happy to have had that chat with you Lagi. For someone who I know wasnt feeling well, you still smiled through the whole 2 hrs and not once complained. Gods blessing with you lovely girl xx
C
Cliff Ruquist
10 years ago
Would like to speak with others that have tn.
M
Michelle Collins
10 years ago
I believe what they did to Dawn was wrong and what they are going to all chronic pain patients is sickening! Taking ones medications away and failure to treat and causing ones death the Dr should be charged with a crime!
Please give us a voice & recognize our suffering!!!
In memory of Dawn Winner
I have TN.
The agony of watching a loved one suffer from this "condition" or disease cannot be expressed in words.
I am signing this petition today...
Please don't tell me after 18 years of suffering that one day my pain will end. Be proactive in my care, help me, help us !
There needs to be more awarness & research to this awful disease.
I suffered from TN1. I've had MVD and gamma knife surgery and am currently medication and pain free. My amazing neurosurgeon is Dr. Dong Kim. He gave me back my life.
We deserve the right to have information available for our own need and to teach others what this disease is
Please act now and make a difference to TN patients
I personally suffer from Trigeminal Neuralgia. I know how real and how much it can dominate my life. I do not want it but it found me and I am stuck with it. Help make people aware so maybe people might be able to understand our struggles and research may step up to help people like me.
I was a TN sufferer thank god i have had no pain for 5 months now and hope this to continue
please dear god ....help
Fighting for quicker proper diagnosis and better treatment options
I have suffered from TN for over 12 years and a lack of knowledge and understanding by my GP delayed referrals for assessment such as MRI to identify the cause of the TN, also resulting in a dependence on prescription painkillers. After a long battle i had MVD surgery to treat the cause of my TN.
I have type 2 trigeminal neuralgia and mvd twice.
I have had inoperable atypical bilateral trigeminal neuralgia for 13 years, and get treated like a junkie at my ER. It takes so long to get a dr to believe me and validate my pain that it is often more effective to stay home and scream in pain. Almost no one knows about this disease. And almost no one believes you when you try to tell them.
So happy to have had that chat with you Lagi. For someone who I know wasnt feeling well, you still smiled through the whole 2 hrs and not once complained. Gods blessing with you lovely girl xx
Would like to speak with others that have tn.
I believe what they did to Dawn was wrong and what they are going to all chronic pain patients is sickening! Taking ones medications away and failure to treat and causing ones death the Dr should be charged with a crime!