International Trigeminal Neuralgia Awareness Day October 7th!
5,071 Comments
E
Ed Stewart
6 years ago
I am a TN sufferer for over 7 years now and I want the world to know what TN actually is and to feel our pain. We need help, please help us it hurts
G
Georgia Carl
6 years ago
I have tn type 2 with flareups of type1. I live in constant pain. Medications that I fought so long about taking, I now am afraid to go without. Missing one dose can cause a flareup. Weather, stress, etc causes increased pain. I live my life in pain, not enjoying what I once did.
D
Danny Trinata
6 years ago
I am TN patient
M
Maritta Van Casteren
6 years ago
Worldwide research into trigeminal neuralgia is a necessity. Let's hope a cure can be found for this terrible and extremely painful disease.
L
Linda Lam
6 years ago
Trigeminal Neuralgia and atypical auriculortemporal neuralgia are rare but extremely painful diseases that need real exposure and real help. Most treatments are negligible and don’t even work. Our lives matter as much as anyone else’ yet there is little research and treatment options that actually work. There is a reason why this is sometimes called the suicide disease. I hope some day there will be cure or at least treatment options that work
A
Albertas G Augustinas
6 years ago
Trigeminal Neuralgia has been part of my life for five years with Chicago winters being the most difficult. It is difficult to believe that there is not a worst case procedure to end this pain.
N
Nicola Graham
6 years ago
THANK YOU
R
Ronda Cecil Bruse
6 years ago
Cause Pain patients matter
D
Diana Robey
6 years ago
Thanks
K
Katie
6 years ago
Doctors nurses and other medical professionals need to be aware of this disease.
D
David W Cole
6 years ago
I can't believe we need a petition to make this happen, how freaking ignorant of the WHO!
V
Vicki Melone
6 years ago
I have Trigemnal Neuralgia . I had a crainiotomy with a MVD . Still in pain .
Vicki
J
Jennifer Hammond
6 years ago
I was diagnosed in March 2019 with TN ,I had my MVD surgery July 15 2019, I cannot imagine living without that surgery it has saved my life.
E
Eric Beaton
6 years ago
This is an cripling condition that needs major funding asap
W
Wendy Kirkpatrick
6 years ago
T
tara nissen
7 years ago
My dad has both TN and MS! It's about time WHO takes responsibility. It's not an invisible disease anymore and should never have been.
T
Tianna Burtnett
7 years ago
TN is real! And it is excrutiating
S
Sabina Grant
7 years ago
my partner suffers from TN so anything to raise awareness for this horrible disease
M
Myra
7 years ago
I have had this disease for twenty three years. Worse than any pain I could ever have imagined. Time for relief
N
Nikki Wiecek
7 years ago
I was recently diagnosed on 7/1/19. I am a 32yr old mother of 3, I also have MS. I am extremely shocked at how little information & cures there are out there for this illness
I am a TN sufferer for over 7 years now and I want the world to know what TN actually is and to feel our pain. We need help, please help us it hurts
I have tn type 2 with flareups of type1. I live in constant pain. Medications that I fought so long about taking, I now am afraid to go without. Missing one dose can cause a flareup. Weather, stress, etc causes increased pain. I live my life in pain, not enjoying what I once did.
I am TN patient
Worldwide research into trigeminal neuralgia is a necessity. Let's hope a cure can be found for this terrible and extremely painful disease.
Trigeminal Neuralgia and atypical auriculortemporal neuralgia are rare but extremely painful diseases that need real exposure and real help. Most treatments are negligible and don’t even work. Our lives matter as much as anyone else’ yet there is little research and treatment options that actually work. There is a reason why this is sometimes called the suicide disease. I hope some day there will be cure or at least treatment options that work
Trigeminal Neuralgia has been part of my life for five years with Chicago winters being the most difficult. It is difficult to believe that there is not a worst case procedure to end this pain.
THANK YOU
Cause Pain patients matter
Thanks
Doctors nurses and other medical professionals need to be aware of this disease.
I can't believe we need a petition to make this happen, how freaking ignorant of the WHO!
I have Trigemnal Neuralgia . I had a crainiotomy with a MVD . Still in pain . Vicki
I was diagnosed in March 2019 with TN ,I had my MVD surgery July 15 2019, I cannot imagine living without that surgery it has saved my life.
This is an cripling condition that needs major funding asap
My dad has both TN and MS! It's about time WHO takes responsibility. It's not an invisible disease anymore and should never have been.
TN is real! And it is excrutiating
my partner suffers from TN so anything to raise awareness for this horrible disease
I have had this disease for twenty three years. Worse than any pain I could ever have imagined. Time for relief
I was recently diagnosed on 7/1/19. I am a 32yr old mother of 3, I also have MS. I am extremely shocked at how little information & cures there are out there for this illness