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International Trigeminal Neuralgia Awareness Day October 7th!

5,071 Comments

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Susan Ranstead
10 years ago

A cure must be found. We want to be part of our families, our communities, our churches and temples. Too many need disability payments to pay their bills. That affects their states and country. Children with these neuralgias face decades of intractable pain. How are their lives less important than others? 1% of the money raised for breast cancer research would make a huge difference. We need a piece of the pie. Please.

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Abby Barnes
10 years ago

For my cousin Olivia❤

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Susie hoffman
10 years ago

We need meds that work or better yet a cure

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Amanda Lapworth
10 years ago

There are so many tortured by these facial pain illnesses. There are no specific medicines for the disease. Many turn to multiple brain surgeries that often do not fix the person for the long term. Most often consider suicide as an option for relief. We need awareness, medicine development, and better understanding of the disease. Most are crippled by these afflictions.

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Dawn Amankwaa
10 years ago

My 3 year old has TN. Please!!!!! Its time to find a cure!!!

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Carrie Ruffin
10 years ago

Please do something to end the pain of Kimmy Fisher and all those suffering from this. How many lives ( suicide) do we have to lose before it goes noticed ? :(

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Ron Jackson
10 years ago

Let's kick TN ass

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Victoria Tso Miera
10 years ago

I have trigeminal neuralgia since 2007 brain surgery in 2008 with the MVD. Came back in 2009 and I've been on heavy doses of medication ever since. Tegretol 400mg 4x daily Gabapentin 1200 mg 3xdaily Cymbalta once a day diazepam 25mg as needed and now adding Lyrica 100mg This disease has completely taken over my life and I no longer can work also I've applied for Social Security disability but have been denied because to them this is not a real disease because it's like your brain not your body even though the medication completely takes over your whole body and the side effects are enormous please help us find a cure

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Amanda K
10 years ago

I've been recently diagnosed with TN, and while most people aren't aware of this condition, a lot of doctors aren't well educated along with hospitals and nursing staff

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Shannon Ratliff
10 years ago

Please help us!!!

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Tina Reynolds
10 years ago

I have ON and TN it is affecting my life my kids and my grandkids lives.. We need this cure now

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Deanna Knapp
10 years ago

I was recently diagnosed with trigeminal neuralgia. This disease needs to be known worldwide because it affects all people worldwide. Need ,ore professionals to learn about the disease. From the nurse to the specialists. It is not just in the textbooks, we are the faces of this monster ruining our lives.

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Stephanie
10 years ago

Prayers!

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Tanja Cieslak
10 years ago

TN sufferer for 15 years . Please help us !

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Deanna Rader
10 years ago

TN sufferer for 1 year.

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Linéa Marketos
10 years ago

I'm at this point unable to eat or drink anything without causing horribly painful burning, lightning strikes to my upper jaw. My meds haven't put a dent in the pain, and forcing some sips puts me in agony. This is a real disease, one of the most painful, and needs to be listed by the World Health Organization.

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Maureen Stone
10 years ago

Please please help us!

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Anonymous
10 years ago

Find a cure!

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Darcy Lombardi
10 years ago

We need a cure.

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Susan Brittingham
10 years ago

TN pain makes it impossible for most of us to hold down a job and it also cost me the relationships I used to have with my husband, children and now grandchildren. Please include TN so we can get a cure. Thank you