International Trigeminal Neuralgia Awareness Day October 7th!

I have type 2 Trigeminal neuralgia and Occipitalneuralgia .

Find a cure!!

Living w TN for 15 years.

I suffer from TN & Sunct syndrome. I was not diagnosed by four doctors before going to ER with stabbing to eye pain, very high blood pressure and droopy eye. ER didn't know what it was. I take medications for epilepsy and MS but I don't have those conditions. There needs to be more information and training to all medical fields. Excedrin migraine doesn't work like doctors first tried to suggest I take.

As someone whos loved one lives with this terrible disease I strongly urge for more research to be done to help find a cure and a way to help ease the pain!

I was diagnosed with this devil himself disease about 6 months ago. medication worked for about 4 months, now its back.

Happy to support

I have both TN 1 and TN2 and desperately need a cure as other health conditions rule out many of the drugs and surgeries for TN

I've had this for 4 yrs an every day it's gotten so painful an no physician even cares.. I have it on both sides which is more rare.. I have been to every doc imaginable.. One sends u here an the other sends u there but they can't give u any meds cause ppl have abused them so when ppl really have pain we can't get them.. I've been doing my rescreach an looking into nonsurgical methods.. I hope for all that have an will have tn that someone comes up with help for this debilitating disease...

I am from India, My father has been a sufferer of this disorder for a decade now,since I have been a witness to this pain and suffering ,its my earnest request to include this into health topic and since the incidences of this disorder are not a rampant , yet it is no less painful as compared to any terminal illness.This initiative taken is a small step towards considering the grievances of the patients and their families ,who have been a part of seeing their loved ones suffer through this .Hope this gets the required attention and there is more in-depth research initiated to solve this life disabling illness.

I live in IL & TN the suicide disease is not on the medical MJ list but arthritis is!!! That's ridiculous. Does not ONE person understand how much pain WE live in!!????

Have only had this condition for a few months but so wish it was more understood by others,We need to make it public.

Geniculate and Glossopharyngeal Neuralgia fighter

Backing Lagi all the way. Luv you cuz xx

Thank you for creating this petition. We need more voices, and we need more support from the medical community. This disease is the most painful condition in the world and ruins lives. I have TN and the fact that it completely disables me and disrupts my life as much as it does is unacceptable. It's unacceptable because it's not recognized enough and I can't go to a Dr. and simply get the kind of help that I need or deserve. I'm only 30 years old, so I truly hope that we find a cure or better treatment in my lifetime.

For my daughter ,Tonya Litwicki .She suffers almost daily with the extreme knife stabbing sharp pain in her head .She has had 6 brain surgeries with no help .Hers is a little different than some ,but still ,the same pain. She has tumors ,non cancerous ,yes but so painful where they ate pressing on the trigeminal nerves . This disease has forced her into early disability when in her 30's ..She never missed one single day at school for 12 years .She was very active in school and voted most likely to succeed...and was a happy ,healthy ,young lady till her imcruciating pain begain.After many different Drs. And many visits ,one day ,finally she found out the name for her horrific pain. A neuroglistis at VANDERBILT HOSPITAL in Nashville Tenn. diagnosed her .From that day forward ,we had a name ,one no one we knew had ever heatd of either ,but it had a name .Also a very sad and scary furure ahead .TRIGEMINAL NEURALGIA.. A disease that would take over her life as she knew it .Hardly a day goes by that she does not have a small attack to days on end that it never lets up. Called THE SUCICDE DISEASE ,because of the intense pain .This disease needs to be brought to everyones awareness simply because ,if for no other reason ,so many so very many Drs.do not even know or understand TN and so many times a person is misdiagnosed or even sent to a dentist ..This is when the person gets so tired of the intense pain and nothing the Dr.prescribed had helped .The dentist can only make it worse .I know this may not always be the cases but they are happening and if more people and Drs .was made more aware ,maybe they would know to go a srep further .Some surgeries ,Im sure has helped so many if diagnosed correctly .I can only pray that one day soon ,TRIGEMINAL NEURALGIA will be a name reconized just like the word cancer is reconized .. To much pain associated with this and to many people that has it needs to learn .

Just recanted diagnosed with TN and at its worst the pain is horrible and "off the chart" no number can be given.

please add this horrible disease to the list.

I have a cousin with this condition and am now aware of the suffering that it causes.

Big ups to you for calling this one out Mikey. Didn't even know about it till your latest posts.