International Trigeminal Neuralgia Awareness Day October 7th!
5,071 Comments
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Michael Halpin
9 years ago
Sufferer of this horrific pain for 8 years. More research is needed to determine why sufferers get and how to address - heavy drugs are not the long term answer!!
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Denise Simpson
9 years ago
I too suffer with trigeminal neuralgia, for two years. God Bless everyone that is suffering with this, and all those that support us. You Are ANGELS! I support and sign this petition to spread Awareness, Research For A Cure!!!!
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Lori Williams
9 years ago
I have suffered from TN for 5 years! Please help us!
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Betsy Gonzales
10 years ago
I have been fighting since I was 33.
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Christine Barnard
10 years ago
Thank you.
TN warrior & post MVD 7/28/2016
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Kimberlee Fisher
10 years ago
Fighting this battle with Trigeminal neuralgia for 20 years. Please help
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Dana Arena
10 years ago
Just recently learned about this nightmare of a disease when a friend was diagnosed. She suffers everyday. Praying daily that a cure is found
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Edmond OFlaherty MD Dublin
10 years ago
I have a big interest in LDN (lowdosenaltrexone) which works for numerous conditions. One of my patients is on it for multiple sclerosis and is well in that regard. He came today for review and told me his trigeminal neuralgia has gone for the past 3 months, soon after he started LDN. I know for years that LDN works for TN but this is the first case I have seen in my patient with that horrific condition. See www.lowdosenaltrexone.org and www.ldnscience.org for more information. Dr Bernard Bihari discovered this med about 30 years ago in New York.
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Shalandra Towns
10 years ago
I didn't know what this was until my sister was diagnosed.
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Christopher Williams
10 years ago
Supporting...
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Resetta
10 years ago
People need to be aware
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Canon Bill and Fran Warne
10 years ago
My wife and I just returned from a benefit event in Wilkes-Barre, PA to raise funds to support TN Research by Johns Hopkins Hospital in Baltimore, MD (USA)
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Sarah Knott
10 years ago
Diagnosed with TN at 21yo. Currently am 25yo.
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Katie Rowbotham
10 years ago
Suffering everyday with no relief as I'm yet to find a Doctor who knows anything about this condition. I'm feeling like a quinea pig testing different medications. It's a case of trial and error whether they will work or not. Meanwhile, I'm suffering in constant excruciating pain with even more symptoms because all they do is give terrible side effects. I really hope this petition can bring more awareness, to help everyone suffering with this awful condition!
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Ruby Licavoli
10 years ago
I've been diagnosed little over a month ago and I am 37 years old.
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Kevin F.Dehler
10 years ago
We need Awareness and a Cure !
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Elizabeth romero
10 years ago
It really sucks not having a cure
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Tracey joss
10 years ago
Horrific disease that blights my young daughters life . Keep praying for a cure x
Sufferer of this horrific pain for 8 years. More research is needed to determine why sufferers get and how to address - heavy drugs are not the long term answer!!
I too suffer with trigeminal neuralgia, for two years. God Bless everyone that is suffering with this, and all those that support us. You Are ANGELS! I support and sign this petition to spread Awareness, Research For A Cure!!!!
I have suffered from TN for 5 years! Please help us!
I have been fighting since I was 33.
Thank you. TN warrior & post MVD 7/28/2016
Fighting this battle with Trigeminal neuralgia for 20 years. Please help
Just recently learned about this nightmare of a disease when a friend was diagnosed. She suffers everyday. Praying daily that a cure is found
I have a big interest in LDN (lowdosenaltrexone) which works for numerous conditions. One of my patients is on it for multiple sclerosis and is well in that regard. He came today for review and told me his trigeminal neuralgia has gone for the past 3 months, soon after he started LDN. I know for years that LDN works for TN but this is the first case I have seen in my patient with that horrific condition. See www.lowdosenaltrexone.org and www.ldnscience.org for more information. Dr Bernard Bihari discovered this med about 30 years ago in New York.
I didn't know what this was until my sister was diagnosed.
Supporting...
People need to be aware
My wife and I just returned from a benefit event in Wilkes-Barre, PA to raise funds to support TN Research by Johns Hopkins Hospital in Baltimore, MD (USA)
Diagnosed with TN at 21yo. Currently am 25yo.
Suffering everyday with no relief as I'm yet to find a Doctor who knows anything about this condition. I'm feeling like a quinea pig testing different medications. It's a case of trial and error whether they will work or not. Meanwhile, I'm suffering in constant excruciating pain with even more symptoms because all they do is give terrible side effects. I really hope this petition can bring more awareness, to help everyone suffering with this awful condition!
I've been diagnosed little over a month ago and I am 37 years old.
We need Awareness and a Cure !
It really sucks not having a cure
Horrific disease that blights my young daughters life . Keep praying for a cure x
Prayers for all
Been suffering for over 12 years now