International Trigeminal Neuralgia Awareness Day October 7th!

We need a cure !Please help us by putting this Horrible Nightmare that is so real on the WHO list,Thank-you

I lost my father to the unbearable pain of trigeminal neuralgia. Please help us raise awareness for this horrible disease. No one deserves to bear the pain of the attacks, day after day, with misdiagnoses and apathy from medical professionals. Any disease which drives people to the point of suicide deserves more recognition and research. Thank you.

Totally debilitating disease more research and awareness is needed

Newly diagnosed

It took me close to three years, many doctors, and traveling out of state to finally be diagnosed with Trigeminal Neuralgia. Most doctors where I lived previously had no idea about the infliction. This has to changed! TN needs more recognition, and funding for research. I am a survivor, and I intend to stay that way! For all who have TN and are reading this, I have found an off-label medication that has helped me significantly (it may help you too) it's called Namenda. Please research it and talk to your doctor. I really think it could help a lot of people, which is why I'm posting it here. Too all those fighting TN I send you my love, keep up the hope that one day we will find a cure.

i really would like to know why Australia is not listed

Diagnosed with TN 3 month ago. Worst pain I have ever imagined, and I have given birth. More need to be done to help us with pain and medical financial support. Research is essential to our lives!

People need to become aware of this condition, the pain and suffering is unbelievable. I watch my wife go through it every day and its heartbreaking to see.

Im watching my mother suffer to the point she wishes she was dead, she shouldnt have to live like this, she has lost so much.

Watching my mother go through this every day is a struggle for everybody as well as her. Its hard for me to get through my school days knowing she is suffering. Please help and take notice

My mother is suffering, it's heartbreaking to watch.

This condition needs to be recognised by the wider community young & old. Just because you are younger then them, it doesnt mean you too dont suffer and get hurt by what is being said and done. You have pulled your weight with spreading awareness in NZ so keep your head up girl and keep fighting. I have seen my friends health go down bad past few months but shes always found the time to fight & spread awareness. WHO needs to see that these poor sufferers are not only having to deal with TN but also other health issues from long term use of medication/s taken to help ease their pain. FIGHT FIGHT FIGHT LAGI

I live with this torture everyday. My entire life has been taken everyday it was something else i couldnt do. People dont understand so they drift off. Driving gone, going outside gone, half the time i cant even pick up a cup of coffee because the nerves in fingers do their own thing. I totally understand why its called the suicide disease there is no cure they need to find one.

I live with this condition everyday PLEASE HELP US , no one knows just how painful it is unless they have walked our path, wearing our shoes. I now fully understand why they call it "The Suicide Disease" there are days its crossed my mind but then I think I'm not letting it beat me and I hold on for another day of this torture. Don't ignore our pleas we need help.

Please help all of us who suffer from this awful disorder. Until you have walked a mile in our shoes, you can't imagine how awful we feel!

Antelope, California

Terrible affliction that is very sporadic. Its attacks are always a surprise and can last for weeks and months at a time. Screaming in pain for hours at a time is not unusual!

Type 2 Trigeminal Neuralgia, Occipital Neuralgia

We need to find a cure for this horrific disease!

mucho ánimo!