International Trigeminal Neuralgia Awareness Day October 7th!

I have had TN since last December. I understand why it is called suicide disease.

I am a TN patient

Very important best of luck getting the recognition needed for funding to make a difference in people's lives who have this disease.

Help us

We need to find the relief of this horrendous condition. Not many people understand how we can endure this pain.

My son has atypical tn. He lives in constant pain.

Raise Awareness!!!

I am so happy that I now have a place to count on for RESEARCH. Please, along with all the others with TN, please, please add this the list of important diseases. I am currently having lowish chronic pain all day and every day, but it's better that the 10+ pain we TN patients can have. I try not to be sad or get depressed, but it's very hard. TN changes your life from once a very social, busy, happy 65 yr old to a careful person always making decisions during the day of "Should I" or "Shouldn't I" do thus and such. I would even be a willing participant in a study of TN and how to relieve it or rid of it. I have tried many things already, drug therapy, Gamma Knife (pain free for 5 years), Reiki, and will be seeing an acupuncturist soon. TN patients are confused with the fact that there are studies for so many things but this. Please! Please help us.

In depth studies are needed to determine how to strenghten nerves through diet, exercise, behavior modification and natural methods so that our nerves can fend off illness.

For our pains sake it is time for some positive moves forward.

I also suffer thus desease

I have several friends with this horrible disease!

Ive been suffering with this demon called Trigeminal Neuralgia for 9 years. Ive had 2 Microvascualr Decompressions, 2 cyberknife treatments, 2 gamma knife procedures, 5 radiation treatments, dozens of nerve blocks, 2 rhizotomies, over 250 trips to the ER, been on every seizure medication, ( Neuronton, Topamax, Tegretol, Depakote, Carbatrol,, Dilantin, Trileptal, Zonegran). Ive been on Prozac, Indomethacin, Kadien, Endocet, Exalgo, morphine lolipops, fentanyl patches, oxycontin, oxycodone, dilaudid, marinol. And absolutely NOTHING has helped my pain. I'm in pain6 days out of 7 a week. Maybe once every 3 months or so, I can get 2 days without being in pain. Somebody please help us!!!! If you can put a man on the moon, then SURELY you can find a cure for this disease.

I have Trigeminal Neuralgia and Anesthesia Dolorosa ( which happened after a failed brain surgery). My doctors put me on medical leave and I can no longer work due to the horrific pain I am in every single day. It SO difficult to prove how debilitating an "invisible illness" truly is. This should absolutely be on their list of diseases. Hopefully this would make it less difficult for those who suffer from TN to receive SSD benefits and other services since it would be on "the list".

I have suffered for 3 months not knowing what was going on in my life. This horrible disease was diagnosed to me last Friday, September 16th. I'm still in shock.

Please add Trigeminal Neuralgia to your health list and promote funding for research for a cure! Thank you!

Please signe the petition We need a cure is very painfull... Nesesitamos una cura... Nesesitamos AYUDA... WE NEED HELP... PLEASE

I pray daily for a cure. 14 yrs of pain that few understand..

Please find a cure!

Newly diagnosed with type 1 trigeminal neuralgia at the age of 34, it took 7 doctors to get a diagnosis. More doctors and people need to be aware that this disease is very real and beyond painful. Better treatment options need to be available, some of them are incapacitating and diminish our quality of life. Something has to be done so we can live productive and normal lives.